@MaryFiance

VP, PR @MDAorg | #RareDisease, #MuscularDystrophy, #NMD, #ALS, #PR | NYC | Previously @92Y, @jazzdotorg @LincolnCenter #ViewsAreMyOwn

 Manhattan, NY
LinkedIn.com/in/maryfiance
Joined July 2012
  • Tweets4.7K
  • Following2.9K
  • Followers528
154Media
Proud to receive this recognition from @marquiswhoswho for my work in #communications 🎉 24-7pressrelease.com/press-r…

Mary E. Fiance Commended for Contributions to Media Communications and Health Care

June 4, 2025 -- Mary E. Fiance celebrated for more than two decades of professional success

24-7pressrelease.com
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Mary Fiance retweeted
Marc Benioff
@BenioffOct 2
I am just devastated to hear of the passing of Brooke Eby @limpbroozkit. Brooke was an amazing warrior with an attitude so positive it could melt a glacier. All of my thoughts are with her Ohana at this time. May the One who brings Peace bring Peace to All. ❤️
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Mary Fiance retweeted
Sunny Brous@sunnystrongalsSep 10
What does being strong mean to you? Living with ALS has taught me that strength isn't always physical. It's adapting to change, leaning on community, finding joy in everyday moments, and continuing to move forward. @MDAorg
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Mary Fiance retweeted
Eyewitness News
@ABC7NYMay 29
For nearly 10 years, former NFL player, broadcaster, and author Tim Green has lived with ALS, navigating a disease that has changed nearly every aspect of his life while continuing to inspire others facing the same diagnosis. abc7ny.com/post/former-nfl-s…
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Mary Fiance retweeted
Eyewitness News
@ABC7NYMay 29
Tim Green reflects on nearly a decade with ALS ahead of Wings Over Wall Street Gala 7ny.tv/zjsNei
Tim Green reflects on nearly a decade with ALS ahead of Wings Over Wall Street Gala

ALT Tim Green reflects on nearly a decade with ALS ahead of Wings Over Wall Street Gala

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Mary Fiance retweeted
Sunny Brous@sunnystrongalsMay 8
2016 >>> 2026 Same clinic. Same girl. Same hustle. What I remember from that 2016 video was fighting for my life to hold my phone up to record. Today I’m just thankful yall can’t see up my dress 🫣 Shoutout to @limpbroozkit for encouraging me, always. Happy Friday!
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Mary Fiance retweeted
Brooke Eby@limpbroozkitApr 27
Click the link below to donate and support MDA efforts to find treatments bit.ly/BrookeALS #MDAPartner #EndALSwithMDA #EndALS #ALS @MDAorg
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MDA 2026 keynote speaker John Crowley discussed with MD News Today the progress made in neuromuscular disease and the future challenges. buff.ly/7Gn3wrQ #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD
An illustration of a heart muscle and the letters MDA illustrate a graphic for the 2026 Muscular Dystrophy Association (MDA) Clinical & Scientific Conference.

ALT An illustration of a heart muscle and the letters MDA illustrate a graphic for the 2026 Muscular Dystrophy Association (MDA) Clinical & Scientific Conference.

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Consuming more dietary protein may benefit people with various types of muscular dystrophy, according to a recent study. buff.ly/yEyCKdm #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD
The letters MDA are shown in black, with red shadows, against a backdrop of red polka dots on a white background.

ALT The letters MDA are shown in black, with red shadows, against a backdrop of red polka dots on a white background.

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PGN-EDODM1, an experimental DM1 therapy from Pepgen, showed biomarker activity and splicing correction in an early clinical trial. buff.ly/qt0AJSZ #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD
The letters MDA are shown atop an illustration of a strand of DNA.

ALT The letters MDA are shown atop an illustration of a strand of DNA.

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New presentations at MDA 2026 expand the understanding of how Duvyzat may help people with Duchenne muscular dystrophy. buff.ly/o9eztsF #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD
An illustration of a heart muscle and the letters MDA illustrate a graphic for the 2026 Muscular Dystrophy Association (MDA) Clinical & Scientific Conference.

ALT An illustration of a heart muscle and the letters MDA illustrate a graphic for the 2026 Muscular Dystrophy Association (MDA) Clinical & Scientific Conference.

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Dyne Therapeutics' Z-basivarsen led to gains in motor function and cognition for myotonic dystrophy type 1, and is entering a Phase 3 trial. musculardystrophynews.com/ne… #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD
An illustration shows the letters "MDA," for Muscular Dystrophy Association.

ALT An illustration shows the letters "MDA," for Muscular Dystrophy Association.

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Capricor has reapplied for FDA approval of deramiocel, its therapy for DMD-related heart disease, and expects a decision by August 22. buff.ly/vJbEqLB #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD
An illustration for the Muscular Dystrophy Association’s (MDA) Clinical & Scientific Conference shows a person in a wheelchair and the acronym MDA.

ALT An illustration for the Muscular Dystrophy Association’s (MDA) Clinical & Scientific Conference shows a person in a wheelchair and the acronym MDA.

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The evidence for Elevidys is growing, and Sarepta is working to make the DMD treatment widely available, the company's research president said. buff.ly/7asZgkB #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD
The letters MDA are shown atop an illustration of a strand of DNA.

ALT The letters MDA are shown atop an illustration of a strand of DNA.

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Dyne Therapeutics is advancing z-rostudirsen toward approval for DMD after data showed increased dystrophin and early functional trends. buff.ly/2XCPFsk #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD
"MDA" is written in red with a black border.

ALT "MDA" is written in red with a black border.

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The MDA's annual conference highlighted recent breakthroughs and the outlook for future care in the neuromuscular disease community. buff.ly/utBSY3y #musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD
An illustration for an MDA conference story shows the letters MDA amid a scattering of pills.

ALT An illustration for an MDA conference story shows the letters MDA amid a scattering of pills.

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Mary Fiance retweeted
Scholar Rock
@ScholarRockMar 31
We've resubmitted our BLA to the FDA for our investigational, muscle-targeted treatment for SMA! Our progress reaffirms the promise of myostatin biology as we continue to prioritize scientific advancement & the needs of children & adults living with SMA. bit.ly/4sIxX9x
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📢 Big news for the SMA community: The FDA has approved a high-dose SPINRAZA regimen for SMA—another major step forward in care. Developed by @biogen, this milestone builds on decades of MDA-supported research. Progress keeps moving 🔗 mda.org/press-releases/fda-a… #SMA #Research

FDA Approves High Dose Regimen of SPINRAZA® for Spinal Muscular Atrophy, Reflecting Progress Made...

MDA’s research funding for Dr. Adrian Krainer’s research led to the groundbreaking discovery of SPINRAZA®.

mda.org
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Mary Fiance retweeted
Biogen
@biogenMar 30
#News: Today, the FDA approved a new dosing regimen option for our spinal muscular atrophy (SMA) therapy. This approval represents an important step toward expanding options for people living with SMA. Learn more: ow.ly/94tg50YAA9p
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Mary Fiance retweeted
Biogen
@biogenMar 11
#News: At the 2026 #MDAConference, hosted by @MDAorg, we’re presenting new Phase 1b results and details on the Phase 3 clinical development program for an investigational spinal muscular atrophy (SMA) medicine. Read more: ow.ly/g07g50YshGO
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#MDAConference: Sharon Hesterlee, MD, president and CEO of the Muscular Dystrophy Association, opening the @MDAorg’s 2026 Clinical & Scientific Conference in Orlando, FL. #RareDisease #MuscularDystrophy #MedTwitter
The image features a quote from Sharon Hesterlee, President and CEO of the Muscular Dystrophy Association. The text discusses advances in gene therapies and diagnostics by 2026, as well as the growing demands on care centers and insurance. Her photograph is placed within a circular frame. The Rare Disease Advisor logo is in the lower right corner. The hashtag #MDAConference is in the bottom left corner.

ALT The image features a quote from Sharon Hesterlee, President and CEO of the Muscular Dystrophy Association. The text discusses advances in gene therapies and diagnostics by 2026, as well as the growing demands on care centers and insurance. Her photograph is placed within a circular frame. The Rare Disease Advisor logo is in the lower right corner. The hashtag #MDAConference is in the bottom left corner.

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