SickleCell/CP Advocate | President @ueosicklecell| Community Leadership Council @national_pain|#UEOSickleCell #SickleCellLifeOfMemej
Joined September 2012
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- Following2.2K
- Followers2.5K
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Memej99-SickleCellLifeOfMemej retweeted
Sickle cell disease (SCD) causes red blood cells to become C-shaped, blocking blood flow and leading to severe pain & complications. It's inherited, not contagious. Knowledge is power and saves lives sicklecellmidwest.org to learn more.
#UrielEOwens #SickleCellDisease
Memej99-SickleCellLifeOfMemej retweeted
🎉 Happy Birthday to our Matriarch, Virginia Kirkwood!🎂She’s been a fearless advocate, loving caregiver, & the ♥️of Sickle Cell Midwest since it was est in 1981. We honor her dedication, wisdom & unwavering love. Wishing her a day as incredible as she is! 🎂🎈 #HappyBirthday
Hey y’all. I’m still around, just Extra busy & scattered here to there! Obviously Twitter is where I started but we know it’s different now. I’m on BSky as well, still working on posting as much as I used to post here. Also on TikTok (thesicklecelllifeofmemej), IG, FB. Sending ❤️
We’re moving on from x, but we’re still on IG, LinkedIn, & FB. Please follow us on those platforms as we continue our work to ensure healthcare for All. Stay tuned for more exciting updates as we move forward & do even more! Thanks for your support!❤️
diversehealthhub.org/
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Memej99-SickleCellLifeOfMemej retweeted
Shining a Light on Sickle Cell This #RareDiseaseDay2025.SCD is considered a rare disease in other parts of the world, but it's common in Africa, though its impact is far-reaching. We stand with warriors, advocates, & allies in the fight for awareness, education, & better care.
Memej99-SickleCellLifeOfMemej retweeted
✊🏾 This #BlackHistoryMonth, we honor Victoria Gray, a trailblazer in #SickleCell research!
🧬 As the first SCD patient to undergo CRISPR gene-editing therapy, she made history & paved the way for groundbreaking treatments. Her courage brings hope for a cure!
#SickleCellMidwest
Memej99-SickleCellLifeOfMemej retweeted
Join us in celebrating #NationalBloodDonorMonth
this January!🩸Did you know a single blood donation can save up to THREE lives? Be a hero today and give the gift of life. ♥️ #DonateBloodSaveLives
#SickleCellMidwest #SickleCell
#SickleCellAwareness #NBDM
Memej99-SickleCellLifeOfMemej retweeted
Honor Dr. King with action this #MLKDay—a day on, not a day off! Many with #SickleCell rely on #blooddonations to survive. January is #NationalBloodDonorMonth, so give back and make it a #DayOfService: Schedule your donation today! savealifenow.org #MLKDayOfService #UEOScd
🎉We at UEO #SickleCellMidwest @sicklecellmw are thrilled to wish you a fantastic New Year! May 2025 bring you a healthier, happier year filled with incredible chances for growth & boundless Hope for all our #SickleCellWarriors. We stand by you & support you every step of the way
🎉Happy New Year from the Uriel E. Owens Sickle Cell Disease Association of the Midwest!🎉 Here’s to 2025: health, happiness, & hope. Together, we’ll raise awareness & support those living with #sicklecell. Let’s thrive! #SickleCellMidwest #NewYear2025 #HopeAndHealing
Memej99-SickleCellLifeOfMemej retweeted
🎉Happy New Year from the Uriel E. Owens Sickle Cell Disease Association of the Midwest!🎉 Here’s to 2025: health, happiness, & hope. Together, we’ll raise awareness & support those living with #sicklecell. Let’s thrive! #SickleCellMidwest #NewYear2025 #HopeAndHealing
Memej99-SickleCellLifeOfMemej retweeted
Until Next Time
May you love and be loved.
May butterflies greet you.
May you sparkle like moissanite!
May your burdens be few.
May your needs be met.
May joy, kindness, and peace find you.
See you soon! #SpoonieChat
xitter.cf/DawnMGibson/status/185…
Until Next Time
May you love and be loved.
May butterflies greet you.
May you sparkle like moissanite!
May your burdens be few.
May your needs be met.
May joy, kindness, and peace find you.
See you soon! #SpoonieChat
ALT A Monarch Butterfly sits wings open on a butterfly bush with pale purple flowers.
Until Next Time
May you love and be loved.
May butterflies greet you.
May you sparkle like moissanite!
May your burdens be few.
May your needs be met.
May joy, kindness, and peace find you.
See you soon! #SpoonieChat
xitter.cf/DawnMGibson/status/185…
Memej99-SickleCellLifeOfMemej retweeted
A4. #spooniechat
I came to Twitter for the writing community and stumbled upon spoonichat. It was so great for me to find the chronic illness disability community because I always felt really alone. Hearing others stories let me know I wasn't alone and had similar stories!
Memej99-SickleCellLifeOfMemej retweeted
A6: I used to be extremly online, but feel ready for a shift. #SpoonieChat
Q6: How has your relationship with social spaces changed over the last 3 to 5 years? #SpoonieChat
Memej99-SickleCellLifeOfMemej retweeted
A3: because of food allergies & MCAS combined with Hanukkah, we 1) had to create several safe latkes recipes and 2) had to learn to make candy coins from scratch. #SpoonieChat
Q3: Do you have any special traditions for this holiday season?
How have you, your friends, and the community adapted them for increased accessibility over the years? #SpoonieChat
Memej99-SickleCellLifeOfMemej retweeted
A7: I need SFG to tidy up my house, do grocery shopping, and handle the laundry. #SpoonieChat
Q7: It's time for Closing Thoughts, new topics, dreamy moonshots, and Spoonie Fairy Godmother requests. macmillandictionary.com/us/d… #SpoonieChat #Disability #DisCo
Q4: Thinking back to the past, what drew you to #SpoonieChat? And what made you stay?
Memej99-SickleCellLifeOfMemej retweeted
Q4: Thinking back to the past, what drew you to #SpoonieChat? And what made you stay?
