Working together to find a cure and improve care for those with ciliary disorders and their families by increasing awareness, research and support.
HQ in MN, USA
Joined March 2009
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PCD Foundation retweeted
An incredible honour to receive the Outstanding Clinical Science Poster Award at the Global PCD Conference 2026! Huge thanks to
@PCDFoundation, @beatpcd & @ErnLung and to the legendary Dr Magee Leigh for presenting me with the award.
PCD Foundation retweeted
On my way to Montreal for the first ever global meeting on primary ciliary dyskinesia
Looking forward to some great science and discussing important trial results
PCD is a rare disease that accounts for up to 10% of all cases of bronchiectasis
Bringing specialists from different communities together, addressing underdiagnosis and collaborating is the key to making progress in rare diseases
PCD Foundation retweeted
New research from the Genetic Disorders of #MucociliaryClearance Consortium (GDMCC):
✅ Describing the Latest Advancements in #PrimaryCiliaryDyskinesia
Listen and subscribe: rarediseasesnetwork.org/news…
PCD Foundation retweeted
Another excellent session on global initiatives on PCD at the #otm2024 Dr Machogu discusses barriers for PCD diagnosis and setting up a centre in Kenya
PCD Foundation retweeted
This morning keynote will be an update on bronchiectasis presented by @ProfJDChalmers #OTM2024 @PCDFoundation
PCD Foundation retweeted
Absolutely thrilled to be in Puerto Rico, attending and chairing at the #OTM2024, representing @beatpcd, and so happy to present our work on fertility problems from the #livingwithpcd study @Leonie_Schreck -thank you for the poster prize @PCDFoundation and for a great conference
PCD Foundation retweeted
Such a great decade for #primaryciliarydyskinesia presentation by Stephanie Davis at #OTM2024 @PCDFoundation
PCD Foundation retweeted
In San Juan, Puerto Rico for the « PCD on the Move » conference from the @PCDFoundation
Welcoming words by Michele Manion
PCD Foundation retweeted
Our own @Shoemelia and @mathieu_bottier leading the hands-on session on HSVM at the #OTM2024 @PCDFoundation
PCD Foundation retweeted
Fun fact: Michele was together with Magee Leigh the first people I met from the North American PCD community 11 years ago, soon after I entered the field of PCD research. Very happy to be here at the #OTM2024 conference, chairing this first session.
In San Juan, Puerto Rico for the « PCD on the Move » conference from the @PCDFoundation
Welcoming words by Michele Manion
PCD Foundation retweeted
Just landed in Puerto Rico! Excited for the PCD on the move @PCDFoundation conference. – at San Juan, Puerto Rico
PCD Foundation retweeted
Basic and translational science session at the #OTM2024 chaired by @Shoemelia and @Mill_lab just started. Looking forward to all the talks @PCDFoundation
PCD Foundation retweeted
For those at the #OTM2024 interested in high-speed video-microscopy and PCD? Join me and @Shoemelia on the hands on session on High-Speed Videomicroscopy Analysis starting in a couple minutes.
PCD Foundation retweeted
The second @beatpcd patient conference will take place again this year online on Tuesday November 21st at 14:00 CET, organised jointly by patients with PCD and their families, researchers and clinicians. Register for free on our website beat-pcd.squarespace.com/eve…
PCD Foundation retweeted
Join us today at 5 PM ET for the webinar: Portable Oxygen Concentrators (POCs) - How much oxygen are you really getting?
We are partnering with the @COPDFoundation as part of #WorldOxygenDay. Register here: zoom.us/webinar/register/671…
PCD Foundation retweeted
Ken Olivier highlighting work from @Shoemelia showing underdiagnosis of primary ciliary dyskinesia in bronchiectasis patients
Great to see how much more awareness and advocacy there is for PCD at @WorldBronchNTM
@beatpcd @PCD_UK @ERSpublications
