Grassroots #SciComm + #PatientAdvocacy + #ConsumerProtection Because patients deserve better No AI on this account
Old Lyme, CT
Joined December 2017
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The wonderful Brooke Eby has ALS and is sick of people trying to recruit her into the chronic Lyme scam.
The chronic Lyme cult aggressively targets people with ALS, MS, Parkinson's, and Alzheimer's. None of these have any connection to real #Lyme disease.
A chiropractor who falsely claims germs aren't real is attacking the quacks who falsely claim Lyme causes everything 🍿🍿
LymeScience retweeted
Don’t use glutathione injections made with dietary supplement-grade glutathione. CDC is investigating a multistate outbreak associated with compounded injectable glutathione. Ask: Was this product made with ingredients safe for injections? Track the latest outbreak information: cdc.gov/healthcare-associate…
LymeScience retweeted
The whole “died with” vs “died from” covid has been misrepresented and absolutely doesn’t apply to measles. My 2 cents for @npratc @mgodoyh
npr.org/2026/10/07/nx-s1-598…
LymeScience retweeted
Inside the Lyme Disease industrial complex...where flawed tests sold by private companies lead to questionable diagnoses and harmful treatments
My latest for @unherd with @mgtmccartney
LymeScience retweeted
Secretary Robert F. Kennedy, Jr. and the CDC have stopped recommending seven vaccines for children, including vaccines that protect against hepatitis B, RSV, and meningitis.
These vaccines have kept millions of children out of the hospital and saved countless lives.
I'm suing.
LymeScience retweeted
Yesterday’s @nytimes featured an article about a man with terminal lung cancer who was enticed to chase cures that didn’t exist. He died before the pandemic. Will MAHA turbocharge this sort of quackery in the US? sciencebasedmedicine.org/alt…
LymeScience retweeted
Barbara O'Neill is coming to the UK 🇬🇧
She is a dangerous quack with bizarre health advice that can get people killed
Her views include ;
Cancer is a fungus that baking soda can cure
Raw goat’s milk can substitute breast milk for babies
There are no safe vaccines
🤡
LymeScience retweeted
Bizarrely, there's been almost no discussion about the real medical debate underlying the COVID hullabaloo at the bar in Western Massachusetts.
Stated plainly: some researchers made extraordinary claims about the sequelae of mild respiratory infections from SARS-CoV-2, which ...
Last times the CDC has posted on social media about measles:
September 7 on LinkedIn
September 4 on Facebook & Instagram
August 27 on X [Regarding refusing to count Pennsylvania's measles-associated deaths]
LymeScience retweeted
Infectious Disease News September 22, 2026: Measles, Influenza, COVID, Lyme, and more
LymeScience retweeted
🔹 Vaccines don’t cause autism
🔹 Acetaminophen use in pregnancy does not autism
🔹 COVID-19 vaccines are safe in pregnancy.
🔹 Lyme disease and RSV did not originate from lab research
🔹 Children do not receive “72 jabs.”
🔹 Splitting MMR is not safer
Science matters. Evidence matters. Public health policy should reflect both.
LymeScience retweeted
N.S. pharmacists cut tick bite ER visits in half with prescriptions to prevent Lyme: study ctvnews.ca/atlantic/nova-sco…
Fake experts and conspiracy theories are typically weaponized, whether it's attributing non-specific symptoms to Lyme, bartonella, vaccines, MCAS, mold, EMFs, gluten, or another fad diagnosis.
Medscape "teaches the controversy" of Mast Cell Activation Syndrome (MCAS) w/ 2 long-time quacks (Theoharis Theoharides & Lawrence Afrin), along with two mainstream allergy/immunology experts. Afrin made MCAS an example of the "One True Cause of All Disease" pseudoscience trope.
Experts warn against MCAS overdiagnosis, and give Afrin the side eye.
The diagnostic criteria spread by Tania Dempsey & Lawrence Afrin are unacceptably non-specific.
The outcome is unnecessary worries:
doi.org/10.1111/all.15304
doi.org/10.1016/j.jaci.2019.…
doi.org/10.1111/all.70344
ALT Conditions or clinical presentations that are not diagnostic of MCAS Some publications and lay press information have greatly broadened the clinical criteria for MCAS. Nonvalidated laboratory tests have been used to correlate unrelated symptoms with nonvalidated laboratory findings to make a diagnosis of MCAS. This has caused confusion for patients and physicians alike. The misconceptions about diagnosing MCAS have affected many patients and impaired their quality of life. More concerning, however, is using the diagnosis of MCAS erroneously and missing a truly treatable underlying condition not related to MCs.
Well that explains the poor journalism:
xitter.cf/LymeScience/status/210…
Sigh- It turns out that the Medscape writer Brittany Vargas is a reiki master who used to work for a magazine dedicated to integrative medicine quackery.
So it's not surprising that she'd hype integrative medicine quacks Theoharis Theoharides and Lawrence Afrin.
Not the first time a Medscape writer inappropriately hyped quackery advocates.
Christine Kilgore wrote credulous articles for Medscape about antics of the chronic #Lyme cult (where Medical Child Abuse runs rampant).
Kilgore's children have received "chronic Lyme" diagnoses.