User-led organisation, campaigning for choice, control & quality of life for adults with #MuscularDystrophy and related conditions. We offer peer support & info
UK
Joined December 2013
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📢 NEXT PAE SESSION: How to Run a PA Meeting/Supervision.
PA employers, want to feel more confident in meetings or supervision?
Join us Wed 21 Oct, 6–7pm (Zoom) to share tips, ask questions & learn from others.
Email [email protected] for info!
“The opportunity to live my best life.”
It’s time for UK hotels to install ceiling track hoists.
Don’t Wing it, Sling it!
ALT Man with glasses sitting comfortably in a purple hoist sling, smiling with a remote control in hand indoors.
Monthly Quiz Night – October’s edition!🦇
Get ready for a lively blend of geography, music covers, science, and Powerchair Football as we quiz right in the middle of the 2026 World Cup.
⏰ 7pm
🔗 Sign up: tinyurl.com/PathfindersQuizO…
ALT Green question mark with Halloween icons promoting Pathfinders' Quiz Night by the neuromuscular alliance.
WHERE'S DAVE? University Hospitals Birmingham
Dave met the neuromuscular team in Birmingham to share equipment experiences and real-life solutions.
Read more here: pathfindersalliance.org.uk/w…
“Freedom, choice, and dignity.”
For thousands of disabled travellers, those three words disappear the moment they try to book a hotel room.
Don’t Wing it, Sling it!
ALT Happy person wearing a red shirt secured in a hoist sling, highlighting independence and support.
🎃 October’s Monthly Quiz Night – Sign Up Now!
Expect mysterious melodies, curious chemistry, and matchday drama creeping in from the 2026 World Cup.
📅 Tuesday 20th Oct
⏰ 7pm
🔗 Sign up: tinyurl.com/PathfindersQuizO…
ALT Pathfinders Neuromuscular Alliance October Quiz Night event on Tuesday 20th October with Halloween-themed icons.
Monthly Quiz Night - Sign up Now!
📅 Tue 20 Oct
⏰ 7pm
🔗 tinyurl.com/PathfindersQuizO…
A fast, fun mix of geography, music covers, science, and Powerchair Football - maps, melodies, microscopes, and matchday drama in one quiz.
ALT Pathfinders Neuromuscular Alliance hosting a quiz night on Tuesday, 20 October 2026 at 7 PM with a call to sign up now.
Dave visited Naidex Roadshow South in Farnborough this September—much bigger and busier than expected! From wheelchairs to assistive tech, there was plenty to see. He’ll be at the main Naidex event in Birmingham next March.
Read more: ow.ly/3o2450ZUnjv
We're seeking paid guest speakers for our videos and PAE sessions! Share your lived experience and help PA employers grow and understand their roles.
Sign up for our PAE sessions: ow.ly/JR8I50ZUn3k
Apply to be a paid speaker: ow.ly/EAbp50ZUn3l
Our October newsletter is now available to read.
Discover quizzes, films, campaigns, and more.
What are you most excited about from Pathfinders' this month?
Read here: mailchi.mp/pathfindersallian…
Join us for our Monthly Quiz Night - every 3rd Tuesday!
A fun, friendly evening where the Pathfinders community gets together online.
This month’s quiz is hosted by Dave, our Equipment Advice & Outreach Officer.
📅 Tue 20 Oct
⏰ 7pm
🔗 tinyurl.com/PathfindersQuizO…
“There should be access for all.”
But only some disabled travellers can stay in hotel rooms because just 18 hotels in the UK offer ceiling‑track hoists. Many of us are shut out by rooms that hotels claim to be accessible but aren’t for everyone.
Don’t Wing it, Sling it!
ALT Smiling woman seated comfortably in a supportive hoist sling, highlighting accessibility and independence.
“The purple pound exists.”
Yet with only 18 hotels in the UK offering ceiling‑track hoists, disabled travellers are still being shut out by inaccessible rooms. Our money is as good as anyone else’s — we want to travel too.
Don’t Wing it, Sling it!
#HoistsInHotels
ALT Smiling man with glasses supported by a purple sling, indoors with blurred background.
Upcoming PAE Sessions Update!
🗓️ Wednesday, 23rd Sept (6:00 PM - 7:00 PM)
PAs in Hospitals Campaign & Petition!
🗓️ Wednesday, 30th Sept (6:00 PM - 7:00 PM)
How to Organise Care on Holiday
Got any questions? Email [email protected]. Hope to see you there!
MEET DAVE!
Meet Dave Loveridge, our new Equipment Advice & Outreach Officer! Over the next 18 months, Dave will be listening, learning and connecting with the neuromuscular community to help shape our Equipment Advice Service.
📝 Share your experiences: ow.ly/7Yh550ZQ5UF
🏥 PAs in Hospital Campaign
Join us for a special online session with guest speaker Sarah Rose on Wednesday 23rd September, from 6–7pm on Zoom.
Hear Sarah’s experience and learn more about the importance of Personal Assistants in hospital 💙
Sign up: ow.ly/V6Hy50ZOHGj
Quiz Night is TONIGHT!
Join us online at 7pm for our Monthly Quiz Night - fun, friendly, and open to everyone.
Sign up before we start:
📝 tinyurl.com/PathfindersQuizS…
“I want to travel without worrying how I’ll get into bed.”
Only 18 hotels in the UK offer ceiling‑track hoists, most “accessible” rooms still leave some disabled people without safe transfers. A hoist is a reasonable adjustment that can change this.
Don’t Wing it, Sling it!
ALT Person using a blue sling lift in a cozy bedroom, sharing a quote about wanting to travel freely without bed transfer concerns.
Our next PAE Session is Wednesday 23rd September, 6pm-7pm.
The next session will be an open discussion.
Sign up to our sessions: ow.ly/Gl0C50ZBo29
#MuscularDystrophy #DisabilitySupport #PAEmployer #PathfindersNMA
Monthly Quiz Night is back!
Join us online for our next quiz on 📅 Tues 15 Sept 2026 at 7pm. A fun, friendly way to connect with the Pathfinders community and test your knowledge.
Sign up now:📝 tinyurl.com/PathfindersQuizS…
