Patient-scientist fighting for medicine based in SCIENCE; NOT BIAS⚡Calling out harmful healthcare culture⚡Breaking down difficult doctor behaviour✍️🧐
Joined November 2020
- Tweets3.1K
- Following959
- Followers2.1K
- Likes7.1K
Why is it that when I have to describe something medical, people don't believe it till a doctor signs off on it. Imagine if they were like that about cars...
#NEISvoid #PatientCredibility
"I couldn't get my car started this morning"
"Did a mechanic actually say it wouldn't start, or is it just you thinking that?"
The #NDIS. It's a support system for Australians with disabilities that, if it were functioning correctly, not only improves our quality of life, but also our ability to do our jobs. As a parents, family members, and in the workforce.
Providers who have built Graded Exercise Therapy clinics and make money off of them are also the ones who claim to be the experts on ME/CFS. They inform the #NDIA which treatments are best. No prizes for guessing which treatments they recommend.
Patients with Power retweeted
One of my biggest fears in life has always been being alone and chronic illness is the loneliest thing I’ve ever experienced.
🩺 "It's rare, you probably don't have it."
Doctors who use "rare" as a reason not to investigate rest on flawed reasoning. Yes, any one rare disease is rare. But there are thousands of them. Taken together, they're actually very common. #ChronicIllness /1
And look who's in the room: a patient the common diagnoses already failed to explain. Test those patients properly and more than 1 in 4 turn out to have a rare disease. That's not a long shot. /2
A doctor who won't investigate past "it's rare" has pre-committed to misdiagnosing the hardest patients he sees.
#MedicalGaslighting /fin
Patients with Power retweeted
“#Disability is a full-time job. I’m a professional patient… Some days I’m barely managing to shower and if by chance I’m having a good day I have my own dog, a backload of housework, and grocery shopping as priorities.” buff.ly/4ejbFnP #ChronicPain #ChronicIllness
Ask yourself "what is the doctor afraid of?" and you might see the deeper problem.
What does a doctor - the one with all the power in the room - have to fear by stating in front of a patient, accurately and honestly "I don't know what's causing your symptoms"?
#ChronicIllness
ALT A post by drcarolineantler which reads I don't think most medical gaslighting comes from malice. I think it comes from fear. Many providers know how limited their knowledge and tools are, especially when it comes to complex, chronic, or poorly understood conditions. But instead of owning that and staying curious, they shut down. They blame the patient. They project their discomfort onto us. The ones worth trusting? They' re the ones who say,"I don't know, but I believe you."
Hey #NEISvoid, I'm on threads if you'd like to follow me there 😊⚡ threads.com/@ptswithpower
People who have #depression are not addicted to our antidepressant medication.
People who have #ChronicPain are not addicted to our pain medication.