Rapsodi is a pioneering online study which uses the help of Gaucher patients and their families to develop life changing treatments for Parkinson's Disease.
London, England
Joined April 2018
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Rapsodi aims to work with Gaucher patients and their families to fight Parkinson's disease. Visit rapsodistudy.com for more info, or to sign up. One hour a year is all it takes to help find a cure for Parkinson's disease!
Spotlight for #ParkinsonsAwarenessMonth :
Participant Dave has been on a quest to play the Top 100 GB&I Golf Courses to raise money for @CureParkinsonsT and raise awareness for Parkinson’s: “I undertook this quest not just to raise money for Parkinson’s research,...
...but to encourage those living with it to stay active where possible – Golf involves full body exercise, low key cognitive skills and social interaction”
Read more about his story here:
shorturl.at/bcjP3
RAPSODI retweeted
Today is #WorldParkinsonsDay 2024 🌎I would like to take this opportunity to thank all of our participants on the @RAPSODI and @PDfrontline studies who are enabling us to conduct important research into the role of the GBA gene in Parkinson's Disease🧠
RAPSODI retweeted
At #CONy2024, we caught up with @TonySchapira (@ucl) to hear about the launch of the new Phase III ASPro-PD study (Ambroxol to Slow Progression in Parkinson's Disease).
For details, watch our exclusive interview:
👉ow.ly/xqGs50Rbpxc
#Neurology #NeuroTwitter #Parkinsons
Thank you to all of our participants helping us with this research!
I want to thank everyone on @RapsodiRFH and @PDfrontline very much for your contributions to the field of Parkinson research. We are only able to move forward with our research with your help and participation. Wishing everyone happy holidays and a good start to the new year!
Read our new newsletter about the RAPSODI study, recent advances in Parkinson's research and ways to get involved here:
drive.google.com/file/d/1Qtb…
RAPSODI retweeted
In honour of #ParkinsonsAwarenessMonth, I would like
to introduce @RapsodiRFH - an online study recruiting close blood relatives (parents, brothers/sisters, children) of #GaucherDisease patients to develop life changing treatments for Parkinson's Disease: rapsodistudy.com/en
RAPSODI retweeted
April is #ParkinsonsAwarenessMonth!
@SchapiraTeam is just one part of the @ASAP_Research network. We are able to celebrate a year’s work of deeper and faster discoveries that further #PDResearch and #OpenScience. Click below to learn more:
parkinsonsroadmap.org/collab…
RAPSODI retweeted
Happy #InternationalWomensDay!
I am proud to celebrate the women working in our team and at @UCLIoN, dedicating their efforts to research and the development of new therapeutic strategies in Parkinson’s Disease
RAPSODI retweeted
Join us next Thursday at the @CureParkinsonsT Research Update meeting, where we will discuss the current status of cell therapies for Parkinson’s as well as the upcoming AsPro-PD trial to slow Parkinson's - find out more and register at:
cureparkinsons.org.uk/2023/0…
RAPSODI retweeted
(1/2) Ambroxol was prioritised for clinical trial in people with Parkinson’s through our #iLCT programme and Cure Parkinson’s has been the impetus behind the new phase 3 ambroxol trial alongside @VAInstitute and the John Black Charitable Foundation.
#ambroxolphase3
RAPSODI retweeted
I am delighted to be leading this exciting project – the first time a drug specifically applied to a genetic cause of Parkinson’s has reached this level of trial in the #ambroxol trial @CureParkinsonsT
(1/2) Breaking news: A large phase 3 trial of ambroxol currently used to treat cough inflammation is to start in early 2023. This world-first trial will aim to establish its potential to slow the progression of Parkinson’s.
buff.ly/3Xlu0r6
@VAInstitute @ParkinsonsUK
RAPSODI retweeted
Thank you to all our participants in @RapsodiRFH and @PDfrontline for their continuing support for these projects this year! The data we have collected from these studies has informed the ambroxol trial (ASProPD), which is an exciting development looking to see... (1/2)
RAPSODI retweeted
Join us on December 16th at 10 am for the 'Getting involved in Clinical Trials and PD Community' Webinar, hosted by PD Frontline! We hope to see you there! Register Here: ucl.zoom.us/webinar/register…
@CureParkinsonsT
@EJS_ACT_PD
@morethanatremor
@Movein2Welbng
It is never too late to join the RAPSODI study and we are particularly looking to recruit close blood relatives (e.g. parents, siblings, children), of our participants with Gaucher's disease and GBA mutation carriers. For more information, please email us at [email protected]
It is never too late to join the RAPSODI study and we are particularly looking to recruit close blood relatives (e.g. parents, siblings, children), of our participants with Gaucher's disease and GBA mutation carriers. For more information, please email us at [email protected]
RAPSODI is a nationwide remote annual assessment, it can thereby be completed from anywhere with a computer and internet access. If you or anyone you know is interested in taking part, the RAPSODI team is available to assist and advise via our email [email protected].
Changes in the GBA gene (which can cause #GaucherDisease), are some of the most important known risk factors for developing PD. RAPSODI is interested in understanding this link, so that we can develop better diagnostic procedures and disease management strategies for PD.
RAPSODI is a nationwide remote annual assessment, it can thereby be completed from anywhere with a computer and internet access. If you or anyone you know is interested in taking part, the RAPSODI team is available to assist and advise via our email [email protected].