This account is dormant awaiting the day that Twitter becomes free once more
Lincolnshire, UK
Joined July 2009
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Rich Collins retweeted
A big thank you to @CHazelgroveMP @JimBethell @NavPMishra + @BambosMP for joining us in Parliament today to discuss how we can develop a world-class plasma for medicine service.
Thanks also to our charity partners @gaincharity + @ImmunoUK, as well as colleagues from @NHSEngland.
Did some TV the other day. It was on last night but I only featured very briefly. It was about time restrictions on Neuro rehab services in the North-East of England which are really impacting people.
Haven’t been on here for a while. Just popping on to say I write a thing ⬇️
What did our Rich think about the #Budget24, its impact on people, an what it means for GAIN and the community sector? Have a read at gaincharity.org.uk/budget24/
Really pleased to hear @TheSHCA talking about accessing data from the NHS. I have been shouting about this since I joined @gaincharity and we could do with raw (anonymous) data as well as dashboards. You never know we may actually be able to do some good work with it
Well that’s gone cold… again. A call out to fellow community sector CEOs, when was the last time you actually got to finish, or even start a cup of tea? #CharityCEO
Down in London today at the British Peripheral Nerve Society Autumn Meeting. Hoping to learn a lot and meet the best minds in #GuillainBarreSyndrome and #CIDP
On my way back to the UK after an incredible 2 days with my most excellent colleagues from GBS|CIDP Foundation International. Good times, good people 👊
First day at the @gbscidp European Workshop and we are starting off by highlighting issues across all countries and regions. Lots of similarities and themes cropping up around diagnosis, ongoing support, and lack of knowledge amongst physicians
Left London this morning for a trip over to Amsterdam to spend a few days with the good folk from @gbscidp . I expect it will be proper enlightening
Stopped the night in Bolton before on to visit the @gaincharity Lancashire and Cumbria group. I must say I do like this stadium
I wrote a thing about why it’s good to talk to people
Our Chief Executive @Rich_Collins has been on his own in the office for two weeks. He has spent the vast majority of time on the phone, answering emails, and returning messages and WhatsApp's. So what did he learn? Find out by reading his blog at gaincharity.org.uk/?p=225533…
I’d certainly listen to what this guy is talking about #MyNeuroSurvey
Here is our @Rich_Collins with a little reminder about why he is completing #MyNeuroSurvey. To complete it go to - revealingreality.welcomesyou… @NeuroAlliance @NeuroAlScotland @WalesAlliance @naiireland
Cracking opportunity to come work with me at @gaincharity. If you are a #Marketing 💫 in a #Charity role then have a look or drop me a DM. And please share and lets reach as many people as possible. People with lived experience of inequality more than welcome
GAIN are hiring. We support people impacted by Guillain-Barré Syndrome and other related conditions. We are in a period of development and are looking for a bright and bold #MarketingExecutive to support our #communication and #engagement.
Sounds promising
New Multiple Sclerosis Drug Regenerates Myelin, Improves Movement
Researchers have developed a new drug, PIPE-307, that targets nerve damage caused by multiple sclerosis (MS) by promoting the regeneration of myelin, the protective insulation around nerve fibers.
This drug focuses on a specific receptor known as M1R and has shown promising results in early animal studies, demonstrating its potential to reverse MS-related damage.
PIPE-307 is currently undergoing Phase II clinical trials, offering new hope for those with MS by not only stopping disease progression but potentially reversing its effects.
If successful, this therapy could transform MS treatment by addressing both symptoms and underlying damage.
1/3
ALT This shows neurons.
I've completed this (through my lived experience of MS) & suggest that anyone else with a neurological condition should complete it as well. The more of us that do, the better levels of data and information (and evidence) that we have to work with @NeuroAlliance #GBS #CIDP
1 in 6 people have a neurological condition, including #GuillainBarreSyndrome.That’s why we’re supporting @NeuroAlliance #MyNeuroSurvey. Share your experiences & improve care for people affected by neurological conditions.
ow.ly/OboY50SMg4j
#GBS #CIDP #MFS
