Patient Advocacy Leader | 26 Years in Myeloma Education & Support | Care Partner | Community Builder | Connecting People, Advancing Care & Inspiring Hope 💙
Prospect, CT
Joined December 2012
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After 26 wonderful years in the myeloma community, I'm beginning a new chapter with a heart full of gratitude. 💙
The friendships, connections, and experiences I've shared with patients, care partners, and support group leaders mean more than words can express. (1/3)
📣 CONNECTICUT MYELOMA COMMUNITY!
💙 Are you or someone you love living with #myeloma?
Join us IN PERSON for a presentation by Dr. Swarup Kumar of UConn Health at our Prospect, CT Myeloma Support Group!
🤝 Learn, connect & find support!
📍 Details: myeloma.org/prospect
While my time with the IMF has come to an end, my commitment to the myeloma community remains as strong as ever. 💙
I'm grateful to continue co-leading the Prospect, Connecticut Myeloma Support Group and the Myeloma Care Partners Only Support Group. (2/3)
The @IMFmyeloma is in Cleveland this weekend for its Patient & Family Seminar. If you or a loved one has #myeloma please join us for this free program. Knowledge is Power. @jmikhaelmd @imfmikemyeloma @midatlantismsg myeloma.org
We learn from our #myeloma doctors but we also learn from other patients and care partners. Thank you @bkinoglu and Fatih for sharing your experience and helpful tips for others. @IMFmyeloma
One of our favorite couples fighting #myeloma and helping others. @IMFmyeloma #KnowledgeIsPower #mmsm
“If you want to live, you have to fight.”
After weeks in the hospital with no answers, Terrence and his wife finally learned he had multiple myeloma.
This April, we highlight the importance of timely diagnosis. #IMFMPOWER
Do you know how to manage side effects in #myeloma? @IMFnursemyeloma from the @IMFmyeloma Nurse Leadership Board shares how to find your path: navigating myeloma. @JWiework @IMFmikemyeloma
At today’s Myeloma Community Workshop in Egan, MN, Dr Dingli is contemplating the pros and cons and toxicities of CAR-T cell therapy in #myeloma @IMFmyeloma
Let’s talk about advancing treatment options through clinical trials. With David Dingli, MD, PhD @MayoCancerCare @IMFmyeloma #myeloma Community Workshop in Egan MN
Robin Tuohy retweeted
"Why not replace stem cell transplant entirely with CAR-T therapy?" Dr. Joe breaks it down. Drop your questions below and bookmark this video for later.
#AskTheIMF #mmsm @Bethfaiman @jmikhaelmd
We are here! Are you? There is still time to stop by and learn about #myeloma @IMFmyeloma is in Egan, MN with an in person Myeloma Community Workshop today! @IMFnurseMyeloma @IMFmikeMYELOMA @JWiework @bkinoglu
#Minneapolis, will we see you at our free IMF Myeloma Community Workshop tomorrow? Learn about the latest myeloma developments and treatments, ask the experts your questions, find support in your community, and more! Coffee and light refreshments. mmsm.link/4qvcAY2
If you or a loved one is living with multiple myeloma, our CT #myeloma Fighters Information Group will be meeting in person on April 14. Please contact me for details.
It's the last day of @IMFmyeloma Myeloma Action Month! What have you lit up in red to show your support? The Southwest VT #myeloma support group created banners and lit up their Bennington Town Hall! #MoreThanMyeloma
Robin Tuohy retweeted
For sure one of the coolest things I’ve ever gotten to be part of
A super impressive project, featuring interviews with everyone from the CEOs to the leading outside voices on AI risk. I’m in it too :)
Go watch on March 27!
Robin Tuohy retweeted
#KansasCity: Connect with the myeloma community, build your support network, ask the experts your questions, find support in your community, and for FREE on March 28, 2026! Will we see you there? Save your seat before spots are gone: mmsm.link/3Ns8Dox
#mmsm
Attn #myeloma community, if you have not yet read the FAQs of updated ASCO Living Guideline for Multiple Myeloma: Here it is: myeloma.org/blog/faqs-update…
Robin Tuohy retweeted
Traditional PET/CT can miss up to 30% of slow-growing #myeloma lesions. IMMunoPET uses antibodies labeled with zirconium-89 to specifically target myeloma. revealing both previously undetectable and additional disease sites. #mmsm #ASH25 @DrOlaLandgren
youtu.be/HP5ObhJ4nkw?si=wVRe…
Robin Tuohy retweeted
A great news for drug approval in myeloma. Will fast forward patient access to new drugs! A success of I2TEAMM efforts @VincentRK @NoopurRajeMD @IMFmyeloma
@SagarLonialMD #mmsm
Source: U.S. Food and Drug Administration share.google/A1uZjJoEuFNOSqu…