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Replying to @CMerandi
I see her for who she is. She is the kind of woman I am. We don’t just curl up and die when the world wants to push us back. We go on to fight back and impact history for ever.
also say that telling patients with a terminal disease that their best chance is to go on Suboxone so that they have less high and low and the medication is in them for a longer or something is got to be some type of mental health problem. If this is the new standard for terminal
Robin EM-powers patients retweeted
Telling a patient pain medication causes pain is a form of mental illness
It’s akin to telling patients benzodiazepine cause anxiety
“Your opioids are making your pain worse.”
That claim has been used to justify forced tapers, treatment cutoffs, and switches to Suboxone.
But where’s the evidence?
We expose the opioid induced hyperalgesia hoax, the experts, and the FDA's role.
Our full investigation is NOW PUBLIC!
youtu.be/P0U_UCjB6No
When I raised this with a pain clinic in another county, they were so appalled they tried to help preserve my care. Palliative care should protect quality of life, dignity, and well-being—not create barriers that threaten them. Everyone deserves compassion.
After 10 years of advocacy, here’s what I’ve learned: interventional pain was an industry built on the backs of desperate pain patients; harm reduction is a jobs program fueled by opioid settlement funds, addiction medicine is Suboxone cult, state medical boards were created to destroy doctors lives and if you allow a surgeon to torture you postoperatively, they will
Robin EM-powers patients retweeted
After 10 years of advocacy, here’s what I’ve learned: interventional pain was an industry built on the backs of desperate pain patients; harm reduction is a jobs program fueled by opioid settlement funds, addiction medicine is Suboxone cult, state medical boards were created to destroy doctors lives and if you allow a surgeon to torture you postoperatively, they will
Robin EM-powers patients retweeted
Replying to @CMerandi
I just lost my doctor managing my care since 2018 for PTSD and narcolepsy Famial dysautonimia and Ehlers danlos syndrome type 3 and it turns out with-drawl from this can and does kill you unless its tampered slowly if stopped. My doc wants me on sub! allergic
Robin EM-powers patients retweeted
Rx opioid pain medications are dirt cheap and highly effective. In a sane world they would be sold OTC regulated similar to alcohol. They are much less powerful than alcohol and have actual medical applications; alcohol has zero applications yet its available in every 'gas station.
Spinal epidural injections are highly risky, not fda-approved, of very limited effectiveness for treating pain, and the anesthesiologists bill insurance companies thousands of $$$$$$$ per injection.
Guess which one you are getting.
Wake up people this is here right now and they are coming for you. And they don't care if you live or die.
Replying to @hoss_tagge
Yup- and throughout the first world, those spinal epidural injections of steroids are being seen as barbaric and advised against. They’re not even FDA approved yet they’re being pushed heavily by for profit models - and paid for by the American taxpayer as well.
Robin EM-powers patients retweeted
New article posted on Rare Disease Advisor: "Cannabidiol Linked to Fewer Seizures in Adults With Lennox-Gastaut Syndrome, Other DEEs." Read the full article here: buff.ly/JSI0cCf #RareDisease
Legality is NOT a measure of morality. History including WWII war crimes reminds us that the law and morality are not always the same. Being a responsible human means asking not only “Is it legal?” but “Is it right?”I believe in treating people as people. ❤️ #NeverAgain #Equality
This is something that funding should be going towards so that it’s not just a dream. It can be a reality that is on your health insurance and is covered as of first line choice of course with proper monitoring to make sure that it’s functional for you though.
🫀 What If a Pacemaker Never Had to Be Put Inside Your Body?
Imagine needing a pacemaker, but instead of surgery, wires, and a device implanted inside your chest, a tiny patch simply rests on your skin. It sounds almost impossible—but researchers have now demonstrated an experimental system that could one day make this idea a reality.
The device is about the size of a postage stamp and uses focused ultrasound rather than electrical wires to influence the heartbeat. In laboratory experiments with engineered human heart cells and tests in rats, researchers were able to restore normal heart rhythms without placing hardware inside the heart.
The secret is a technique called sonogenetics. Researchers first make certain heart cells sensitive to ultrasound. When the wearable patch sends carefully timed sound waves into the body, special channels in those cells respond by opening. This allows calcium to enter the cells—a natural signal that tells heart muscle to contract.
In other words, instead of an electrode delivering an electrical pulse directly to the heart, sound waves can be used to trigger the cells that control each heartbeat.
The technology is still experimental and is nowhere near replacing conventional pacemakers yet. But the possibility is fascinating. If researchers can make the system safe, precise, and reliable in humans, future versions could potentially reduce the need for implanted wires and repeated procedures such as battery replacements.
And there is an even bigger possibility.
A wearable patch could eventually monitor the heart, detect an abnormal rhythm, and respond automatically, combining heart monitoring and treatment in one device.
For now, it is only an early proof of concept. But it raises a remarkable question: Could the future of pacemakers involve no wires inside the heart at all—just sound traveling through the body?
📄 Source: Nature Biomedical Engineering
DOI: 10.1038/s41551-026-01673-z
True, I can’t think of a more truthful statement right now and also that you cannot know how much pain somebody is in unless you are that person and you ask them and can understand and comprehend.
“Living with #ChronicPain isn’t just about living with pain. The #fatigue that pain brings is beyond comprehension. Then there’s the loneliness and hopelessness. Stress, #anxiety and #depression… It steals so much from us.” buff.ly/vFLiGfP #PainAwarenessMonth
I think that this is the saddest perspective that I have ever read about harm reduction and realized it’s likely true in my life. Honestly, anything can become an addiction and the only way that we can have any justice as through prevention which will need funding .. forvea!
Life w/ wheelchair being an invisibly disabled person has shown me the stigma we STILL face. wheelchair=people accept my disability—and I’m respected. Without it, I’m questioned and dismissed. Deciding who deserves respect? What if it was you? #RareDisease #DisabilityRights
As a new🦼 user; invisibly disabled person has shown me the stigma we still face. Wheelchair=people accept my disability.
I receive the respect I deserve. Without it, I’ve been dismissed. Everyone deserves respect. #treatpeoplelikepeople #RareDisease #Disability #DisabilityRights
This is why I will not get one, especially because I’ve connective tissue disease, which will make it migrate even further
What could possibly go wrong with the spinal cord stimulator?
Say no to the spinal cord stimulator.
#JustSayNo and if the interventional pain fraudster threatens to cut you off your medicine, report them to the AG
Honestly, this epidemic is crazy. Enough is enough. When treating chronic pain normally you need a multifaceted approach. Synergy is effective, medication’s such as muscle relaxants, opiates, nsaids and lyrica/gaba. These are approved sub is NOT @CMerandi #Dontpunishpain
… they go on medication’s legal or not legal, but they end up not helping and then they end up just taking that patient and making them have a big back up in their life and a massive hurdles overcome which they already did which is why they doctors exist
Honestly, I think that it is an epidemic in this country and this is the epidemic that we should be paying attention to right now is the other side has already been paid attention to enough the epidemic of people dying because they don’t have the proper medication’s and then…
Robin EM-powers patients retweeted
@Crestofheliz: my doctor suggested MAID instead of taking narcotics. I got a copy of my records and I told him to screw.
Anti-pain medication politicians and public health fraudsters are the reason there is a growing suicide list in the pain community
If needed, it can make someone’s life actually worth it in their eyes. From their mouths, and all other senses. The sense are how we can gainfully engage with the world and other creatures (and matter). Also it’s harm reduction and allows people to have a better prognosis.(⚠️👁️)
Robin EM-powers patients retweeted
Replying to @CMerandi
I could go on with the amount of damage and harm done to America over prescription medication being restricted. The financial devastation to communities is detrimental and I’m not speaking wrong or right here just facts & reality. Leaders need to be strong to do best for all.

















