β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ (@Louisamaeauthor) header
β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ (@Louisamaeauthor) profile picture

UK based M/M Author. Daughter of Haemophilliac who lost his life in 1985 due to Contaminated Blood. Northern pint drinking gobshite

Leeds, England
Joined April 2011
Photo by β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ (@Louisamaeauthor)Photo by β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ (@Louisamaeauthor)Photo by β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ (@Louisamaeauthor)Photo by β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ (@Louisamaeauthor)Photo by β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ (@Louisamaeauthor)Photo by β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ (@Louisamaeauthor)Photo by β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ (@Louisamaeauthor)Photo by β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ (@Louisamaeauthor)Photo by β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ (@Louisamaeauthor)Photo by β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ (@Louisamaeauthor)
The way I've been told my dad was treated as he lay dying in hospital in September 1985 proves all this and more. Dead before the tone deaf ad campaign, making it impossible to speak about what happened. – at New Farnley, England
Mono HCV HAEMOPHILIACS in fact all HAEMOPHILIACS have been let down by the scheme. Reasons why:- - Years of state abuse, being studied and used for research without consent. - Department of Health, Government and clinicians turning a blind eye when risks were known. - Safer products such as cryro or DDAVP ignored. - Huge risks taken moving to larger pools. - Dangerous disease ridden Factor given for non life threatening reasons such as dental work, joint pains etc. - Clinicians not telling haemophiliacs of their viruses for years so that they could study the spread within families. - Infected numerous times over and over as children and effecting their education #NotRecognised for HCV haemophiliacs. - Stigma after the AD campaign run by Government. Which put fear into the wider community. This made EVERY haemophiliac a target. Still to this day people have to keep their haemophiliac status secret because of this. No haemophiliac has truly been compensated. The above is why we have not been recognised, in the rush to again sweep this under the carpet and to minimise government back lash. A scheme was set up the next day without sitting with haemophiliac campaigners and @katehaemophili1 and the @HaemoSocUK Without understanding. HCV haemophiliacs infected as children have been placed with HCV transfusion patients often given life saving treatment later in life. We are not the same. We ask the Minister @jamesmurray_ldn and the PM @andyburnham sit down with us. We need to #FinishThisFight that has been going on for decades. @ConanMci @KieranMullanUK @cabinetofficeuk @IBCA_CEO_UK @IBCA_UK @BBCHughPym @HaemophiliaIRL @GraymF1 @Haemosexual @CampaignTB @Factor8Campaign @LabLab15460 @DuryTerren13578 @DarcusWolfe @GlennWilko58
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He deserved to have it stripped. He showed total and utterly contempt for the inquiry and for those we lost. Disgusting! – at New Farnley, England
Why hasn’t this individual been stripped of his Peerage
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How many more lives could've been saved or people not infected had they not waited... disgusting! – at New Farnley, England
The Department of Health announced additional testing of blood donations for Hepatitis C 35 years ago today, on 16 August 1991. Routine UK screening began on 1 September 1991. The Infected Blood Inquiry report said that: "the availability of such a test was announced on 21 April 1989. When the UK introduced one on 1 September 1991 (two and a half years later) it was one of the last developed nations to begin the testing of all blood donations directly for the presence of Hepatitis C infection. Many countries implemented testing on dates between 18 months and 12 months before the UK."
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Some people are like walking, talking sunshine. This man is definitely that. So much love for @xGabrielPhoenix this was before a fabulous side quest... scraps for the win! #scraps #friends – at London, England
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#WorldAIDSDay2025 especially remembering the Haemophillia community, devastating through Contaminated Blood #fatherlessgeneration #infectedblood – at New Farnley, England
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Replying to @sainsburys
@sainsburys surely this isn't acceptable in any way. Is i Managers response at Leeds White Rose store was, he'd get some blu roll and I showed him the photos.I think it needs more than a quick wipe! – at New Farnley, England
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@sainsburys it gets WORSE. Popped in today and this was what I saw. Local environmental health have been updated. Good luck talking your way out of that. Seems nothing much was done on Friday. Hopefully todays manager is a bit more safety concious.
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β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ retweeted
Starting a petition to put this on our banknotes #CelebrityTraitors
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β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ retweeted
Just wrapped up editing photos from this gorgeous shoot with @AntonioVelezxxx & @xGabrielPhoenix. What do you think? Worth a like or a retweet? πŸ˜‰
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A good friend told me I was a "determined f*cker" and I am! In October i'm swimming 20 miles for Alzheimers UK. 3 days into my Swim for Dementia & I'm doing "quite well" Wednesday 1100m Thursday 1300m Friday 2050m - yes really! Sponsor me here: justgiving.com/.../SwimforDe….
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Welcome news. I'm still beyond frustrated they made us wait over 2 months from announcing and this doesn't open until 3 months after. Our dead don't feel to be respected or of any importance to those in Government. – at SantanyΓ­, Spain
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Day 19 still asking one simple question. When will applications open for estates to apply for 2nd interim payment? Announced 21st July, silence since. Seems nothing changes BUT we deserve answers and also respect @GOVUK @cabinetofficeuk @NickTorfaen @DHSCgovuk #Contaminatedblood – at SantanyΓ­, Spain
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β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ retweeted
Day 65. @NickTorfaen has refused to tell victims of Infected Blood whe they will receive further interim payments of Β£210k. @cabinetofficeuk announced these payments over 2 months ago and have remained silent ever since. Discrimination against deceased victims. @bloodinquiry
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Day 18 still asking one simple question. When will applications open for estates to apply for 2nd interim payment? Announced 21st July, silence since. Seems nothing changes BUT we deserve answers and also respect @GOVUK @cabinetofficeuk @NickTorfaen @DHSCgovuk #Contaminatedblood – at SantanyΓ­, Spain
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You think we're going anywhere and will slink into the background? Think again. My dad was MURDERED and I still feel like his life didn't matter. Enough is enough. As Sir Brian said, we were lied to and the response is not good enough. – at SantanyΓ­, Spain
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β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ retweeted
Day 64. A rather simple question that can not be explained by @cabinetofficeuk @NickTorfaen When will victims of #contaminatedblood receive their further interim payments as promised over 2 months ago? This is not transparency. This is discrimination against the deceased.
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Day 17 still asking one simple question. When will applications open for estates to apply for 2nd interim payment? Announced 21st July, silence since. Seems nothing changes BUT we deserve answers and also respect @GOVUK @cabinetofficeuk @NickTorfaen @DHSCgovuk #Contaminatedblood – at SantanyΓ­, Spain
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β€οΈπŸ’›πŸ–€ Louisa Mae β€οΈπŸ’›πŸ–€ retweeted
Day 63. Victims of Contaminated Blood are still being ignored. The UK government have failed to release applications for victims to receive further compensation payments. Why are we still waiting? @cabinetofficeuk @NickTorfaen @DHSCgovuk @GOVUK @bloodinquiry #infectedblood
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Day 16 of asking one simple question. When will applications open for estates to apply for 2nd interim payment? Announced 21st July, silence since. Seems nothing changes BUT we deserve answers and also respect @GOVUK @cabinetofficeuk @NickTorfaen @DHSCgovuk #Contaminatedblood – at SantanyΓ­, Spain
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Day 15 of asking one simple question. When will applications open for estates to apply for 2nd interim payment? Announced 21st July, silence since. Seems nothing changes BUT we deserve answers and also respect @GOVUK @cabinetofficeuk @NickTorfaen @DHSCgovuk #Contaminatedblood – at East Carlton, England
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Day 14 of asking one simple question. When will applications open for estates to apply for 2nd interim payment? Announced 21st July, silence since. Seems nothing changes BUT we deserve answers and also respect @GOVUK @cabinetofficeuk @NickTorfaen @DHSCgovuk #Contaminatedblood
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