Meshproblems01 retweeted
If you're an NHS board doing this I can guarantee at some point you're going to end up dealing with a media enquiry from me when the 💩 hits the fan: kingsfund.org.uk/blog/2023/1…
Meshproblems01 retweeted
Conflicts of Interest in medicine: taking money from industry without telling anybody, poses a serious risk to research integrity & #patientsafety Its rife & has been a MASSIVE problem in healthcare for decades. It played a huge role in #mesh #primodos scandals @PSCommissioner
Meshproblems01 retweeted
So when the Bleeding Edge documentary said, of implant scandals, “reversibility is key”, apparently even that doesn’t work because doctors will just think it’s women being hysterical again
Meshproblems01 retweeted
One of the 9 First Do No Harm recommendations was financial redress delivered using a non-adversarial process. NHS Resolution is NOT the answer as it’s a litigious process that’s stressful & relies on women proving blame @mariacaulfield @PSCommissioner @EmmaHardyMP @APPGFDNH
Meshproblems01 retweeted
Thanks @mariacaulfield for meeting with #mesh campaigners today to discuss how to improve specialist mesh centres & tackling financial redress to improve the lives of women whose health has been irreversibly harmed @EmmaHardyMP
Meshproblems01 retweeted
Many are prepared to speak - however, were not invited
I recall an RCOG conference in which a woman gave a patient’s perspective on Mesh yet she wasn’t even implanted with Mesh
When I queried this, I was told she learnt by looking at my social media posts - how offensive
Meshproblems01 retweeted
Terrible that women in NI @SlingtheMeshNI must get permission from their #mesh implanting surgeon to be seen in one of the 10 Specialist Removal centres in England or Scotland. Unsurprisingly many face a mighty battle @EmmaHardyMP questions-statements.parliam…
Meshproblems01 retweeted
Yes and it made damn all difference. Besides, you guys only started letting patients report to the yellow card system as a result of a BBC investigation - the MHRA is about the least patient-facing medical org in the UK.
1/4 We're supporting #MedSafetyWeek and have a poll!
We want to know what you know about the #YellowCard scheme and how to report side effects to medicines and medical devices.
Q1 - If you've ever had a side effect, did you report it using the Yellow Card scheme?
36%Yes
32%No
32%Never had a side effect
222 votes • Final results Meshproblems01 retweeted
The Great and the Good in Scotland can sound like they're still living in 2011, "don't believe these irrational accounts on the internet". In reality, since the rise of social media, it's too hard to play down excess harm from e.g. Essure and mesh as accounts are so numerous.
Meshproblems01 retweeted
Music to our ears @AaronBell4NUL we want mandatory reporting conflicts of interest in a central base like other countries seem to manage. Transparency. Not run by trusts where its diluted and lost. Manufacturers to declare all monies paid to decision makers
What people want is for medicine to be humanised, what we have is medicine that is industrialised - my message to the First Do No Harm APPG this morning @SarahGreenLD @natalieben @FeryalClark @EmmaHardyMP @SharonHodgson
Meshproblems01 retweeted
I wrote a lot for the @Telegraph health section last month and this ran on Monday - continuing my mission to investigate mesh surgery & tell the story of how it has affected women’s lives. Thanks Jennifer for talking to me. @ThompsonsLaw telegraph.co.uk/health-fitne…
Meshproblems01 retweeted
Sling The Mesh has been successful in getting a clause into Health & Social Care Bill for 🇬🇧Sunshine Payment Act forcing industry to declare money given to Drs, teaching hospitals & research institutions. Such money was a key reason for #mesh #primodos #sodiumvalproate scandals
Meshproblems01 retweeted
Where is the liason with rectopexy support groups & why are mesh centers not equipped yet to help us. We were told @NHSEngland were in talks with @TPFSuk. @PSCommissioner maybe you could facilitate so our many issues can be discussed @MeshCampaign
Meshproblems01 retweeted
Devastated to hear of the tragic death of a second victim of pelvic mesh complications. It's not acceptable that women are dying waiting for mesh removal and redress
Meshproblems01 retweeted
Let hope it's successful for #mesh rectopexy patients and mesh center improvements. Removals & support. Aftercare. Alternatives to mesh, liason with mesh groups would be appreciated @Toghill13 @tpfs @MeshCampaign @Meshproblems01 @PSCommissioner
Meshproblems01 retweeted
Worrying conflict of interest. New Tory Health Committee chair was rapped by lobbying watchdog over pharma job... mirror.co.uk/news/politics/n…
Meshproblems01 retweeted
Doctors get benefits for pushing vaginal #mesh implants. Seems like a good time to reshare this story as conflicts of interest are at the root of problems across all health arenas #patientsafety dailymail.co.uk/health/artic… via @MailOnline
Meshproblems01 retweeted
Why commission an independent review and not accept the recommendations in full? Nearly half of all correspondence I’ve received is from women still suffering from pelvic mesh implants. I will address this tomorrow at the Patient Safety Congress @HSJptsafety #meshredress