Neuroendocrine Tumor Southern Africa Support. NETSAS provides support for NETs patients and empowers patients with knowledge

Cape Town, South Africa
Joined October 2023
📢#NETCancerDay is on November 10th. NETs are easily missed but early diagnosis is possible. 📌Please prepare to join the global NET community to speak in one global voice. 📌Check out INCA’ campaign toolkit for guidance how to get involved in NET Cancer Day: incalliance.org/ncd-2025/cam… #LetsTalkAboutNETs
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📣Patients. Caregivers. Healthcare professionals. Together, we can transform NET care. 📌Join the #SCAN2025 Global Survey and help shape the future of diagnostics & treatment worldwide. ✅Take the survey today: incalliance.org/scan2025/ #LetsTalkAboutNETs #WeSCAN #MedTwitter
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💻Check out our collections of video presentations by prominent NEN researchers to be abreast of the latest in NEN clinical trials: incalliance.org/researcher-i… 🌎Available in English with captions in French, German, Italian, Portuguese and Spanish. #LetsTalkAboutNETs #OncTwitter
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NENs are often missed in general practice. 🎯The #ThinkNENs program gives you the tools to spot them early. 📌Free. Online. CME-accredited. ✅Get proficient in just 60 mins: incalliance.org/think-nens/ #LetsTalkAboutNETs
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🔔Calling all #PrimaryCarePhysicians: Enroll in the free #ThinkNENs e-learning designed for busy general practitioners and get a free CME credit: incalliance.org/think-nens/ 🔔Get proficient in detecting this uncommon cancer to save lives. #LetsTalkAboutNETs #MedTwitter #EndoTwitter #LungTwitter #MedED
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#PrimaryCarePhysicians are the first to see NET patients when symptoms present. Among the repetitive diagnoses of common conditions, it is difficult to suspect the uncommon. 📌We help PCPs to detect NENs with a 60-minutes e-learning and a free CME credit. ✔️Check it out here: incalliance.org/think-nens/ #LetsTalkAboutNETs
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6000 newly diagnosed NENs a year in England alone. ~ 16 a day, ~ 1 every 90 minutes. Not as rare as we keep being told they are. And these figures exclude some types. buff.ly/ffdMkp8
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📌Dr. Grace Kong: “The future focus should be on performing more multicenter collaborative studies on NENs.” ☑️Learn about the latest nuclear medicine clinical trials related to NENs: incalliance.org/dr-grace-kon… #LetsTalkAboutNETs #RadTwitter
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NETSAS retweeted
ICYMI: We released our 1st guideline to aid oncologists in managing symptoms of GEP-NETs—complex diseases that can take a toll on patient function & quality of life. #ASCODailyNews has more, including comments from Expert Panel Co-Chair @JaydiDelRivero: brnw.ch/21wSCdU
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Neuroendocrine Cancer? – 10 questions to ask your doctor ronnyallan.net/2024/05/12/ne…
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On the #WorldFamilyDoctorsDay, we would like to praise the key role #PrimaryCarePhysicians play in timely diagnosis and patient management. ✅Share with your family doctor the free #ThinkNENs e-learning program with CME credit in 6 languages: incalliance.org/think-nens/ #LetsTalkAboutNETs
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Behind a NET diagnosis there is a personal story. 👉Karin from Belgium spent 6 years with symptoms of low blood pressure, hot flashes, tiredness, abdominal pain. She visited her GP every 6 months. NET awareness would have urged referral for scan. ✅Watch Karin’s story: incalliance.org/stories/kari… #LetsTalkAboutNETs
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The neuroendocrine system bridges the nervous & endocrine systems, influencing everything from gut function to immune response. It’s also central to understanding complex cancers like neuroendocrine cancer.
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There is a consensus among NET researchers - clinical trials should be patient-centered. 🔔Now the INCA collection of NET researchers’ insightful videos is available with captions in 5 languages: French, German, Italian, Portuguese and Spanish: incalliance.org/researcher-i… #LetsTalkAboutNETs
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📢Today is #WorldHealthDay! The global NET patient community honors all healthcare professionals who support the patients in diagnosis, treatment and care. 👏Thank you for your dedication! 📌Let’s help more HCPs learn about NETs: incalliance.org/net-info-pac… #LetsTalkAboutNETs #MedEd
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Big news for #NETs! But let’s be real… 60 mg was like a bad first date: too intense, hard to tolerate. So, we’re dialing it down to 40 mg in our study to find the sweet spot! Stay tuned! #ClinicalResearch clinicaltrials.gov/study/NCT… @MattZibelman @FoxChaseCancer @NCCN
#Cabozantinib is now @US_FDA approved based off #CABINET study for previously treated pNET or epNET. - ⬆️ PFS in both subsets - mPFS pNET 11.4mos Vs 3mos and epNET 8.5mos Vs 5.6mos - SE: HTN, Diarrhea, Fatigue #OncTwitter #MedTwitter @NANETS1 @LACNETS #gism @OncoAlert
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Big news for NET patients!
#Cabozantinib is now @US_FDA approved based off #CABINET study for previously treated pNET or epNET. - ⬆️ PFS in both subsets - mPFS pNET 11.4mos Vs 3mos and epNET 8.5mos Vs 5.6mos - SE: HTN, Diarrhea, Fatigue #OncTwitter #MedTwitter @NANETS1 @LACNETS #gism @OncoAlert
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Can the therapy of grade 3 neuroendocrine neoplasms be distilled down to a single slide? Not sure, but here is my attempt for the upcoming NANETS Regional Conference in Mexico City next weekend... Lots of low-ish quality data and I left out the NABNEC data on nab-pacli + carbo.
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