Lynn Murray (@LynnAMurray) header
Lynn Murray (@LynnAMurray) profile picture

live each day as your last #dontscreenusout won't count chromosomes

Edinburgh, Scotland
Joined October 2012
Photo by Lynn Murray (@LynnAMurray)Photo by Lynn Murray (@LynnAMurray)Photo by Lynn Murray (@LynnAMurray)Photo by Lynn Murray (@LynnAMurray)Photo by Lynn Murray (@LynnAMurray)Photo by Lynn Murray (@LynnAMurray)Photo by Lynn Murray (@LynnAMurray)Photo by Lynn Murray (@LynnAMurray)Photo by Lynn Murray (@LynnAMurray)Photo by Lynn Murray (@LynnAMurray)
Jenni was told baby had low chance of having Down's syndrome. Yet after birth, her concerns were dismissed & her request about receiving the diagnosis was ignored - illustrating urgent need to assess wider impacts of antenatal screening @YvetteCooperMP 🎧 youtube.com/watch?v=7yAtH93x…
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Thank you Ben Ben, one of our Advisory Group members, met his Local Authority Social Worker team today to talk about the Down Syndrome Act and why the guidance matters. 📮 You can take action too get our Easy Read MP pack from our website. #FourYearsStillWaiting #ActIntoAction
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👏🏻👏🏻👏🏻
A project to uplift black children with Down's syndrome has been nominated for a BBC Make A Difference award. The co-founders each have children with special educational needs and disabilities, and have been running the charity for two years. The Black Child Down Syndrome project, helps families build confidence and challenges stereotypes to create an inclusive future for their children to be valued and celebrated. #London #DownSyndrome #Community #BBCMakeaDifferenceAward
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“Believe me, Anne is my joy & strength.” Great piece by Dominic Lawson on Charles de Gaulle & daughter Anne & his own daughter Domenica, given a bleak prognosis after a Down’s syndrome diagnosis. Two generations, one reminder: medical diagnosis isn’t everything telegraph.co.uk/news/2026/09…
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Lynn Murray retweeted
Please watch these videos linked below, which contain a wealth of new information on the research findings of the KIND research group at Kingston University London, about Assisted Dying in relation to people with intellectual disabilities. The research findings have just been
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Lynn Murray retweeted
For the first time in a research project, people with intellectual disabilities have been consulted on what they think about the assisted dying bill. Please play the video to hear some of their feedback & ideas around the Bill. You can find more of the surprising (& alarming)
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We're ready to deliver our letter to Downing Street! Four years too long! #ActintoAction These voices deserve to be heard. We have played our part. Now we are asking Government to play theirs: finalise and publish the statutory guidance and turn the Act into action.
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Webinar invite @DSRF_UK TOMORROW! 1pm ‘Assisted Dying & People with an Intellectual Disability.’ AD would affect us all, but views of people with intellectual disabilities are generally unheard. So we’ll hear views of people with intellectual disabilities on Assisted Dying.
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Parents preparing to welcome a baby with Down’s syndrome deserve support. Rachel: one of the main options I was expected to consider was ending the pregnancy. Today: Right now I cannot wait to meet her. We want everyone to get the support & balanced information they need. thetimes.com/life-style/pare…
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With a number of players moving on following our treble-winning 2025-26 @ECFA01 season, we are now looking for new players to join our squad for the upcoming season. Games are Saturday morning and of a strong amateur standard. Please message this account if interested.
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Congratulations to Dr George Webster! 🎉 Positive representation changes lives. Every story that celebrates the achievements and value of people with Down’s syndrome helps challenge outdated assumptions and build a more inclusive society. 💙 bbc.co.uk/news/articles/cwyd…
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Welcome to filmmaker, actor, @BAFTA Breakthrough recipient @ottobaxter as NDSPG Ambassador. His work challenges stereotypes & expands representation for people with Down syndrome. “Looking forward to letting people know about the brilliant work we do with NDSPG”. @tommyjessop
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Player of the Match against East Fife... Anna Murray & Caitlin McFarlane! Well done girls, great performance & goals! 💙
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If @CarlsbergUK did Thursdays 😍 Well done @AnnaMurray90 & to @FalkirkWomen_ on gaining promotion to SWPL2 ⚽️
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Treble winners! ⚽️
Result: White Lightning 1 - 4 St. Mary’s Moffat ⚽️ Roberts ⚽️ Pannwitz ⚽️ Rachel Murray gets the celebrations started - WE BUILT THIS CITY 🏆
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First woman in the UK to run a marathon? Go Charlotte 🏃‍♂️
My eldest daughter Charlotte, who happens to have Down Syndrome, is running the London Marathon for a local Down Syndrome charity justgiving.com/page/charlott… youtube.com/watch?app=deskto… Shows us what can be achieved with high aspirations, love and support! @DSAInfo @dontscreenusout
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Dominant performance today to secure the @ECFA01 league 🏆 6-2 win against the League’s 2nd best side CJ ⚽️⚽️⚽️ McGarrity ⚽️⚽️ Gillespie ⚽️ We now have 2-weeks off then we’ll be back for the remaining league games and a huge semi-final vs Murrayburn 🔥
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⚠️ ACT NOW: Don't miss your opportunity to impact change! Guidance for the #DownSyndromeAct should be shaped by those with Down syndrome. Today is the final day to speak up! The consultation closes tomorrow. Share your thoughts: ndspg.org/down-syndrome-guid… #InclusionMatters
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Dominant performance today to secure the @ECFA01 league 🏆 6-2 win against the League’s 2nd best side CJ ⚽️⚽️⚽️ McGarrity ⚽️⚽️ Gillespie ⚽️ We now have 2-weeks off then we’ll be back for the remaining league games and a huge semi-final vs Murrayburn 🔥
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