she/her | life on pause due to severe ME & co (since 2019)♿️ land back! 🇵🇸🇨🇩🇸🇩🏳️‍⚧️

Joined December 2022
👻ghost of submersibles ablaze🌊 retweeted
Anyone anywhere can sign. Let’s try get this across the line. If we can get it done in Nz, maybe other countries will follow our lead Myself and others with severe illness like me/CFS & LC put everything we have into this. All we ask is you sign and share our.actionstation.org.nz/pet…
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I can’t believe I’ve received almost 500 dollars in only a few hours! There aren’t words for how grateful I am for each and every one of you. Please continue to share/donate 🫂💗
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I don’t know how I will survive in jail with severe ME. I am facing up to 5 years. I’m extremely scared and can’t think about anything else. Last time I had a very expensive lawyer. This time I can’t afford it. I just wanted to share with everyone, if i randomly fall off the map
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I’m probably in jail. I know how stupid I am, no one needs to tell me. I don’t remember a lot of it. I was naked and screaming apparently. The psychosis was caused by gabapentin withdrawal, but the hospital tox screen showed that I had a lot in my system as that day I was tryi-
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Megan has been in the hospital since Nov. 8. Will respond next week if she gets out.
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How would you feel if a family member said they were going to come wake you up at a certain time, when you have severe ME and you just spent a week in the hospital where you hardly slept or ate? I’m not going to talk to my brother anymore after this. He did something similar at-
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the ER. I asked for him to take me home and he kept forcing me to stay there for hours. I insisted I needed to go back to my bed because I was severely overstimulated/beyond exhausted, but he forced me to wait. We were there for several hours. I don’t feel safe around him anymore
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He also acts dismissive about my ME, but it’s so subtle I never could tell for sure what he thought. Now I’m convinced he doesn’t take my ME seriously at all. “This stuff doesn’t work on me” what?? I guess he thinks I’m being manipulative? Does he think I manipulate my aunt?
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The hospital took my lip rings out 😫😭
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I know they saved my life and all but at what cost 😭😭😭
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What if you can’t do any of your hobbies due to your illness? Sit the fuck down, Autumn.
If you have a mental illness or a disability and you display that on your bio go and delete that right now. Replace it with something like a hobby or a profession or something fun you like to do. If you center your identity around your illness your psyche will do insane things to try to sustain the illness. Become somebody defined by what you enjoy and love, not by what causes you pain.
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👻ghost of submersibles ablaze🌊 retweeted
Hey everyone We need to get a fellow disabled friend out of shadowban purgatory. Being seen can save lives. Please share comment engage with their posts Follow ur not already! Let’s go fam
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I’ve been doing rly strange things in my sleep recently (haven’t been sleeping well with CPAP) yesterday I woke up while typing something in my med diary. I remember feeling v confused about typing “Whitney” @DafoeWhitney hope you’re doing okay! Was thinking of you apparently 😅
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I’m not as badly crashed as I thought I would be. All my lymph nodes swelled like they normally do in PEM but then nothing happened? How wild would it be if the gabapentin withdrawal cured my ME lmao. Probably cooked the virus while it was burning my nerves from the inside out.
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i just ate 2 ice cream cones. i wonder what kind of wild antics i’ll get into next
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And it makes it infinitely harder/impossible to get medical treatment for these things. I’ve already decided if I get cancer I’m just gonna let it take me bc I can’t get regular cancer screenings/getting regular treatments for it would be unbearable
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👻ghost of submersibles ablaze🌊 retweeted
Don’t stop pushing!! Let’s get this goal met!! It was due YESTERDAY
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