@NECUK_Charity

Official account for NEC UK (Necrotising Enterocolitis) Registered charity 1181026. Email:[email protected] Tel:07375813907

 United Kingdom
necuk.org.uk
Joined June 2017
  • Tweets1.6K
  • Following551
  • Followers1.4K
478Media
Make history with #NECUK 2027 Double TCS London Marathon two day event, Saturday 24th and Sunday 25th April. Run for NEC UK on The first-ever Saturday event. Places are limited - don't miss your chance to be part of this landmark event. Sign up today. #LondonMarathon2027
1
271
202 Double TCS London Marathon | necuk.org.uk

Necrotising Enterocolitis | Nec Uk | England

NEC UK A UK Charity for the condition Necrotising Enterocolitis- What is NEC, nec support, family support. Raise awareness of necrotising enterocolitis.

necuk.org.uk
16
Giving preterm babies a strong start for a brighter future. NEC UK have supported 12 Neonatal Units across the UK with our Kangaroo Hampers, Ardo Breast Pump & Resource Pack. #WorldPrematurityDay2025 #WPD2025 #WorldPrematurityDay #WPD #StrongStartBrighterFuture #BornTooSoon
1
1
2
301
Prematurity Awareness Month 💜 This year we are donating 5 Kangaroo Care Bundles,1 Ardo Breast Pump & Resources pack to the first 11 UK Neonatal units who apply. If your NICU Would like to receive yours please order here by the closing date 31.10.25 necuk.org.uk/necukbundle

NEC UK World Prematurity Bundle | www.necuk.org.uk

NEC UK Prematurity Awareness Month Bundle

necuk.org.uk
1
1
83
@NUHNeonatal
58
Start of our research meeting looking at this vital topic of ‘transition and adult care’. Transition can be particularly difficult if you have a rare disease especially one like NEC that is considered as a ‘neonatal disease’ yet we know for many has lifelong complications.
1
114
Celebrating World Prematurity Awareness Day 💜 November 17 2024 by sending Neonatal Units across the UK our Care Bundles. 15 Hospitals will receive 6 Parent Care Packs 6 Parent Hygiene Bags 1 Ardo Breast Pump 1 Resource Pack #PrimeDay2024 #worldprematurityday2024 #necukcharity
1
5
159
Please tag us @necuk once you receive yours and help us celebrate and raise awareness this World Prematurity Awareness Day💜
69
Special Announcement 💙💚 November 17th Chester Zoo & Lanterns and Lights Experience wix.to/6j9DMYn
1
90
We are sending our NEC bundles to NICU'S across the UK for World Prematurity Day November 17th 💜 ​Please order here by 7th October for them to arrive in time. necuk.org.uk/necukbundle Bundle Incudes: 6-Care Packs 6- Hygiene Bags 1 Ardo Breast Pump 1- Hospital Pack

NEC UK World Prematurity Bundle | www.necuk.org.uk

NEC UK Prematurity Awareness Month Bundle

necuk.org.uk
1
6
158
A big shout out to our families #firstdayofschool. Those who’s babies are no longer physically with them, those with complex needs, those who are terrified to let their precious miracles go. We know how you feel!Be kind to yourself You’ve got this! #allcareisbraincare #PreventNEC
4
114
📣 have you had a child for in neonatal intensive care? @VickyAdkins1990 and I are hoping to hear about your experiences and your views on artificial placentas. You can take part in our @FutureofRepro funded study by completing this survey: surveymonkey.com/r/TT6V3PB
4
4
604
Thanks as always to the families involved in this work, the funders (@wellcometrust and @ListerInstitute), and the local (@TinyLivesTrust) and national (@NECUK_Charity) charities for all they do for preterm infants at risk of NEC.
1
5
632
Really pleased to see our SR (rdcu.be/dKmFN) on identification of surgical NEC now in @Ped_Research. 63 methods available but many require external validation to determine which is most effective. @NIHRresearch @NECUK_Charity @DrCBattersby @Marianfknight @nigel_j_hall
7
18
1,548
⭐️ HELP NEEDED ⭐️ Feeling Overwhelmed we are run completely by volunteers and we only have a few. We have jobs and children (some with complex medical needs). If we aren’t able to get some more help the charity can’t function. Could u help? necuk.org.uk/volunteer-oppor…
1
161
What batter day to share this incredible research project than international NEC awareness Day. It was a pleasure and privilege to work with @dhklerk and the whole team to complete the core outcome set for NEC helping to drive research is so important for our families.
Daphne Klerk@dhklerk10 May 2024
A Core Outcome Set for NEC, published today! pubmed.ncbi.nlm.nih.gov/3872… Together, patients, their families and clinicians selected the most important outcomes in NEC treatment trials. This work encourages new treatment trials for NEC and emphasises the need for long term follow-up.

Core Outcome Set for Necrotizing Enterocolitis Treatment Trials - PubMed

This NEC COS includes 5 predominantly long-term outcomes agreed upon by clinicians, patients, and family representatives. Use of this international COS will help standardize outcome selection in...

pubmed.ncbi.nlm.nih.gov
3
9
556
NEC AWARENESS DAY 2024 ONE DAY TO GO!!! May 17th Is NEC Awareness Day! Help us to raise much needed awareness of this devastating condition. Here’s how you can get involved: wix.to/ieZdWUO
8
16
906
Legoland Windsor on the 18th MAY Application Closes at MIDNIGHT! wix.to/A5Op3Tf
1
1
197
ERNICA Annual Meeting. It’s a pleasure and a privilege to join so many incredible professionals and patient family advocates all working to combat rare neonatal and congenital diseases. #PatientsFirst #PreventNEC @ernica_ern @Maz70956466
3
167
Join the NEC UK Team as we recognize NEC Awareness Day by fundraising and raising awareness of Necrotising Enterocolitis throughout the Month of May. Our JustGiving Campaign in NOW LIVE justgiving.com/campaign/necu…
1
3
161
Load more