Give kids suffering from UBA5 disease a chance to live a healthy life.
Joined February 2022
- Tweets264
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- Followers297
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Raiden Science Foundation retweeted
The Evo Collection on @humble has been extended for another week!
Thank you @ArcSystemWorksU for your continued support of the @RaidenScience. We couldn’t be more grateful. ❤️ #Fight4Rare
$100K raised and counting!
More time for more savings ⏲️
We are pleased to announce that our Evo Collection on Humble Bundle has been extended by another 7️⃣ days!
Your bundle purchase supports the Raiden Science Foundation and its Fight4Rare initiative, helping ignite hope and advance rare disease treatment and research. ✨
⬇️Get Yours Today!
bit.pulse.ly/yll8jshql0
#Fight4Rare
Raiden Science Foundation retweeted
Guilty Gear joins the fight against RARE
💙 Ignite Hope. ❤️ Drive Cures.
A special promotion supporting #Fight4Rare begins 06.26.2026
Let's Rock @ArcSystemWorksU
#RareDisease #ArcSystemWorks #RaidenScienceFoundation
Raiden Science Foundation retweeted
$19,242 raised to support @RaidenScience
Thank you, @humble and @CapcomUSA_ for standing with us in the fight against rare disease.
Every dollar helps fund research snd advance potential treatments ❤️
Raiden Science Foundation retweeted
Today is Rare Disease Day, a reminder that “rare” can still have a big impact. At St. Jude, advancing care for rare and ultra-rare pediatric conditions, including neurological disease, is core to our mission.
Raiden Science Foundation retweeted
Today is #RareDiseaseDay. Families of children with rare diseases are featured on @UMassChan’s six-episode Rare Diseases, Real Stories podcast. Listen: direc.to/oYux
#RareDiseasesRealStories #RareDiseases #podcast @RareDiseaseDay @RiaanResearch @RaidenScience @UMass 🎧
ALT Collage of images of the families featured in the Rare Diseases, Real Stories podcast, with text in the middle that says Rare Diseases, Real Stories Now streaming
Raiden Science Foundation retweeted
Researchers at St. Jude are mapping cell fate decisions, motor function wiring and disease-linked gene regulation to better understand developing neural systems and how neurologic diseases disrupt those processes. ow.ly/oKlX50Ym17F
Raiden Science Foundation retweeted
UMass Chan and the Raiden Science Foundation have partnered on a technology license for a gene therapy product targeting the ultra-rare disease UBA5: direc.to/oUP4
The foundation is named after 5-year-old Raiden Pham, diagnosed in 2021. #RareDisease @RaidenScience
Raiden Science Foundation retweeted
Congrats again to @TongNeverSleeps and the Metro City Monsters!
@FightRiseFGC - Thank you so much for the support and generosity from the community. $7K raised for rare disease research - @RaidenScience
❤️ @ImageOmega @HawtSoupMedia @ultradavid
Raiden Science Foundation retweeted
Live now! Tune in: twitch.tv/fightrisefgc
Shoutout to @ultradavid for the great intro about the @RaidenScience 💙
@FightRiseFGC @TongNeverSleeps
Raiden Science Foundation retweeted
Wreck the Halls 3 is this Sat night @ 7pmEST!
A unique East vs West "Cross-Up Basebrawl" Charity Stream benefiting @RaidenScience.
Featuring special guest managers @ultradavid & @TongNeverSleeps.
Donate to Win Prizes: fightrise.com/charity
Watch LIVE: twitch.tv/fightrisefgc
Raiden Science Foundation retweeted
Grateful to @QanbaUSA for sponsoring our Charity Stream benefitting @RaidenScience's fight against rare genetic disorders!
Check out this sick Arcade Cab they donated as one of our fundraiser incentives.
Enter for your chance to win it here: fightrise.com/charity
RT @Fight4Rare: Tune in this Sunday for our 🎃Spooktacular @StreetFighter 6 Avatar Battle Tournament!
⏰ Oct 26 • 2 PM PT
📺Tenomedia & teamsp…
Raiden Science Foundation retweeted
Thank you @Humble for supporting us with the WB Play the Legends gaming bundle. @wbgames
Such an incredible amount was raised to advance rare disease research. @RaidenScience
Raiden Science Foundation retweeted
"Because aspects of human brain development are difficult to model in animals," @hcmefford & team developed brain organoids from individuals with pathogenic UBA5. Their results "suggest potential treatment avenues for UBA5-associated encephalopathy."
science.org/doi/10.1126/scit…
Raiden Science Foundation retweeted
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This video of @KerriAnnGallery was first shared on Lil’ Raiden’s IG a year ago, but we never posted it here. So here it is—showing just how special Kerri is as she continues fighting alongside us. ⚡️💋 #Sonya
Raiden Science Foundation retweeted
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Exactly a week ago marked four years since Raiden’s diagnosis day—the day we learned about UBA5 disorder. It’s always a tough day, filled with overwhelming emotions and grief. But at the same time, we’re deeply thankful to be surrounded by the FGC, our MK family and the incredible community we’ve built on this rare disease journey.
From the very beginning, after hearing our story, Kerri (@KerriAnnGallery) and John (@therealsaibot) have been fighting right alongside us. Last Saturday at EVO, before wrapping up the night, we shared a moment with them that we’ll cherish forever. We couldn’t be more grateful for their unconditional love and support for Raiden, our family, and the mission we’re on.
~ Raiden’s Parents
Raiden Science Foundation retweeted
That’s a wrap for #EVO2025!
Grateful for everyone who stopped by to support @RaidenScience and showed love.
Big thanks to the FGC, @Evo staff, and all who made this weekend unforgettable. 💙⚡ #Fight4Rare
Raiden Science Foundation retweeted
Day 1 of #ComboBreaker2025! If you see me, feel free to say what's up! Repping my @RaidenScience shirt.
Raiden Science Foundation retweeted
🤯 Rare Diseases = $1T+ market
♻️ Drug Repurposing is the training set for AI Drug Discovery
💊 Medicines are within reach
🚶Kiddos are taking their first steps
👀 Just watch the before vs after reel
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🚨 AUCTION CLOSES IN 24 HOURS
Raiden Science Foundation retweeted
Today is #RareDiseaseDay. Listen to all six episodes of @UMassChan’s Rare Diseases, Real Stories podcast to hear from families affected by rare diseases: direc.to/mNKG
#RareDiseasesRealStories #RareDiseases #podcast @RareDiseaseDay @RiaanResearch @RaidenScience @UMass