A network of over 26 pediatric healthcare systems in North America | Generate and apply knowledge to improve patient-centered outcomes on kidney stone treatment
Joined February 2021
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Our fearless leader! Congratulations!
PKIDS retweeted
A recent @NBCNews article on #kidneystones, featuring @ChildrensPhila Doctor & Clinical Futures Associate Director Dr. Gregory Tasian, sheds light on why more children & teens, especially girls, are developing the condition and the combination of factors that could be to blame.
Doctors are increasingly seeing teenage girls suffering from kidney stones, especially during summer. nbcnews.com/health/kids-heal…
Check out the video in this article about #kidneystones by @NBCNews featuring Chloe who participated in the #PKIDS trial, as well as @GregoryTasian, the director of @PKIDS_Network
nbcnews.com/health/kids-heal…
Thankful for kids like Chloe who participated in the #PKIDS trial and shared their surgical experiences so we can learn from them and improve outcomes for children with #kidneystones disease.
#patientcentered
About 10% of people in the U.S. will have a kidney stone at some point in their lives. @NBCNews nbcnews.com/health/kids-heal…
PKIDS retweeted
We are still recruiting for those to participate in small group conversations with people around the country who have or take care of people who have kidney stones. From clinician to caregiver to patient, we want to here your stories! Fill out this survey!
qhs.rcc.mcw.edu/redcap/surve…
PKIDS retweeted
We are still recruiting for our next phase in our kidney stone research study! Please take a moment to fill out a survey and we will contact you to join our roundtable talks! Open to clinicians, caregivers and patients!
redcap.link/kindey_stone_eng… #kidney #kidneystones #urology
PKIDS retweeted
The @PKIDS_Network, including pediatric urologic surgeon Douglas Coplen, MD, outlined their study protocol for their PKIDS trial on pediatric kidney stone surgery: bmjopen.bmj.com/content/12/4…
PKIDS retweeted
#WashUUrology's Douglas Coplen, MD, is working with @PKIDS_Network to improve outcomes for kidney stone surgery. Learn more about the study, which is still recruiting patients: bit.ly/35aFQ1U
Your voice matters. Please help us better understand what the public wants to see in #kidneystone research by sharing your ideas. #patientcentered #patientmatters
Survey link:redcap.link/kidney_stone_eng…
@KSEC_Engagement @MUSICUrology @PCORI @AmerUrological
PKIDS retweeted
It’s #NationalKidneyMonth, and we’re highlighting @ChildrensPhila's Dr. Greg Tasian, leader of @PKIDS_Network, a collaborative with #patientcentered #kidneystone research at its core. #PKIDS #clinicaltrial is recruiting, funded by @PCORI. research.chop.edu/cornerston…
Patient-centered research is the future of clinical research. Check out this interview piece with #PKIDS director @GregoryTasian & our patient-family partner Hunter Beck.
➡️Knowing What Matters Most to Patients is Key to Pediatric Kidney Stone Research research.chop.edu/cornerston…
If you are 18 or order and are impacted by #kidneystones in anyway, your voice matters!
Please consider to take the survey and share your view on what is the most important in #kidneystone research and care!
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Congratulations to everyone! This is huge! So glad #PKIDS can contribute to PUSH enrollment. Can’t wait to see the results! #partnership
PUSH has completed enrollment! Thanks to participants for contributing to the study, and all of the investigators, coordinators, and partners that referred patients PUSH! @GregoryTasian @PKIDS_Network @HenryLaiMD @WessellsHunter @uroharper @StoneCrushed @jon_ellison @DukeUrology
PKIDS retweeted
If you haven't already, please take a moment to join the OHF Patient Registry!
ohf.org/patient-registry
This is where you can make a big impact—your involvement can shape research and pave the way for new treatments!
#OHF #Hyperoxaluria #PatientRegistry #Research
PKIDS retweeted
A new study by our researchers has found that climate change will lead to an increase in cases of kidney stones over the next 7 decades, even if measures are put in place to reduce greenhouse gas emissions. Read more in this recent article in @guardian. bit.ly/3qJhHY5
🤩🤩It's finally here! Introducing Pediatric KIDney Stone Care Improvement Network (#PKIDS). ➡️ this brief introductory video abt our network & how we do to improve experiences of our pediatric patients.
#KidneyStone @CHOP_CPCE @PCORI @CHOP_Research
youtu.be/bWNZnNR4Uyc