@LuchaEla

We fight for: • Early access to treatments. • Visibility and social awareness. • We support research.

Joined November 2019
  • Tweets4K
  • Following235
  • Followers454
298Media
Join the international campaign of the "Lucha Mundial Contra la ELA-World Fight Against ALS" and #RaiseYourVoiceForALS #MakeitCount #treatmentsforALS @LuchaEla
1
13
1
14
WORLD FIGHT AGAINST ALS retweeted
Juntos Contra La ELA@JuntosContraELA21 Jun 2021
Hoy, 21 de Junio, #DiaMundialContralaELA nuestro cofundador y afectado de ELA, Antonio Madero, nos lee un manifiesto que él mismo ha escrito con el fin de dar a conocer esta horrible enfermedad. Ayúdanos a compartir y darle visibilidad. ¡Necesitamos que nos escuchen!
4
62
3
60
From @LuchaEla we have carried out 3 initiatives in the European Union in less than a month. 3. We have delivered a letter signed by 18 MEPs to the European Union Health Commission
8
9
WORLD FIGHT AGAINST ALS retweeted
Idoia Villanueva@IdoiaVR21 Jun 2021
Hoy, en el #DiaMundialContralaELA, reiteramos la necesidad de que la Unión Europea cree una línea de investigación específica para combatirla. Es la tercera enfermedad neurodegenerativa más común. Por eso, más inversión y más compromiso con las familias. europa.podemos.info/noticias…
3
80
6
135
From @LuchaEla we have carried out 3 initiatives in the European Union in less than a month. 2. Question to the European Commission, MEP Idoia Villanueva has supported the initiative by urging the European Commission to create a specific line of investigation.
16
17
Desde @LuchaEla hemos realizado 3 iniciativas en la Unión Europea en menos de un mes. 2.Pregunta a la Comisión Europea,la eurodiputada Idoia Villanueva ha respaldado la iniciativa instando a la Comisión Europea a crear una línea de investigación específica
1
15
17
Today is a great day for ALS in Europe!! From the #WORLDFIGHTAGAINSTALS @LuchaEla we will carry out our third (but not the last action in the European Parliament) 1. Registered petition 0555-2021 and that has received the support of different MEPs, europa.podemos.info/noticias…
11
11
Hoy es un gran día para ALS en Europa!! Desde la WORLD FIGHT AGAINST ALS realizaremos nuestra tercera (pero no última acción en el Parlamento Europeo) 1. Petición registrada 0555-2021 y que ha recibido el apoyo de diferentes eurodiputados, europa.podemos.info/noticias…
1
16
23
#RaiseYourVoiceForALS #WorldFightAgainstALS #IamALS #ApelaPortugal #ALS #ELA #MND #SLA
11
13
#RaiseYourVoiceForALS #WorldFightAgainstALS #ApelaPortugal #IamALS #ALS #ELA #MND #SLA
18
16
Join the WORLD FIGTH AGAINST ALS campaign and RAISE YOUR VOICE FOR ALS. From Portugal we get this video in sign language!!!💪💪💪🌍🌍🌍 #WorldFightAgainstALS #RaiseYourVoiceForALS #IamALS #ApelaPortugal
15
18
WORLD FIGHT AGAINST ALS retweeted
I AM ALS@iamalsorg16 Jun 2021
Take a moment to read this tweet and every single reply. #ALSDads are incredible. #IAMALSDads
Brian Wallach
@bsw502016 Jun 2021
Last night’s #MyDad tweet got me thinking about my daughters (3 and 5) who have only known me with ALS. It has meant that I have a special relationship with them—one that is challenging and yet so beautiful. So if you are, have or have had an ALS dad, share a story. #IamALSdad
2
20
WORLD FIGHT AGAINST ALS retweeted
Amylyx
@AmylyxPharma15 Jun 2021
We continue to make progress with our global clinical & regulatory plans. We are on track to submit an MAA for AMX0035 to the European Medicines Agency CHMP by end of 2021 and initiate a Phase 3 clinical trial in Europe and the U.S. by Q3 2021.
3
6
1
40
Can you help me with this collection of signatures to have EARLY ACCESS to #TreatmentsforALS? It is aimed at drug regulatory agencies (FDA-EMA) and pharmaceutical companies (Biogen, Amylix, Brainstorm ...) We need the same flexibility as Covid! change.org/p/european-commis…

Firma la petición

Acceso temprano a tratamientos para la ELA (Early access to treatments for ALS)

change.org
17
1
21
cnio.es/en/news/publications…

CNIO researchers discover the cause of neuronal death in a large proportion of familial ALS patients

In Amyotrophic Lateral Sclerosis (ALS), the progressive death of neurons that control body movement leads to paralysis of muscles in the limbs and gradually of the whole body, which ultimately makes...

cnio.es
8
8
WORLD FIGHT AGAINST ALS retweeted
No More Excuses ALS Watchdogs!
@als_now10 May 2021
(4/4) I say this to ALS' top research doctors; you don't "need more research to confirm" (yet again). You need to TREAT PEOPLE WITH ALS. We are in a "standoff" with humanity, and no doctor wants to say it first. Which says it ALL @WSJopinion #endals #ALS regenerativemedicineblog.may…

Science Saturday: How regenerative medicine is advancing ALS research - Mayo Clinic News Network

May is ALS Awareness Month, a time to reflect on the role of regenerative medicine research in advancing understanding and treatment of  amyotrophic lateral sclerosis (ALS) or Lou Gehrig's disease....

newsnetwork.mayoclinic.org
12
11
WORLD FIGHT AGAINST ALS retweeted
No More Excuses ALS Watchdogs!
@als_now10 May 2021
(3/4) Only #ALSHEARINGS can deliver #ALS patients' urgency and the FACTS directly to Congress in detail, and what kind of "awareness" is needed to FIX ALS' broken trial system, where good options were said to "fail", all because of a simple 12 question survey (that doesn't work!)
1
12
14
WORLD FIGHT AGAINST ALS retweeted
No More Excuses ALS Watchdogs!
@als_now10 May 2021
(2/4) Can you imagine the impact of even one therapy that halts #ALS in ~30% of newly dx patients? How about three? Well, FOUR exist that have done so- and NONE are accessible. Still don't think the system is broken? It is. ALS is stuck. The @US_FDA has FAILED on #ALS #ENDALS
1
9
11
WORLD FIGHT AGAINST ALS retweeted
No More Excuses ALS Watchdogs!
@als_now10 May 2021
(1/4) PALS, FYI: highly respected Mayo doctors have confirmed the obvious. The results from Mayo' MSC trial are about the same as NurOwn's. And, results of Kadimastem are similar to both. ALS is making a tragic mistake. Fact: ~30% of patients "stabilize". That means HALTED ALS!
1
22
19
WORLD FIGHT AGAINST ALS retweeted
No More Excuses ALS Watchdogs!
@als_now10 May 2021
FOUR therapies have halted ALS in trials: 1. Mayo MSC 2. NSI-566 3. NurOwn 4. T-REGS. Others have slowed ALS: 1. CuAtsm 2. AMX0035 3. TOFERSEN 4. ASTRORX. Think #ALS isn't "treatable"? Or maybe, just maybe it IS, but "certain people" aren't ready to GIVE YOU A SHOT. @US_FDA
6
29
4
41
Load more