PLEA is proud to be a volunteer-led non-profit community interest company, established to challenge the inequalities in access to cannabis-based medicines.
United Kingdom
Joined April 2020
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PLEA - Patient Led Engagement for Access retweeted
Laughable advertising and at the same time so sad. Families asking their neurologists desperate to support a prescription for cannabis for their child facing a life of seizures and early death and this type of thing is happening. Does nothing but hinder progress for all.
PLEA - Patient Led Engagement for Access retweeted
Do you suffer from chronic pain and use opioids or medical cannabis to manage the pain? Please answer our anonymous survey here: users.abo.fi/jjylkka/pain/ @Peter_Grinspoon @AleksiHupli @ChronicPainAust @ChronicPainIRL @cpn_rdc @chronicpaintv @TheACPA @REMAPTherapy @ThomasKlineMD
PLEA - Patient Led Engagement for Access retweeted
On this special day for us, we ask you to join us in supporting all those others who are still fighting to get the same access he has via the NHS.
Please sign our petition so we can bring it, hand in hand to @10DowningStreet with 1 million supporters:
change.org/p/prime-minister-…
PLEA - Patient Led Engagement for Access retweeted
@MEDCANSupport has become a vital lifeline for many children and their families, helping bridge a gap for those who cannot afford to access cannabis medicines privately.
Please donate and learn more about their work here: crowdfunder.co.uk/p/medcansu…
PLEA - Patient Led Engagement for Access retweeted
Jess and James shared their incredibly moving story about the loss of their amazing son James to #DIPG, a rare and incurable brain tumor, despite the worse news, cannabis allowed James to continue to meet his milestones and even started school full-time.
cannabishealthnews.co.uk/202…
PLEA - Patient Led Engagement for Access retweeted
This Christmas we are supporting families struggling with the cost of living increase with £5000 being put aside to allow families to apply for £100 grants as a small gesture. Please support us by donating to allow us to continue to support our families.
justgiving.com/crowdfunding/…
PLEA - Patient Led Engagement for Access retweeted
This is a long read but worth sticking with to read (and see) Louis’ own perspective on what he’s been through.
I included the full timeline rather than summarising as this case really highlights the hypocrisy & confusion of the NHS stance on medical cannabis @EmmaMat62406401
Louis Petit’s neurologist was amazed by the effect cannabis had on his seizures and was even willing to prescribe it through the NHS. But at the last moment they withdrew their support out of the blue.
Louis and mum @EmmaMat62406401 want to know why.
eu1.hubs.ly/H029ydj0
PLEA - Patient Led Engagement for Access retweeted
Louis Petit’s neurologist was amazed by the effect cannabis had on his seizures and was even willing to prescribe it through the NHS. But at the last moment they withdrew their support out of the blue.
Louis and mum @EmmaMat62406401 want to know why.
eu1.hubs.ly/H029ydj0
PLEA - Patient Led Engagement for Access retweeted
NHS refusal to fund an unlicensed cannabis medicine, despite the clear benefits to Louis. @EmmaMat62406401 story highlights the barriers families face in the UK. What is clear to progress is clinical data in products to alleviate clinicians fears.
cannabishealthnews.co.uk/202…
PLEA - Patient Led Engagement for Access retweeted
Join us in 1⃣ week when we’ll be discussing how we can reduce harm for our pediatric oncology patients with @CharlieH_hope from @MEDCANSupport and @drdanigordon from @ukmcss ‼️
Register today: bit.ly/ReducingHarm
#ReducingHarm #MedicalCannabisforKids
PLEA - Patient Led Engagement for Access retweeted
During Medical Cannabis Awareness Week, Hannah Simon, director of @sana_healthcare said producers are doing a ‘disservice’ to patients by not investing in clinical trials.
@PLEA_community #MCAW2022
eu1.hubs.ly/H027HD60
PLEA - Patient Led Engagement for Access retweeted
We're LIVE..! 🎧
Our Head of Community Cissie Storey is chatting to @Mary_Biles & other guests now for #MCAW
Exploring the potential of #medicinalcannabis for a range of different conditions
You can listen in via the eventbrite link >> ow.ly/HFJA50LwBwq
@PLEA_community
PLEA - Patient Led Engagement for Access retweeted
Medical Cannabis Awareness Week 2022: Condition Conversations
Listen today at 6pm to hear #Cancard team member Cissie Scorey discuss the potential of #medicinalcannabis treatment for #physical & #mentalhealth conditions. In collaboration with @PLEA_community & #MCAW22
PLEA - Patient Led Engagement for Access retweeted
A start this early means only one thing! I am on @bbc5live at 7:35am this morning and also I have been invited to comment on @BBCMorningLive about medicinal cannabis. Looking forward to it! #westandwithyou
PLEA - Patient Led Engagement for Access retweeted
Our Industry Insights panel is LIVE!
Join now to hear from #Cancard Head of Relations Kirsty Morrison
@KowalskiKatya @VoltefaceHub
Elisabetta Faenza @LeafCann @UKCanCouncil
Anuj Desaj @TheCannabisCon2
@dr_CallieSeaman Aqualabs
Mark Heley @GlassPharms
PLEA - Patient Led Engagement for Access retweeted
Don’t forget to tune in at 6pm >> 𝗜𝗻𝗱𝘂𝘀𝘁𝗿𝘆 𝗜𝗻𝘀𝗶𝗴𝗵𝘁𝘀 >>
Chair
@KowalskiKatya @VoltefaceHub
Speakers
Elisabetta Faenza @LeafCann
Anuj Desaj @TheCannabisCon2
@dr_CallieSeaman AquaLabs
Mark Heley @GlassPharms
Kirsty Morrison @Cancard_UK
PLEA - Patient Led Engagement for Access retweeted
On Monday's show, Dr @xandvt will discuss medical cannabis 💬
Do you suffer from chronic pain or any other condition that medical cannabis might help? Have you tried to get a prescription for it & failed?
Let us know below 👇 or email morninglive@bbc.co.uk 📩
PLEA - Patient Led Engagement for Access retweeted
Four years on from the legalisation of #MedicalCannabis on 1 November 2018, findings from a UK #patient survey show that many are still facing considerable barriers such as quality, supply and societal stigma.
@PLEA_community #MCAW2022
eu1.hubs.ly/H024x6r0
PLEA - Patient Led Engagement for Access retweeted
Tune in tonight!
Join us tonight‼️ 6:00PM – 7:30PM
𝗕𝗮𝗿𝗿𝗶𝗲𝗿𝘀 𝘁𝗼 𝗔𝗰𝗰𝗲𝘀𝘀
Host: @RDeevoy
Patients & Representatives from:
@Drug_Science
@SapphireClinics
@GrowPharmaUK
Tickets: eventbrite.com/e/medical-can…
PLEA - Patient Led Engagement for Access retweeted
#Anythingcanhappen will be shown tomorrow as Europe's first exclusive viewing. @canna_mom_ @Hannah_Deacon40 & @Mikebarnes29 will discuss cannabis for childhood epilepsy and their experiences as parents and clinicians prescribing.
Looking forward to joining @Mikebarnes29 to host a Q&A with @canna_mom_ tomorrow at the UK Patient Conference.
Read her story below and let me know what types of questions you'd be interested to hear the answer to #MCAW2022: cannabishealthnews.co.uk/202…