Lupus Puerto Rico 🇵🇷 (@LupusPR) header
Lupus Puerto Rico 🇵🇷 (@LupusPR) profile picture

Red de apoyo a pacientes de #lupus en Puerto Rico. #LupusPR

San Juan, PR
Joined December 2013
Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)Photo by Lupus Puerto Rico 🇵🇷 (@LupusPR)
🟣 Gracias al Senador Juan Oscar Morales y al @SenadoPR . Mayo: Mes de educar sobre el lupus. ¡QUE TU VOZ SE ESCUCHE!
1
158
Lupus Puerto Rico 🇵🇷 retweeted
Let's make lupus visible. ACR is putting on purple to raise awareness on World Lupus Day. ACR Fights Lupus! #ACRFightsLupus #MakeLupusVisible #WorldLupusDay #PutOnPurple
5
1
6
409
Lupus Awareness Month starts today! Get ready to support millions impacted by lupus on #WorldLupusDay, May 10! Wear purple, share facts, and more. Learn more ways to get involved on World Lupus Day: worldlupusfederation.org/202…
11
20
163
Lupus Puerto Rico 🇵🇷 retweeted
Today marks the first day of #LupusAwarenessMonth! This month celebrates the #lupuscommunity and progress being made in #lupusclinicalresearch.  Today’s discussions at the #LupusTherapeutics #LuCINCommunity Meeting, centered on the theme Integrating Clinical Trials into Day-to-Day Clinical Care, provide hope for the future of #lupus treatment and clinical research. Participation in clinical research and increasing access to clinical trials are critical to the development of more effective therapies in #lupus. Learn more at: bit.ly/4sH9H7J #HopeInActionTheFutureOfLupus
2
8
188
🟣 ¡Que tu voz se escuche! 🗣️📲 @WorldLupusFed 🗣️
1
1
25
🟣 Muchísimas gracias a @Eramospares y @EDUCACIONPR por su compromiso y solidaridad. 🙏✨
1
3
52
Lupus Puerto Rico 🇵🇷 retweeted
It’s happening! 🎇 The #ACR26 Call for Abstracts opens TOMORROW, April 14. Submit your best #rheum research for peer review—are you ready to share your science? Details → acr.tw/3C3kv7B
3
4
494
Lupus Puerto Rico 🇵🇷 retweeted
Do you know a community #rheum who has significantly advanced the practice of #rheum w/innovations that improve the care of patients w/#rheum disease? ⚕️ If yes, consider nominating them for the ACR Innovation in Clinical Care Award by April 1. Details → acr.tw/3S9pQTS
2
2
571
✍️Tarea para hoy: 🖨️Imprimir y colocar el afiche en los “bulletin board” de escuelas, trabajos, organizaciones. 📲 Compartir en chats y grupos relacionados a la salud. ¡Mayo es mes de educar sobre el lupus!
15
Lupus Puerto Rico 🇵🇷 retweeted
Increasing diversity in #lupus research is key to advancing clinical trials. At #ACR25, LFA shared new Research Accelerated by You (RAY) Registry findings on boosting participation & outreach—especially in Black/African American communities. Read more: buff.ly/AEvlrq8
3
9
479
Lupus Puerto Rico 🇵🇷 retweeted
One of the most awaited sessions at #ACR25 ! 💜 Dr. Lisa Sammaritano unveiled key #Lupus updates 👇 ✨ HCQ for all 💪 Taper steroids early 🧠 Early IS — control inflammation, minimize GC toxicity 🤝 Shared decisions matter #ACRambassador @ACRheum
1
44
1
127
5,731
Lupus Puerto Rico 🇵🇷 retweeted
Patients’ voices matter in #lupus drug development. On 10/26 at 10:30 AM CT in the Poster Hall, learn how the Lupus Accelerating Breakthroughs Consortium (#Lupus ABC)—a public-private partnership convened by the Lupus Research Alliance with the FDA and the lupus community— explored better integration of patient-reported outcomes (PROs) in clinical trials to ensure perspectives of people with lupus are fully reflected. #ACR25 #LupusResearch
1
1
312
Lupus Puerto Rico 🇵🇷 retweeted
Honoured to share our progress and next steps for the revised organ damage index (SDI) for #lupus at the 2025 Autumn #SLICC group meeting during @ACR2025
1
4
188
Lupus Puerto Rico 🇵🇷 retweeted
Walking through a patient case to discuss the ACR Lupus Nephritis guidelines.. including what to consider for complete or partial renal response! #ACR25 #ACRAmbassador #rheumx
2
2
3
146
Lupus Puerto Rico 🇵🇷 retweeted
Panelists will share data from preliminary studies of CAR-T-cell therapy treatment for lupus and review potential future therapies on Sunday afternoon at #ACR25. 🔗 Learn more → acr.tw/47Ee8rH
1
4
847
Lupus Puerto Rico 🇵🇷 retweeted
Excelente resumen de @DrGomezPuerta de los casos publicados hasta la fecha de enfermedades reumatológicas tratadas con CAR-T 🔬🧫🧬 #ACR25
17
1
71
3,602
🇵🇷 PRoud 👏
Congratulations to Carlos J. Lozada, MD, recipient of the 2025 Distinguished Service Award! @umiamimedicine @JacksonHealth #ACR25
14
Lupus Puerto Rico 🇵🇷 retweeted
👏 Congrats to Simone Stein, winner of the Alpha Science Case Report Award for her report on a novel SLE treatment using SERMs in naturopathic care! Thank you @AlphaScienceLabs for your support! #CCNM #AlphaScienceLabs #NaturopathicMedicine #SLE #CaseReport #StudentSuccess
3
4
98