#MKD Patient | Founder & Chair of RACC-UK | Patient Advocate | Member of @RheumatologyUK @britsocimm | Views are my own
Joined April 2009
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Have the guidelines for providing IV fluids to patients changed in the last 6 years does anyone know? #NHSEngland #NHS
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Today I received a phone call because I became top of the list for housing. I was refused a 2 bedroom bungalow because when I asked if they would be installing a bath in the wet room to meet my medical need, I was told no.
#housingforall #housingcrisisuk
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Gold banding with urgent medical need since January, and now landlord has started court proceedings for a possession order. Already had to reject one property as I couldn’t get through the doorway with my rollator!
#accessiblehousing #housingforall
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Has anyone in the #RareDiseaseCommunity had success in finding affordable training providers for Tier 2?
#Oliverscampaign #Autism #LearningDisabilities
#Oliverscampaign
It has come to my attention that some providers delivering the Oliver McGowan Mandatory Training are charging NHS & social care organisations excessive & unjustifiable fees
The focus must remain on ensuring that the training is accessible affordable & available
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#Disability #England
Got offered a bungalow last month with a housing association. Went through the verification and affordability checks. Begged for a floor plan from the start. Ignored.
Finally got a viewing. Couldn’t get through the front door independently with rollator…
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YouTube Ai is out of control. A whole bunch of people got demonetised today, including one of my favourite channels! Thankfully he managed to get it back but seriously, it’s ridiculous. They’re going to lose a whole load of creators!
YES! Youtube RESTORED my CHANNEL - BECAUSE OF YOU!
Folks, THANK YOU!
Seriously!
I'm SO THRILLED!
And thank you to @teamyoutube!
Thank you for supporting me. I'm humbled.
I have some GOOD FRIENDS out there, and LOVE you guys!
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Does anyone answer the phones at Adult Social Care .@OxfordshireCC ? I’ve been waiting for nearly an hour today, it’s as bad as trying to get hold of the DWP. Good job it’s not an urgent safeguarding matter 🙄
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Starting 2026 full of cold and a flat to pack up while still waiting for the council to help house me 😅
4 weeks and counting 🤦🏼♀️ #HappyNewYear2026
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My #Rheumatologist is retiring. It’s been painful for this past year to accept the news 🥹 he’s been incredible. I bought him a mug and wrote him a letter to say thank you. Today I received this email
#patientcare #appreciation #NHS
ALT Email received from Consultant after receiving his mug & letter: “Dear Rachel – a belated thank you. I wanted to thank you very much for the gift – but more, your letter was so lovely and meant a huge amount to me. I will keep it. It has been a pleasure to look after you. You have great courage in the way you manage your illness which has not been easy. It is very difficult to have a condition that is rare and one that health professionals don’t always know how best to manage. With all my very best” *redacted name*
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Over worked, underpaid and under resourced NHS staff contributes to patient safety risks, hence the strikes.
#Supportthestrikes #ourNHS
I believe in workers’ right to strike.
But the strikes next week planned by resident doctors should not happen, they place the NHS and patients who need it in grave danger.
A fair deal is on the table. My message to doctors is simple: take it.
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Section 21 arrived last week, after 10.5 years of private rent. I now return to the council in hope they help me based on health status. Provided all documents required. Completed homelessness referral, made MP aware, social care housing needs assessment done…
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Absolutely ridiculous decision if this is true 💔
BREAKING: Mandatory screening for prostate cancer will not be recommended for use on the NHS, Sky News understands
trib.al/KxPsXdd
📺 Sky 501, Virgin 602, Freeview 233 and YouTube
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At what point do online posts which fabricate information and incite hate towards disabled people become a hate crime? I am sick to death of this war on us. It’s disgusting!
Let's be honest. The blue badge system is being abused on an industrial scale - like with so many other 'disability' related benefits.
In March 2024, 2.84 million Blue Badges were held in England, an increase of 10% compared to March 2023. Up TEN percent in one year. Really? Disability benefits are SOARING alongside it.
You see perfectly healthy looking people leap out of these cars in the disabled bays, and tear off down the street. I understand not all disabilities are visible, but come on. We're not morons.
Now. Let me be abundantly clear. We must absolutely provide for those in genuine need. We must not, however, financially support dodgy chancers who are taking the piss.
If we could cut down these benefits to those who genuinely need them, then they would feel more of the advantages.
This is obvious, surely? Let's have the balls to say it. SO many people currently claiming to be disabled are not, and do not need the help. No apologies from me, that's just a fact.
Support the genuine needy, cut off the conmen.
That's what I say.
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👏🏼👏🏼👏🏼👏🏼 Well done Zak!
Thrilled to announce that my fabulous son @ZakM180 has been nominated for a Rising Star award. 😍Full story below! Wish us luck! 🤞🍀👇
heroesawards.co.uk/post/shor…
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Agree 💯
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Why are you lying? At this point I would say that you are lying with malicious intent to cause harm to people with disabilities.
Our welfare system has gone wrong.
From free cars for acne and ADHD…to benefits for anxiety…set to cost £100 billion by 2030: no one can say this is the safety net it was meant to be.
I wrote about my plan to fix it in @Telegraph today ⬇️
telegraph.co.uk/news/2025/10…
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🤣🤣🤣🤣🤣🤣
Silly psy cartoon for the weekend!
ALT A black-and-white New Yorker–style cartoon shows two middle-aged neighbours peering through a hedge in a quiet suburban cul-de-sac. The man crouches with binoculars, looking intently toward a parked car in a nearby driveway that displays a blue Motability badge. Beside him, a woman holds a mug of tea, wearing a disapproving frown. The caption below reads: “She’s got a Motability car and a smile — I’m just saying, something doesn’t add up.” The drawing satirises moral suspicion and envy toward disabled people receiving mobility suppo
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They stop everything, including housing benefit for a complete review. It took a month for them to sort it out in 2018. I fell ill on holiday. Came home, two weeks later, back in hospital with sepsis. Zero money for a month 😑
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