@MissionMSA

Mission MSA serves the MSA community by offering support, education, research funding, advocacy and awareness.

 USA
missionmsa.org
Joined October 2012
  • Tweets3.6K
  • Following821
  • Followers1.9K
873Media
What is #multiplesystematrophy? Our new video provides a clear introduction to #MSA, including MSA-P and MSA-C, autonomic dysfunction, diagnosis, multidisciplinary care, and the importance of early planning. Watch & share to help more people understand MSA. #MissionMSA
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You don’t have to navigate #caregiving alone. Join #MissionMSA for Navigating the Caregiving Journey on 11/12 at 1pm EST in honor of #NationalFamilyCaregiversMonth. Hear #caregiver insights, explore resources and connect with others. Register today: us06web.zoom.us/webinar/regi… #MSA
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Join #MissionMSA in Washington, D.C., 3/14 - 3/15, for our MSA #CapitolHill Day! Together, we’re highlighting the policies that advance #MSA research and improve care. Registration Deadline: 2/19/2027 Learn more: missionmsa.org/msacapitolhil… #MSAAwarenessMonth
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Your lived experiences can help shape the future of MSA care and research. Join #MissionMSA’s Living with MSA Advisory Group and collaborate with us on programs, education, and advocacy. Learn more and apply on MSA Connect: missionmsaconnect.org/opport… #MSA #multiplesystematrophy
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#SanDiego, our final #PathToACure of 2026 is less than 30 days away! Join #MissionMSA & @UCSDHealth on Sun 11/8 at De Anza Cove Park (9am PST) to connect with the #MSA community, form a team, or volunteer. Register today: missionmsa.org/ptac-sandiego
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Today is #DAFDay! If you have a Donor-Advised Fund, recommend a grant to #MissionMSA today to help fuel research, robust care, and advocacy. Learn more and take action in just a few clicks: msa.planmylegacy.org/donor-a… #MSA #multiplesystematrophy #donoradvisedfund
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Advancing #MSAresearch is now in the palm of your hand! The MSA-SPHERE app is live on iOS & Android. Share your daily experiences with #MSA, complete surveys, & help researchers shape the future of care & #clinicaltrials. Download today: missionmsa.org/msa-sphere/#d…
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Coming Soon: The #MultipleSystemAtrophy Podcast! Debuting 10/21, this podcast creates a hub where the heart of our community—those with #MSA, care partners, clinicians, researchers, and others—can share powerful, honest conversations. Learn more: missionmsa.org/podcast
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Because of you, #WorldMSADay was our biggest Day of Giving yet! Thank you to everyone who donated, lit a candle, or shared their story to fund critical #multiplesystematrophy research and family support. Here are a few photos and videos shared over the weekend. #MSA #MissionMSA
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In honor of #WorldMSADay, we invite our community to take part in our dedicated Day of Giving to raise vital #awareness and support #research for better care and one day, a cure: missionmsa.org/donate Learn more about #multiplesystematrophy by visiting whatismsa.com.
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On #WorldMSADay, @MSAtrust, #MissionMSA, and #CombatMSA join the global community to raise awareness of #multiplesystematrophy and honor everyone affected. By sharing stories across the UK, US, and Australia, we come together to drive support, advocacy, and research for #MSA.
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#WorldMSADay is 48 hours away! We’re inviting our community to take part in our dedicated Day of Giving to raise vital #awareness, fund critical #resources, and support #research for better care and one day, a cure. Get involved: missionmsa.org/worldmsaday #multiplesystematrophy
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Mission MSA retweeted
MSA Trust@MSAtrustSep 30
This week, we're honoured to share the story of Siân, from the United Kingdom (UK), who has experienced the sad loss of a loved one to MSA. Read Sian's story here - msatrust.org.uk/your-stories… #ConnectingTheGlobalMSACommunity #WorldMSADay
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Your daily realities with #MSA hold insights that clinical visits alone can’t capture. MSA-SPHERE turns daily realities into vital data to guide #clinicaltrials and #research towards better care and a cure. Learn more & get started: missionmsa.org/msa-sphere #MultipleSystemAtrophy
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#SanDiego! Join #MissionMSA on Sunday, 11/8 at De Anza Cove Park (9am PST) for our final 2026 #PathToACure with @UCSDHealth. Connect with the #MSA community by registering and getting involved: missionmsa.org/ptac-sandiego #multiplesystematrophy
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This week, we're honoured to share the story of Jeanne, a Mission MSA Board member who lost her husband, Peter, to MSA. Stories like these help raise awareness across the US, UK and Australia ahead of World MSA Day on 10/3. #ConnectingTheGlobalMSACommunity #WorldMSADay
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World MSA Day is just 1 week away! Join #MissionMSA on October 3rd to shine a light on #multiplesystematrophy. Request a donation reminder, start a fundraiser, or order an official candle to honor loved ones. Request a donation reminder: missionmsa.org/worldmsaday #WorldMSADay
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Thank you, Philly! Because of your generosity, our Path to a Cure event raised over $12,000 for MSA research and support. Huge thanks to our UPenn Center of Excellence partners! Explore our full photo album here: bit.ly/4zdkjOH #MissionMSA #PathtoACure #MSAAwareness
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It’s official! Mrs. Running Griffin and I will be running the 2027 @lamarathon to raise funds for @MissionMSA to help find a cure for Multiple System Atrophy. More details about how you can help support our efforts will be shared soon! #missionmsa #multiplesystematrophy #msa
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Mission MSA retweeted
MSA Trust@MSAtrustSep 18
This week we're sharing Gill’s story from the UK. While every MSA journey is unique, many challenges are shared across countries and communities. Together with @MissionMSA and Combat MSA, we're proud to share stories that connect our global MSA community. #WorldMSADay
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Mission MSA retweeted
MSA Trust@MSAtrustSep 24
In the lead-up to World MSA Day on 3rd of October, MSA Trust, @MissionMSA and Combat MSA are sharing stories from across the global MSA community. This week, we're sharing the story of Kate, who cares for their Dad, Martin, who is living with MSA in the UK. #WorldMSADay
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