Leicestershire & Rutland branch of the Motor Neurone Disease Association.
Leicestershire
Joined September 2011
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If you or someone you live with has MND you maybe eligible for @stwater water Priority Scheme check it out stwater.co.uk/help-and-conta…
Shout out to Tracey who is walking 100 miles for @mndassoc and @LOROSHospice. We salute you and all supporters for your efforts and fundraising we couldn’t do it without you. 🧡
We want to say a huge thank you to all who came to our 40th celebrations on Sunday. It was a lovely to see so many people come to the Strawberry Tea. Cheers to more years until we find a cure to eradicate MND. 🧡
We are excited to announce a very important diary date. Everybody welcome. It’s our 40th birthday so we thought we’d celebrate with a Strawberry Tea! 🍓🍰☕️🧡
We want to give a hug shout out to Carl who will be walking from Loughborough to Skegness for @LOROSHospice and @mndassoc 🧡
MNDA Leics & Rutland retweeted
Are you an early‑career MND researcher?
Applications are now open for our annual MND EnCouRage event — apply by 30 March for the chance to share your work with the MND community, fellow researchers and leading professionals.
📍 Loughborough
📆 14-15 July
MNDA Leics & Rutland retweeted
Today we’re introducing a new support fund to help people who are having to travel out of their area to receive tofersen – a life-changing drug for people with SOD1 motor neurone disease (MND).
Read more. 🔗
mndassociation.org/media/lat…
We want to give a huge shout out of appreciation to Rufus Oliver, aged 9 from Clarendon Park. Over Christmas he made some Christmas baubles and sold them to family and friends spliting all the money received between his rugby club Oadby Wyggs and £137.98 for us thank you Rufus 🧡
MNDA Leics & Rutland retweeted
ABSOLUTELY UNREAL 🤩
Kev, Chris, Dave and the team have just hit £1 MILLION raised for MND charities during their 7IN7: Together fundraising challenge.
To everyone who has supported them, cheered them on, donated, shared social media posts and helped raise this amazing amount of money and awareness for the fight against motor neurone disease: thank you. 🧡
If you’d like to donate, head to ➡️ mndassoc.org/7in7together
MNDA Leics & Rutland retweeted
“Everyone with SOD1 MND must receive Tofersen and this impasse is unacceptable. This small amount of extra resource, for something that could be the difference between life and death, allows those affected more time with their loved ones.
“Tofersen is an incredible new treatment and people like Lillia do not have time to wait. We are demanding the government to step in and unblock the impasse. The barriers to access need to be broken down immediately.”
- Alex Massey, Head of Campaigning, Policy and Public Affairs at the MND Association.
#MND
bbc.co.uk/news/articles/c3r7…
Such a lovely afternoon at our Xmas event. We had a brilliant time and really enjoyed seeing some new faces. Thank you to all those who came. Also thank you to Councillor Valerie Cooper Mayor of Lutterworth, @AlbertoCostaMP. Dare we say it have a very happy Xmas. 🎄🎅💙🧡🤍
We’re all ready for our Christmas event! 12-3pm at the Wycliffe Rooms, Lutterworth. All welcome. 💙🧡🤍
It’s today! Come and get in the festive spirit, catch up with friends and have some fun! #mnda #mnd #leicestermnda #leicestershiremnda #rutlandmnda
MNDA Leics & Rutland retweeted
'He's a man of his word'
Kevin Sinfield told #BBCBreakfast it was 'really, really special' that Prince William followed up on his promise to his friend and Leeds Rhinos team mate Rob Burrow to open the Centre for Motor Neurone Disease named after the late rugby league legend
bbc.co.uk/news/articles/c364…
MNDA Leics & Rutland retweeted
A huge thank you to HRH Prince William for keeping his promise to Rob to come back to Leeds and officially open the Rob Burrow Centre for MND, such a lovely occasion for the Burrow family to share with @KensingtonRoyal
MNDA Leics & Rutland retweeted
Kevin Sinfield's fundraising has contributed millions towards the newly opened Rob Burrow Centre for Motor Neurone Disease.
Find out more: bbc.in/47Vjij9