A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Joined June 2019
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We've added more information about our new book to our website, including answers to some frequently asked questions
👇👇
physiosforme.com/our-book
For the next two days, @ClagueNjc36 and @karenphysiocouk are at the Chartered Society of Physiotherapy conference. Nikki and her students have 3 posters and Karen is presenting an abstract on her vagus stimulation study. We'll update as the conference goes on
We'll upload posters to our website after the conference - well done to @ClagueNjc36 and her students!
Poster: "Experiences of high level sports people with Long COVID and ME/CFS: an interview-baaed study"
Key themes:
1. Illness journey (fluctuating and unpredictable symptoms).
2. Stigma (minimisation, disbelief)
3. Disruption of identity
4. Isolation
Poster: "A feasibility study measuring lactate, during everyday activity, in health people and people with ME/CFS"
"Although a feasibility, measures appeared to show a trend towards higher means lactate levels in pwME with lower levels of activity"
Poster: "International survey exploring the experiences of high-level athletes with ME/CFS and Long COVID"
Return to practice limited by physical, psychological and cognitive symptoms. Medical gaslighting and misconceptions creates barriers to care.
Physios For ME retweeted
Looking forward to @csp annual conference. Going with three MSc students - @NiamhLHeeran @ElaKlaveness @EleanorMg01 and PhD student @karenphysiocouk all presenting their work related to #ME and #LC. Raising the profile of #ME and #LC for over 1500 #physios. @PhysiosForME
If you receive a DM from @ClagueNjc36 asking you to vote for them, please ignore it - her account has been hacked
It's our seven year anniversary 🎉🎊💪
We reflect on the last twelve months and offer a sneak peak of the next in our newest blog post
physiosforme.com/post/physio…
This #MEawarenessDay we are delighted to have an article published in in the Chartered Society of Physiotherapy's magazine "Frontline", which goes out to all chartered physiotherapists in the UK (that's over 67,000!)
csp.org.uk/frontline/article…
The article is called:
"Do no harm: supporting people with ME/CFS.
How can physiotherapists provide effective therapies while ensuring patients with this debilitating condition feel safe and supported? "
Publishing an article like this has been one of our goals since we first formed as a group, so we are delighted to have an article published in a publication with such reach, and that the @thecsp have taken this matter with the seriousness it deserves.
physiosforme.com/post/me-awa…
Physios For ME retweeted
1. Training of #hcps
People with #ME/CFS and #longcovid I need your thoughts and ideas please.
I would like to develop simulation training for all #hcps. We now use a lot of simulation which means that we can simulate severe #ME and #longcovid in a hospital setting.
Q for #pwME who have given birth (while diagnosed with ME).
Which kind of birth (vaginal birth or C-section) would be most tolerable for pwME? (As tolerable as these things can be!!)
Physios For ME retweeted
Social Prescriber just sent me a list of activities. They really don’t understand:
- adapted cycling
- ME in-person support group (2hr sessions)
- living well sessions (2.5hrs a week)
Have replied to explain I have about 30 mins usable energy per day, mostly for food prep.
Physios For ME retweeted
Natalie Hilliard @Hilliard_Nat on Physiotherapy for ME
chroniclivingtherapy.com/nat…
Image is from the AMMES April 2026 newsletter
#MEcfs #PwME @PhysiosForME @ChronicLiving1
ALT Photo of Natalie Hilliard Natalie Hilliard on Physiotherapy for ME Natalie is a physiotherapist and one of the co-founders of the UK-based organisation Physios for ME. This small organisation has punched above it its weight since it was founded, leading education and research programmes as well as publishing a guidebook. She works in private practice, specialising in supporting people with M.E. In her first article (part two will follow) she shares insights from physiotherapy that will be of particular use to therapists and counsellors. This includes an understanding of post-exertional malaise, the challenges of trying to pace properly, and the impact of emotional exertion on people with M.E. Read more here>>
Physios For ME retweeted
One last post to highlight this survey. If you have #ME/CFS or #Longcovid and have tried hyperbaric oxygen please complete this survey. All experiences important. You can stop and complete at a different time allowing you to pace. Thanks @PhysiosForME
physiosforme.com/post/new-su…
Physios For ME retweeted
Does anyone know if any of the ME/CFS charities have prepared a response to the #SEND reform consultation at all? @actionforme @MEAssociation
@LC_Physio @LongCovidKids
This is where in-patient physiotherapists could really be advocates and lead in promoting safe care for people with severe ME.
Setting up suitable environments, guidelines on safe handling - it's all in our skillset if we have the knowledge
@thecsp
