
MSU, patient-led, all-volunteer nonprofit empowering the #Myositis community. Patient support, education, financial assistance, research. #RareDisease
United States
Joined January 2014
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- Following1.9K
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๐๐ฒ๐ฟ๐บ๐ฎ๐๐ผ๐บ๐๐ผ๐๐ถ๐๐ถ๐: ๐๐ฎ๐ป ๐๐ถ๐๐ต ๐ข๐ถ๐น ๐๐ฒ๐น๐ฝ?
TODAY ! Join Lisa Rider, MD, NIH/NIEH and Julia Agafonova, MS, CCRC, to learn about FAST for DM!
โญREGISTER HERE: understandingmyositis.org/evโฆ
#NIEH #NIH #MyositisClinicalTrials #Dermatomyositis #MyositisSupport
Join us TODAY for #MyositisReads, a book club for the Myositis Community on Clubhouse! Today at 3 PM ET on Clubhouse. Myositis patients and care partners are welcome. Reading is where we can escape, relax, and learn. ๐ For details, visit: understandingmyositis.org/evโฆ #MyositisReads
๐๐ฒ๐ฟ๐บ๐ฎ๐๐ผ๐บ๐๐ผ๐๐ถ๐๐ถ๐: ๐๐ฎ๐ป ๐๐ถ๐๐ต ๐ข๐ถ๐น ๐๐ฒ๐น๐ฝ?
TOMORROW: Join Lisa Rider, MD, NIH/NIEH and Julia Agafonova, MS, CCRC, to learn about FAST for DM!
โญREGISTER HERE: understandingmyositis.org/evโฆ
#NIEH #NIH #MyositisClinicalTrials #Dermatomyositis #MyositisSupport
From the Heart Support TODAY on Clubhouse! Support & connect w/ your #myositis family! Join us on Clubhouse today and every Sunday at 7 PM ET / 6 CT / 5 MT / 4 PT - Come as you are. Learn more and join Clubhouse at: understandingmyositis.org/evโฆ #myositissupport #MSU
International Myositis Support Group! Connect with others from around the world, share experiences, and offer mutual support in a safe and welcoming environment. Every third Sat of the month on Zoom at 2pm ET. Register at Global Community understandingmyositis.org/evโฆ #myositis
๐๐ฒ๐ฟ๐บ๐ฎ๐๐ผ๐บ๐๐ผ๐๐ถ๐๐ถ๐: ๐๐ฎ๐ป ๐๐ถ๐๐ต ๐ข๐ถ๐น ๐๐ฒ๐น๐ฝ?
TUESDAY! Join Lisa Rider, MD, NIH/NIEH and Julia Agafonova, MS, CCRC, to learn about FAST for DM!
โญREGISTER HERE: understandingmyositis.org/evโฆ
#NIEH #NIH #MyositisClinicalTrials #Dermatomyositis #MyositisSupport
#MyositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss understandingmyositis.org/evโฆ #MyositisMovement #myositis #inflammatorymyopathy
๐ฌ Join Couch Critics, our virtual Myositis Community movie club! We meet bi-weekly on the 2nd Wed at 7 PM EST. Relax, connect, and enjoy movies together! understandingmyositis.org/evโฆ
๐ฟ #MSU #Myositis #CouchCritics
Breathe Easy, dedicated specifically to myositis patients who are experiencing lung issues. Join us for our monthly meeting on Zoom. register here: understandingmyositis.org/evโฆ
#MSU #MyositisSupport # #MyositisAwareness #LungHealth #BreatheEasy
๐๐ฒ๐ฟ๐บ๐ฎ๐๐ผ๐บ๐๐ผ๐๐ถ๐๐ถ๐: ๐๐ฎ๐ป ๐๐ถ๐๐ต ๐ข๐ถ๐น ๐๐ฒ๐น๐ฝ?
Join Lisa Rider, MD, NIH/NIEH and Julia Agafonova, MS, CCRC, to learn about FAST for DM!
โญREGISTER HERE: understandingmyositis.org/evโฆ
#NIEH #NIH #MyositisClinicalTrials #Dermatomyositis #MyositisSupport
๐TODAY! MSU Young Adult Collective Power Hour! Ages 18โ40 w/Myositis? Join our private, supportive Zoom session, no pressure to talk or be on camera. Connect, share, or just listen. Register now: understandingmyositis.org/evโฆ
#MSU #YACollective #MyositisSupport
From the Heart Support TODAY on Clubhouse! Support & connect w/ your #myositis family! Join us on Clubhouse today and every Sunday at 7 PM ET / 6 CT / 5 MT / 4 PT - Come as you are. Learn more and join Clubhouse at: understandingmyositis.org/evโฆ #myositissupport #MSU
#MyositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss understandingmyositis.org/evโฆ #MyositisMovement #myositis #inflammatorymyopathy
If you are living with #myositis, no matter which type, join us on Zoom for our Monthly Wednesday Evening Zoom support session! Come as you are! New Time! Starts at 7 PM ET/ 6 PM CT/ 5 PM MT/ 4 PM PST. For details and to register: understandingmyositis.org/evโฆ
#myositissupport #MSU
Women with Myositis! Join us on Zoom for a supportive group session to share challenges, hopes, and experiences. First Monday of Every Month 7 PM ET Register here: understandingmyositis.org/evโฆ
Private, never recorded, and you can choose to listen or share. We canโt wait to connect!
Men with Myositis Clubhouse Support Room! First Monday of the Month 7 PM ET Connect with other men living with myositis to discuss health, barriers, and shared experiences. More info: understandingmyositis.org/evโฆ
Download Clubhouse, create an account, and join us! #MSU #myositis
Join us TODAY for #MyositisReview, for the Myositis Community on Clubhouse! Today at 3 PM ET on Clubhouse. Myositis patients and care partners are welcome. Review books where we can escape, relax, and learn. ๐ For details, visit: understandingmyositis.org/evโฆ #MyositisReview
From the Heart Support TODAY on Clubhouse! Support & connect w/ your #myositis family! Join us on Clubhouse today and every Sunday at 7 PM ET / 6 CT / 5 MT / 4 PT - Come as you are. Learn more and join Clubhouse at: understandingmyositis.org/evโฆ #myositissupport #MSU
#MyositisSupport Gets Moving on Clubhouse TODAY at 1 PM ET / 12 CT / 11 AM MT / 10 AM PT. We create individualized movement/protein plans, engage w/ support partners, and join our weekly group to discuss understandingmyositis.org/evโฆ #MyositisMovement #myositis #inflammatorymyopathy
From the Heart Support TODAY on Clubhouse! Support & connect w/ your #myositis family! Join us on Clubhouse today and every Sunday at 7 PM ET / 6 CT / 5 MT / 4 PT - Come as you are. Learn more and join Clubhouse at: understandingmyositis.org/evโฆ #myositissupport #MSU



















