
Supporting patients & caregivers in mgmt of chronic conditions. Follow us for lived experiences, health info, tips. INFORM, ENGAGE, EMPOWER ! Founder @ap_mittal
India and Singapore
Joined July 2014
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PatientsEngage retweeted
Trade Margin Rationalisation on 137 Anti-Cancer Drugs
▶️The revised prices will become effective from November 9, 2026.
▶️The intervention is expected to bring down the MRP of the identified non-scheduled anti-cancer drugs by up to 70%, depending on their existing price structures.
▶️This measure is expected to bring significant relief to the many patients and families affected by cancer, who often face high financial burden due to high cost of treatment.
▶️The Gazette notification is available on the official website of NPPA nppa.gov.in/en .
Details here: pib.gov.in/PressReleaseDetai…
PatientsEngage retweeted
“It’s been a journey” Shroff told @NBCNews. “I’ve spent my entire life trying to eradicate cancer, primarily pancreatic cancer, but also liver cancers.”
nbcnews.com/health/disease/r…
An homage to Rachna Shroff, including thoughts from her family. Please read, share & honor her memory.
PatientsEngage retweeted
More is not always better... And often, is worse.
Stereotactic body radiation therapy (SBRT) is the standard of care for early-stage, medically inoperable non-small-cell lung cancer (NSCLC).
A trial investigated the addition of neoadjuvant, concurrent, and adjuvant atezolizumab with SBRT: spkl.io/60177p0BW #ERSCongress @EuroRespSoc

ALT Research in context panel for a paper published in The Lancet entitled \"Induction and consolidation atezolizumab with stereotactic body radiation therapy versus radiation alone in high-risk, early-stage non-small-cell lung cancer (SWOG/NRG S1914):\na multicentre, open-label, superiority, phase 3, randomised controlled trial. Copyright: 2026 Elsevier Ltd. All rights reserved.
PatientsEngage retweeted
An estimated 3.25 lakh deaths every year in India are attributed to second-hand smoke/passive smoking, according to health experts. Non-smokers are affected too, and often have little control over their surroundings.
• Dr. VK Paul, former Member of NITI Aayog, disclosed that India has progressed in reducing exposure to second-hand smoke, but the problem remains substantial due to population growth. He stressed that India needs to move toward 100% smoke-free public places and eliminate tobacco use.
• Dr. VM Katoch, former ICMR Director General and President of the Tuberculosis Association of India, stated that passive smoking affected people in public places, workplaces and homes.
• Dr. KK Talwar, cardiologist and Padma Bhushan awardee, shared national efforts to discourage tobacco use, such as taxation. He warned that passive smoking can be as harmful as active smoking.
• Dr. Uma Kumar, Head of Rheumatology, AIIMS, New Delhi and recipient of the National Award for Science Communication, highlighted that second-hand smoke is particularly a cause of public health concern for women and children who cannot always choose where they live, work or spend time.
#AIIMSNewDelhi #SecondHandSmoke #SmokeFree #TobaccoFreeIndia #PublicHealth
PatientsEngage retweeted
Summary and Key Takeaways of the webinar held on aHUS Awareness Day by the Atypical HUS India Foundation and @PatientsEngage supported by @NephroPlus and @AstraZeneca.
ahus.in/2026/09/ahus-awarene…
PatientsEngage retweeted
✨Your kidneys don't shout, they whisper.
Kidney disease often has NO early symptoms. By the time you feel it, damage is done.
This October, listen early:
✅ Control BP & sugar
✅ Stay active
✅ Get tested if you have diabetes/hypertension
Read more :
kwfngo.org/kidney-disease-pr…
PatientsEngage retweeted
The aHUS India Foundation along with @PatientsEngage recently hosted a webinar featuring leading researchers and clinicians specializing in atypical hemolytic uremic syndrome. The webinar was held on Sep 24 in recognition of aHUS Awareness Day.
ahus.in/2026/09/ahus-awarene…
"I am a 30 year old man from Yamuna Nagar, Haryana. I was diagnosed in 2024 with aHUS Atypical Hemolytic Uremic Syndrome. My first symptoms -nausea, loss of appetite, feeling sleepy all the time, and weakness - unable to walk for more than 100-200 meters."
#aHUSAwarenessMonth
Arjun Arora shares his journey over the last few months with Atypical HUS an ultra rare condition, how it has shattered his dreams and changed his life completely.
He is grateful for the support he gets from his family. To read the full interview click link
ahus.in/p/the-ahus-diagnosis…
#aHUSAwarenessMonth #RareDiseaseJourneys #åhus
PatientsEngage retweeted
₹2 buys a stranger's home address. We tested a Play Store app with 10M+ downloads selling VAHAN/eChallan data, one number plate gave us the owner's full name, father's name, permanent address, insurance policy, chassis and engine numbers, all of which Parivahan masks behind an OTP.
This isn't a hack. Researchers at Cyderes traced it to licensed API keys given to KYC companies, now resold on Telegram.
IFF has written to MoRTH, NIC & CERT-In demanding a forensic audit, and filed RTIs on 22 Sept. Found your own data on these apps or similar website? Write to [email protected]
PatientsEngage retweeted
🫘 Why is kidney disease called a “silent” disease?
Because it can develop with few or no noticeable symptoms in its early stages.
💚 Know your kidney numbers
💚 Know your risk factors
💚 Talk to your doctor about appropriate testing
PatientsEngage retweeted
Thank you @patientsengage & @ahusindia for today's webinar #aHUS24Sept w/ great #aHUS content & excellent speakers covering key topics like diagnosis, treatment concerns, genetics & patient navigation challenges. We appreciate the support from @nephroplus & @AstraZeneca
Join us today and share this to reach patients with Atypical HUS an ultrarare disease
@ahusindia @aHUS24Sept @aHUSAllianceAct
Happy aHUS Awareness Day! Webinar happening today at 6 PM IST. Link to join: us06web.zoom.us/j/8516073792… @aHUS24Sept @aHUSAllianceAct @cTMAGlobal @raja_1980 @drmanishasahay @Narayansgpgims @PatientsEngage @nephroplus @AstraZeneca
PatientsEngage retweeted
On the dot. The false equivalence of comparing the NHS to healthcare in India.
bmj.com/content/394/bmj-2026…
PatientsEngage retweeted
Do not miss this very useful webinar with experts on #aHUSAwarenessDay 24th Sept 6pm IST !
Will cover some very important topics like genetic testing, patient navigation challenges. See attached flyer for joining details. @ahusindia @nephroplus @AstraZeneca
A webinar with some stellar speakers is being organised on #aHUSAwarenessDay,September 24th at 6 PM IST. The webinar will cover some very important topics. @aHUS24Sept @aHUSAllianceAct @cTMAGlobal @raja_1980 @drmanishasahay @Narayansgpgims @PatientsEngage @nephroplus @AstraZeneca
PatientsEngage retweeted
Do not miss this important webinar on #aHUSAwarenessDay on Sep 24 at 6 PM IST! Please block your calendars now. Here is the link to join: us06web.zoom.us/j/8516073792…
A webinar with some stellar speakers is being organised on #aHUSAwarenessDay,September 24th at 6 PM IST. The webinar will cover some very important topics. @aHUS24Sept @aHUSAllianceAct @cTMAGlobal @raja_1980 @drmanishasahay @Narayansgpgims @PatientsEngage @nephroplus @AstraZeneca
Do not miss this very useful webinar with experts on #aHUSAwarenessDay 24th Sept 6pm IST !
Will cover some very important topics like genetic testing, patient navigation challenges. See attached flyer for joining details. @ahusindia @nephroplus @AstraZeneca
A webinar with some stellar speakers is being organised on #aHUSAwarenessDay,September 24th at 6 PM IST. The webinar will cover some very important topics. @aHUS24Sept @aHUSAllianceAct @cTMAGlobal @raja_1980 @drmanishasahay @Narayansgpgims @PatientsEngage @nephroplus @AstraZeneca
PatientsEngage retweeted
🧂 Rethinking salt, translating evidence, driving action
Join ICMR’s webinar to explore clinical insights, policy approaches & the path to population-level action on sodium intake in India 🇮🇳
📅 24 Sep | 4 PM IST
Register Now: 🔗forms.gle/PTDdD2AGeRcu8UYo7
#NutritionMonth2026
PatientsEngage retweeted
nicotine pouches are slipping through regulatory cracks
The marketing of these products is aimed at young people. Indian government needs to act now before this menace gets out of hand. scroll.in/article/1095773/in…

























