A podcast dedicated to raising awareness for rare diseases and disorders 5K+ active listeners, 1K+ followers, 35 ep. & growing | Host @ShivaniGVyas
Joined July 2021
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- Following36
- Followers125
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The Rare Disorder Podcast retweeted
As a 10 year hereditary colon cancer warrior here's my latest podcast guest appearance:
open.spotify.com/episode/6WN…
Always Forge Ahead w/a Purpose!
The Rare Disorder Podcast retweeted
Meet our new #intern, Shivani Vyas! While Shivani may be new to the #CureRareDisease team, she is not new to the rare disease community. Read more about Shivani’s dedication to the #raredisease community in her new #blog post:
cureraredisease.org/blog-pos…
The Rare Disorder Podcast retweeted
This year for #RareDiseaseDay 2022 we are calling on everyone to help the rare disease community be united by a chain of lights across the world.
Help us spread the word and raise awareness for rare diseases!
➡️ Learn how: cutt.ly/4UqHCuy
The Rare Disorder Podcast retweeted
More than 400 million people are affected by #raredisease around the globe & the struggles they face to find answers & the right treatment are cumbersome and frustrating. Support us in eliminating these challenges by donating. Text RARE to 41444 to contribute. #careaboutrare
The Rare Disorder Podcast retweeted
Cure Rare Disease founder and president @RichHorgan was featured on the Rare Disorder #Podcast! Listen to the episode to hear about what inspired Rich to start Cure Rare Disease and how he sees CRD's work making a lasting impact in the greater #raredisease community.
The Rare Disorder Podcast retweeted
See you in 1 hour at the Global Genes Summit! 🙈💜🦓 Come hang out with us and check out why we believe in rare disease stories. @cureSYNGAP1 Shivani Vyas @GlobalGenes #RareDisease #PodcastForACause
The Rare Disorder Podcast retweeted
Next week I will be speaking with @OnceUponAGene, Shivani Vyas & Daniel Defabio of @DisorderRare at @GlobalGenes #GGSummit.
Really looking forward to discussing how we use storytelling & our #podcast at @cureSYNGAP1 to engage and activate our community.
#SYNGAP1 #RareDisease
The Rare Disorder Podcast retweeted
The final day of the #GGSummit kicks off in an hour! All sessions will be available for on demand viewing. It's not too late to register! web.cvent.com/event/289bd182… #careaboutrare #meded
The Rare Disorder Podcast retweeted
Like #podcasts? Find a list of amazing people doing interesting podcasts on #raredisease issues. 👉rarediseasefilmfestival.com/… courtesy of the people at the #RareDiseaseFilmFestival. @DisorderRare
The Rare Disorder Podcast retweeted
Just checked this out, and found The Rare Disorder Podcast on the list! Such an honor to be selected!
#TheRareDisorderPodcast #CareAboutRare #RareDisease #RareDiseases #RareAdvocacy
The Rare Disorder Podcast retweeted
And tune in to extremely kind powerhouse @JustErinToday talking #raredisease with extremely cool host Shivani anchor.fm/therdp/episodes/20…
The Rare Disorder Podcast retweeted
Listening to a new (to me, anyway) podcast today, @raredisorderpod! Really great new episode focusing on @_allstripes and tons of cool patient stories. ❤️
Definitely check it out if you like podcasts! therdpodcast.wixsite.com/my-…
#AcademicChatter #phdchat #RareDisease
The Rare Disorder Podcast retweeted
Thank you Shivani for inviting me to the Rare Disorder Podcast to share my connection to #raredisease and the work we're doing with incredible partners @_allstripes anchor.fm/therdp/episodes/20…
The Rare Disorder Podcast retweeted
Our Senior Patient Engagement Manager @JustErinToday is featured on The Rare Disorder Podcast, speaking with host and changemaker Shivani about patient advocacy and her personal connection to #raredisease. Take a listen!
anchor.fm/therdp/episodes/20…
The Rare Disorder Podcast retweeted
Podcast Recommendation: The Rare Disorder Podcast. Host Shivani, a young changemaker, is dedicated to spreading awareness for rare diseases and elevating the voices of rare diseases. #raredisease
ow.ly/YIlw50FDSTL