Disabled at age 40 by a transvaginal mesh midurethral sling. I advocate for other mesh-injured people ❤️

Joined January 2015
Mesh Problems retweeted
The Harmacist Strikes Again! “MD here; had my first cancellation of a hydrocodone script for a patient. Called him Walmart pharmacist. He stated I can’t write for more than seven days every six hours unless I sent him clinical paperwork. I explained the patient’s need and he canceled the script” The DPF Forum is lobbying to end this madness! thedoctorpatientforum.com/
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Mesh Problems retweeted
THE THREE FORCES OF DESTRUCTION: PAST THE WORD "TOXINS." Saying "toxins leaching" only scratches the surface of why the body breaks down. It isn't just a chemical leak; it is a full-body mechanical and biological assault driven by three distinct forces:
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Mesh Problems retweeted
M*ESH and The Permanent Cellular Damage (The Fortress): The permanent foreign body reaction completely exhausts the immune system and alters the cellular environment. It acts as a scaffold for impenetrable bi0film fortresses where bacteria tunnel deep inside cell walls, shielding themselves from antibiotics and fueling chronic, recurring infections. #KnowWhatYouDontKnow
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“I miss feeling productive. I miss feeling spontaneous…I miss not being exhausted constantly. I miss feeling like I had a future… I’m trying hard to find my identity again. I have lost so much…after I worked so hard to become who I was.” buff.ly/3XmeL40 #ChronicIllness
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🚨Today was the deadline set by Patient Safety Commissioner Prof Henrietta Hughes. It didn’t happen. 🔶She used her statutory powers to ask the Government for specific information on the Hughes Report redress process, not a final yes/no decision on compensation. 🔶She requested details on internal & cross-government discussions, actions taken so far, outstanding steps before Ministers can decide on redress, and a clear timetable for a full response. 🔶On 6 July, in answer to a Parliamentary question, the Department of Health & Social Care stated they would “provide any information required to support a timely response.” 🔶 Sadly as of this evening the actual deadline, no information has been published. 🔶This silence, on the eve of Parliament breaking for summer recess, is the latest chapter in decades of battles for candour and accountability that have left thousands of mesh-injured women in permanent pain, without proper care, financially ruined, and too often suicidal. 🔶We have shown the Government already runs a structured, tariff-based, non-adversarial system for complex pelvic trauma (the Armed Forces Compensation Scheme). 🔶 “Complexity” is not the barrier. 🚨Patients deserve transparency. Today proved nothing has changed. #RedressNow #MeshInjured #PatientSafety #HughesReport
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Mesh Problems retweeted
Informed consent is the legal and ethical requirement that a physician must fully educate a patient about the risks, benefits, and alternatives of a medical procedure before the patient agrees to it. Were You Informed?
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“I also feel sad, like I am trapped on a train and can only look through the window while my friends can hop off later and enjoy the landscape. And I will live on this train. I have no choice.” How Do You Do It? buff.ly/V63H5HV #ChronicPain #RareDisease #ChronicallyIll
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Mesh Problems retweeted
Three decades ago the world just watched a global health crisis unfold, as pre-packaged plastic kits cleared in '96 and '02 industrialized women's health for corporate profit. Worldwide millions of women were embedded with the synthetic plastic, 100,000's have been permanently harmed.
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Mesh Problems retweeted
Justice? Eyes made Quiet by Greed. Global settlements didn't just resolve a legal dispute; they acted as a non-disclosure shield that immunizes an entire global hierarchy. This systematic cleanup protects the manufacturers from public discovery, shields corporate stakeholders' profits, hides flawed institutional research, and insulates the doctors and hospitals who implanted these devices from malpractice accountability. It even clears the books for the lawyers, legislators, and governments who allowed the regulatory failures to happen in the first place. It is a total institutional lockdown that has left the world blind to one of the worst systemic atrocities against women in modern history.
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“I have days that are manageable but not close to pain-free. This makes it impossible to rate my pain—I have no 1 on my scale… life exists in a constant state of pain. My body is constantly hurting. When asked to describe it—I cannot.” buff.ly/4elYt0P #PainAwarenessMonth
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Mesh Problems retweeted
The world can sit silent. I will not. To say nothing, to do nothing, stops nothing. Alone we are STRONG. Together we are STRONGER. We are survivors breaking a 30-year wall of silence regarding the hidden dangers and damage of untested, permanent pl@stic implants. R U with me?💪
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Mesh Problems retweeted
A new documentary on the #Mesh scandal premieres Thurs 1 Oct. We've supported an award-winning international team of female filmmakers examining the flawed evidence, weak regulation and patient safety failures that harmed women globally. Subscribe & watch youtube.com/@MazeDocs
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Mesh Problems retweeted
💔🇫🇷 Our thoughts are with the family and friends of French actor/ director Arnaud Dennis who could no longer with live with the unbearable pain & autoimmune diseases following #hernia #mesh surgery in 2023. The 43 year old died today in a Belgium euthanasia clinic.
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'I can no longer leave my apartment, I no longer have a social life, I have no life at all anymore. Nothing remains that constitutes the dignity of a human life. And it's getting worse. I live like a cancer patient in the end stage. The doctors have nothing more to offer me,' he told the newspaper in early 2026." Extended Research is needed - Sheffield University identified degradation and migration and more recently BJUI Compass identified systemic dysregulation . This tragedy identifies the utter life devastation caused by polypropylene implants and urgent research is needed @MHRAgovuk @YvetteCooperMP @DHSCgovuk @PSCommissioner @andyburnham @realDonaldTrump @realRFKJr @CommonsHealth @matthewhillbbc @anita_amerritt sheffield.ac.uk/news/vaginal… bjui-journals.onlinelibrary.…
CW: Sterbehilfe #MEcfs #ASIASyndrom Der französische Schauspieler und Regisseur Arnaud Denis litt seit einer Leistenhernien-OP mit Polypropylen-Prothese 2023 starke Schmerzen. Er wurde heute mit 43 Jahren in Namur, Belgien, euthanasiert. "Der Eingriff löste bei ihm zahlreiche Nebenwirkungen aus. Im April 2024 ließ er sich das Implantat in den USA wieder entfernen. Ärzte diagnostizierten bei dem Schauspieler eine myalgische Enzephalomyelitis im Zusammenhang mit dem ASIA-Syndrom, einer entzündlichen Reaktion auf ein Adjuvans. Nach dieser Diagnose löste das Implantat eine anhaltende Entzündung aus und brachte sein Immunsystem aus dem Gleichgewicht. „Ich kann meine Wohnung nicht mehr verlassen, ich habe kein soziales Leben mehr, ich habe überhaupt kein Leben mehr. Nichts ist mir geblieben, was die Würde eines menschlichen Lebens ausmacht. Und es wird immer schlimmer. Ich lebe wie ein Krebspatient im Endstadium. Die Ärzte haben mir nichts mehr anzubieten“, sagte er Anfang 2026 der Zeitung." de.euronews.com/kultur/2026/…
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Mesh Problems retweeted
It has been said that the global mesh crisis is one of the darkest chapters in women's healthcare. For far too many women, a fast-tracked medical implant was not only life-altering—mesh was life-destroying. Share our daily posts, someone may need info & support for all surgical mesh types.
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Mesh Problems retweeted
Why is it harder than ever to get your pain treated? The short answer : opioid settlement funds are being used to harm millions of acute/chronic pain patient Watch. Learn. Share. thedoctorpatientforum.com/
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🚨Because NHS England lacks credentialed, competent surgeons capable of executing complete explantations, regional trusts are routinely performing failed partial removals. Surgeons cut away only the easily accessible plastic, discharging women with false assurances that the mesh is "fully gone". The consequence is catastrophic. Leftover fragments continue to undergo time-dependent oxidative degradation and particle shedding inside the pelvis #publicinquiry #TheSecondMeshScandal #September2026
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Mesh Problems retweeted
They had NO Plan B - Women SURROUNDED BY DOCTORS, LEFT WITHOUT SPECIALIZED CARE. The system treats the global mesh crisis like it only impacts a narrow timeline. In reality, surgical mesh is like a box of chocolates: you never know what you are going to get. The Unpredictable Damage Timeline: Immediate to Weeks: Severe mechanical failures, local tissue erosion, or acute structural injuries. Months to 2 Years: Sudden nerve entrapment, progressive multi-system health declines, and clinical dismissal. 10+ Years: The ticking clock of time-dependent polymer oxidation causing materials to harden and micro-fracture. The injury varies and the timeline varies, but the gap in healthcare stays the same: a severe global shortage of specialized surgeons trained in full excision. Medical schools teach clinicians to insert these implants in 30 minutes, but they provide zero training on how to safely dissect a degraded matrix out of nerves and organs. You do not have to navigate these complex health walls in isolation. Find our 12-year public archive and global surgical mesh support/info groups by searching Google: #MeshAwareness #PatientSafety #MedicalDeviceOversight #DareToKnow
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