@MPN_RF

We’re a global research foundation stimulating research in pursuit of new treatments, & eventually a cure, for PV, ET, & MF. #mpnsm

 Chicago, IL
mpnresearchfoundation.org/
Joined October 2010
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853Media
Blood Cancer Awareness Month ends in 48 hours, but the need for MPN research continues. More than 300,000 people in the U.S. live with myeloproliferative neoplasms (#MPNs), yet these rare blood cancers remain underrecognized. Support MPN research: mpnresearchfoundation.org/do…
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Congratulations to the authors and the Progression Research Network on this publication. We are proud to see this collaborative effort contribute to the growing body of research focused on MPN disease progression.
Raajit Rampal, M.D.Ph.D.@RaajitRampal
Sep 28
Why do some pts with MPNs stay stable for decades while others progress? @MPN_RF launched the MPN Progression Research Network in 2020 to address this pressing issue. We now present a blueprint for dealing with progression from these efforts. (nature.com/articles/s41375-0…).A thread🧵
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This #BloodCancerAwarenessMonth, we thank our global partners, patient-led groups, research collaborators, and advocacy allies working to advance MPN research and support the MPN community.  Support MPN research: mpnresearchfoundation.org/do…  #MPN #CancerResearch
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Saturday is the 1st anniversary of MPN PROGRESSion Registry! THANK YOU to our 700+ participants; the clinicians, researchers & partners helping spread the word; and sponsors for making this study possible. We're just getting started! goto.mpnresearchfoundation.o…
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1/4 An MPN diagnosis brings a new vocabulary. A: Allele burden estimates the proportion of tested genetic material carrying a mutation.
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3/4 C: A CBC measures blood cells.
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4/4 What term should we explain next? #MPNEducation
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The MPN Patient Bill of Rights outlines key principles for quality care, informed decision-making, and patient advocacy.  Save it. Share it. Help raise awareness this #BloodCancerAwarenessMonth.  #Myelofibrosis #PolycythemiaVera #EssentialThrombocythemia
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1/4  MPNs — including ET, PV and MF — are blood cancers in which the bone marrow produces abnormal numbers of blood cells. They typically follow a chronic course, although disease behavior and progression vary. #MPNAwarenessDay
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3/4  For some eligible people with myelofibrosis, a donor stem cell transplant may offer the possibility of a cure. But it carries substantial risks and is not right for everyone. Better and more accessible treatment options are urgently needed.
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4/4  To everyone who shared a story, raised awareness or supported research this #MPNAwarenessDay: thank you. Every action helps move MPN research forward.  Support the search for better treatments and cures -  mpnresearchfoundation.org/do…

Donate to MPN research — MPN Research Foundation – Research Foundation funding MPN Research

mpnresearchfoundation.org
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The FDA has approved BESREMi® (ropeginterferon alfa-2b) for adults with essential thrombocythemia (#ET), marking the first new FDA-approved treatment option for ET in nearly 30 years!  Read more: fda.gov/drugs/news-events-hu…
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(1/4)  This #MPNAwarenessDay, we’re proud to announce an investment of more than $2 million in 8 new, innovative research projects through the 2026 MPN Challenge™
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3/4 Congratulations to:  Stefan Constantinescu, MD, PhD  John Crispino, PhD  Ricardo Fernandes, DPhil  Angela Fleischman, MD  Gregory Goldgof, MD, PhD  Peng Ji, MD, PhD  Jeanne Palmer, MD  Daniel Royston, MBChB, BSc, DPhil
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(4/4)  Their projects tackle major challenges in MPN research through disease biology, therapeutic discovery, translational science, biomarkers, and artificial intelligence.  Explore the projects and their potential patient impact:  mpnresearchfoundation.org/mp…
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Blood tests show what’s happening in your body, but don’t always show how an MPN affects daily life. The EORTC QLQ-C30 helps you share your physical, emotional, and quality-of-life experiences. Join the MPN PROGRESSion Registry® - goto.mpnresearchfoundation.o…
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Reliable MPN information empowers patients to ask questions, understand their options and take a more active role in their care.  One year ago, we launched You and MPN, a free resource for people affected by ET, PV and MF: YouandMPN.com #MPNAwarenessDay #MPN
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