🧬 Rare Info Series | Episode 80 Duchenne Muscular Dystrophy: From Diagnosis to Comprehensive Care 👨‍⚕️ Dr. Lokesh Lingappa | 🎙️ Dr. Deepa Bhat 📅 30 Sept | ⏰ 4–5 PM | 💻 Zoom #DMD #RareDiseases #ORDI

🧬 Rare Info Series – Episode 78 “Beyond the Diagnosis: Understanding the Psychological Needs of Rare Disease Families” 🎙️ Dr. Nausheen Hussain 🎤 Moderator: Ms. Prasanna Shekhawat 📅 16 Sept 2026 | ⏰ 4–5 PM 📲 Scan the QR code on the poster to join. #RareInfoSeries #ORDI

Rare Info Series – Episode #77 💙 Join us for “Walking Through CMT: Challenges, Strength & Hope” 🎙️ Speaker: Dr. Prabhudev Hiremath 🎤 Moderator: Dr. Aparna U Simha #CMT #RareDiseases #ORDI

♿ Rare Info Series | Special Edition: Disability Rights in India: Advocacy, Progress, Challenges & the Way Forward Zoom.👉 Join here: us06web.zoom.us/webinar/regi… or scan the QR code on the poster. Free and open to all. #DisabilityRights #RareDiseases #ORDI

On 22 Aug, @ORDI joined the inaugural CMT Centre of Excellence meeting at @Msrmcmedical, Bengaluru, with CMT Foundation of India, patients, families & clinicians. Later, they visited ORDI for a session on building a patient advocacy. #RareDiseases #PatientAdvocacy #CMT #RMC #ORDI

🇮🇳 @Prasannashirol Shirol felicitated @DHanagavadi, the prestigious Padma Shri 2026 awardee, a person living with haemophilia B, and the Founder President of the Karnataka Haemophilia Society (KHS), Davangere. 🩸 #PadmaShri #Hemophilia #RareDiseaseIndia #ORDI

We are delighted to welcome Charcot Marie Tooth Foundation of India (CMTF) to the ORDI family! CMT is a rare neurological disease.Together, we look forward to amplifying voices, strengthening support, and creating better outcomes for the rare disease community. #ORDI #CMTF

Why does the genetics of autism matter? 🧬 📆 Join ORDI's Rare Info Series on 26th Aug, 4–5 PM IST. Speaker: Dr. Shruti Bajaj Moderator: Dr. Dipanjana Datta Zoom ID: 813 8286 9994 Passcode: 8892555000 (Check flyer for QR code) #Autism #Genetics #RareDiseases #ORDI

This August, we are bringing you our special topic on spinal muscular atrophy (from awareness to action). Register for free to interact with Dr Sheffali Gulati, paediatric neurologist from AIIMS, New Delhi. us06web.zoom.us/webinar/regi…

Happy Independence Day from ORDI! 🇮🇳 Standing with India’s rare disease community for freedom, care, and hope. #IndependenceDay #ORDI #RareDiseaseIndia

Our recent webinar on the non-medical aspects of OI addressed an important question from Ms Ruchita Sanchari that is often left unaddressed. ▶️ Watch the full interview: youtu.be/qPNPeSkvlFE #RareDiseaseAwareness #Genetics #PatientAdvocacy #ORDI

Hear from our patients, caregivers and families about their experiences at our recent CPR training session. We’re planning our next session and new community programmes. Tell us which topics would support you most 👉 lnkd.in/dB2U9V-t #RareDiseases #CPRTraining #ORDI

Rare Info Series #73 💙 Join us as we explore “Living with Neurofibromatosis: Challenges and Hope.” 🎙️ Dr. Prabhudev Hiremath 🎤 Dr. Aparna U Simha 📅 12 Aug | 🕓 4–5 PM IST #ORDI #Neurofibromatosis #RareDiseases #RareInfoSeries

When survival is at stake, every second counts. ⏳ A glimpse into our CPR training day. Full interviews and our next event - coming soon. #CPRTraining #ORDI #rarediseaseadvocacy @Prasannashirol @ManipalHealth

Quality care goes beyond treatment. 💙 Join ORDI Rare Info Series #72 on "Non-medical Aspects of OI Care: Doctor's Contribution." 🎙 Dr. Prashanth Inna 🎤 Ms. Krishnendu Menon 📅 5th Aug 2026 | 🕓 4 PM IST #ORDI #RareInfoSeries #OICare #RareDiseases #OI #Healthcare

Get a sneak peek at our parents, caregivers, and social workers getting involved in the mechanics of delivering effective CPR under the guidance of doctors by @ManipalHealth. instagram.com/p/DbacdYDE3SJ/… @Prasannashirol

Skills that save lives! 🫀 In an emergency, the first few minutes matter most. On 25 July, members from inside and beyond our rare-disease community learned hands-on CPR from doctors and trained specialists from @ManipalHealth, organised by @ORDI. #CPRTraining #ORDI #RareDisease

🧬 Rare Info Series #71 Does cancer run in families? Join us for "It Runs in the Family: Decoding Hereditary Cancers" with Dr. Pradeep Kumar, moderated by Dr. Beena Suresh. 📅 29 July 2026 | 🕓 4–5 PM IST | 💻 Zoom #ORDI #RareInfoSeries #HereditaryCancer #Genetics