@NatPancFdn
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Enough small talk - let’s put an end to pancreas disease 💜 [email protected]
Bethesda, MD
Joined October 2009
- Tweets2.7K
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Camp Hope is better because of volunteers like Dr. Khan! 💜 Thank you for spending time with our campers, joining in on the fun, and helping make camp such a special experience.
For Dr. Aamir Khan, caring for children with chronic pancreatitis extends beyond the clinic. Volunteering at Camp Hope showed him the value of spaces where patients can simply be kids. Read his story: bit.ly/4dI18nw @VCUTransplant @RebeccasWishUS @NatPancFdn
ALT Dr. Khan, Soni and Patel smile after being covered in paint by campers.
ALT Dr. Khan smiles while wearing a medical white coat and talking to another VCU Health team member.
ALT Dr. Khan smiles at Camp Hope.
The National Pancreas Foundation retweeted
For Dr. Aamir Khan, caring for children with chronic pancreatitis extends beyond the clinic. Volunteering at Camp Hope showed him the value of spaces where patients can simply be kids. Read his story: bit.ly/4dI18nw @VCUTransplant @RebeccasWishUS @NatPancFdn
ALT Dr. Khan, Soni and Patel smile after being covered in paint by campers.
ALT Dr. Khan smiles while wearing a medical white coat and talking to another VCU Health team member.
ALT Dr. Khan smiles at Camp Hope.
For our Chicago friends! 💜
Whether you’re living with acute or chronic pancreatitis, caring for someone who is, or looking to better understand the condition, this FREE in-person event is for you.
Register here: eventbrite.com/e/the-npf-chi…
🎉 Big news! We're thrilled to announce Emily S. Draud, CFRE has been named permanent Executive Director of the National Pancreas Foundation. Emily's been leading us since May — and now it's official. 💜 #WelcomeToTheTeam
Read more here: linkedin.com/pulse/national-…
If you’re in the Pittsburgh area, come celebrate with us!
Join NPF on Oct. 24 at the Kamin Science Center for our 2026 Western PA Courage for a Cure Awards Celebration.
🎟️ Tickets & sponsorships: e.givesmart.com/events/Okc/
#CourageForACure #PancreasDisease #PittsburghEvents
Proud moment for our NPF family! Dr. Eileen O'Reilly, Chair of our NPF Board of Directors, led the pivotal clinical trial behind the FDA approval of Rasonque (daraxonrasib). Congrats, Dr. O'Reilly, and thank you for your dedication to advancing hope for patients everywhere.🎗️
The @FDA has approved #daraxonrasib for certain patients with metastatic pancreatic cancer. MSK’s @EileenMOReilly led the phase 3 trial at MSK showing it doubled median survival compared with chemotherapy.
“To date in my career, I have not seen this level of benefit from any single anti-cancer drug in this disease."
Learn more about the approval and what it could mean for patients: bit.ly/4ccwja0
Meet Joyce 💜 She's 15, and this spring, she underwent a Total Pancreatectomy with Islet Autotransplantation (TPIAT). Recovery hasn't been easy. But for the first time in years, she's not waking up wondering if today will end in the ER.
Read her story: pancreasfoundation.org/stori…
The National Pancreas Foundation retweeted
The U.S. FDA approved the first multi‑selective oral RAS inhibitor in metastatic pancreatic cancer.
More: revmed.com/media/news/13366/…
It's #NationalPatientAdvocacyDay 💜 Understanding your treatment options is advocacy.
Dr. Whitcomb & Meggin break down PERT for managing EPI — dosing, timing, and dietary needs. 🎥 youtu.be/ZmgrJqsyOvQ #EPI #PERT
It's #NationalNonprofitDay! 💜
Our mission matters — but today we're celebrating the volunteers, families, physicians, and donors who make it real.
You are The National Pancreas Foundation.
#PatientAdvocacy #NPFCommunity
Erin didn’t just want to get through another hospital stay. She wanted her life back. 💜
Her story is a reminder that life after a major diagnosis may look different, but there can still be a way forward.
Read Erin’s story: pancreasfoundation.org/stori…
#Pancreatitis #PatientStories
Your pancreas plays an important role in your health, and there’s more to pancreas disease than many people realize. 💜
Learn more: pancreasfoundation.org/pancr…
#PancreasDisease #PancreasHealth #KnowYourPancreas
We’re growing! Please join us in welcoming our newest NPF Centers of Excellence. 💜
Visit pancreasfoundation.org/patie… to find a center near you.
#NationalPancreasFoundation #NPFCentersOfExcellence #PancreasDisease #PancreasCare
The FDA just granted Breakthrough Therapy status to Eli Lilly's olomorasib for advanced pancreatic cancer patients with a KRAS G12C mutation — a rare subtype with no approved targeted therapies until now. 🧬
🔗 Learn more:investor.lilly.com/news-rele…
The National Pancreas Foundation retweeted
Join us today at 2 PM ET for the @NatPancFdn APP webinar, “Practical Approaches to Diagnosing and Managing Fatty Pancreas and EPI.” Shivam Patel and I will discuss recognition, diagnosis, case-based evaluation, and practical management.
🔗 bit.ly/APPAugustWebinar
@CAPERpancreas @apapancreas – at Cleveland, OH
🧬 Hereditary #pancreatitis is linked to changes in the PRSS1 gene and often begins in childhood.
👪 Familial pancreatitis means pancreatitis occurs more frequently within a family, even without a known genetic cause.
Learn more: pancreasfoundation.org/pancr…
#PatientEducation
🎥: @DavidCWhitcomb & Meggin discuss pancreatic enzyme replacement therapy (PERT) for managing EPI — dosing, dietary options (vegetarian/cultural/religious), the emotional toll of #chronicillness, and the value of a multidisciplinary care team.
🔗 youtu.be/ZmgrJqsyOvQ
💜 Our amazing community showed up in the biggest way, and we are beyond grateful.
The #ColorItPurple movement isn't over yet!
✅ Make your donation
✅ Email pics to [email protected]
👉 Donate today: fundraise.givesmart.com/form…
💜 Every pancreatic disease diagnosis changes a life. Stories like Kiera's and Tom's remind us why we #ColorItPurple.
Help us reach more patients like them! fundraise.givesmart.com/vf/C…
Read their stories: pancreasfoundation.org/stori…
The National Pancreas Foundation retweeted
Celebrating #ColorItPurple Awareness Week at #PancreasFEST2026 while connecting with Dr. @MaisamHaijaMD and Dr. Mitchell Ramsey and brainstorming exciting new research ideas in pancreatic diseases! 💜 @NatPancFdn – at Lauderdale, MN
