Education & Research of Children's Genetic Diseases of the Brain
South Florida
Joined December 2014
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Thank you to the Boca Newspaper for featuring our gala. bocanewspaper.com/matthew-fo…
What a wonderful educational program at the Nova Southeastern University Ron and Kathy Assaf College of Nursing. Oralea Dunbar Marquardt, Monica Melser-Gettleman, and Kevin Romer represented MFRF presenting how... facebook.com/259698835770/po…
Our post-even press release is now available! Please read on!
prlog.org/12764524-the-mathe… prlog.org/12764524-the-mathe…
This year's Gala celebrated over 15 years of research led by the Mathew Forbes Romer Foundation and its many partners culminating with the #GeneTherapy treatment for Tay-Sachs Disease being in clinical trials. The foundation honored... youtube.com/watch?v=n84FUa7E…
Our "Celebration of Gene Therapy in Florida Roundtable" took place last Sunday and it was an opportunity to continue our great momentum of the year!
Thank to our hosts Randy Blakely, PhD, Executive... facebook.com/MathewForbesRom…
Our special celebration of gene therapy begins!! 🧬 #foundation #southflorida #genetherapy — attending 21st Anniversary Sweetness and Laughter & See the Light Awards
Great news from Axovant Sciences, Inc.!
"AXOVANT ANNOUNCES CLINICAL UPDATE FROM FIRST TAY-SACHS DISEASE PATIENT DOSED WITH AXO-AAV-GM2 GENE THERAPY" #GeneTherapy #taysachs
apnews.com/Globe%20Newswire/… apnews.com/Globe%20Newswire/…
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In case you missed it, here's the full WPTV NBC segment featuring Kevin Romer talking about #GeneTherapy, the Foundation and our upcoming gala! Please share around!!
wptv.com/about-us/as-seen-on… wptv.com/about-us/as-seen-on…
We are throwing it back to five years ago....and watching our MFR Foundation 15th Anniversary video. We can't promise you won't cry...but we can promise you will be inspired to attend our gala, and bring your friends! Your support... youtube.com/watch?v=Ztwo5c-Q…
Early Bird Pricing ends this week! Be sure to purchase your event tickets today!
mfrfoundation.org/early-bird…
Be sure to pick up a copy of The Palm Beach Post today!! The Romer family is featured for their personal story and efforts, as are the exciting new developments... palmbeachpost.com/news/20190…
Our press release has gone out!!! Exciting news happening in 2019. Please spread the word!!!
prlog.org/12751876-mathew-fo… prlog.org/12751876-mathew-fo…
We spot Kevin Romer! As seen in the Florida Jewish Journal. facebook.com/MathewForbesRom…
We are very excited to announce our continued progress toward clinical trials for Tay-Sachs disease. As a founding partner of the... umassmed.edu/news/news-archi…
Thank you to the Boca Newspaper for this feature on Kevin Romer, president of the Mathew Forbes Romer Foundation. Kevin answers five questions about the Romer family, the Foundation, its accomplishments and goals for the future! #taysachs #NTSAD... bocanewspaper.com/5-question…
Board Members Pablo Meles and Kevin Romer were thrilled to be at the Dedication of the Ron and Kathy Assaf College of Nursing at Nova Southeastern University to celebrate the Mathew Forbes Romer... facebook.com/MathewForbesRom…
