@LivingLFS

Supporting patients with Li-Fraumeni syndrome, an inherited #cancer predisposition. #LFS #LiFraumeni #LiFraumeniSyndrome #TP53 #P53 #GeneticCancer #genetics

LivingLFS.org
Joined August 2014
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March is Li-Fraumeni Syndrome Awareness Month! Visit LFSawareness.com to learn about our rare #genetic mutation and to help those who are extra likely to develop a wide range of cancers because of it. Thank you for sharing, and thank you for supporting! #Cancer #lifraumeni

Li-Fraumeni Syndrome Awareness Day and Month | Living LFS

March 20th is Li-Fraumeni Syndrome Awareness Day and March is Li-Fraumeni Syndrome Awareness Month! At least twelve $1,000 LFS hardship grants will be awarded on March 20th!

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Living LFS retweeted
CGA-IGC
@CGAIGC25 Mar 2024
1/ Welcome to the February 2024 #CGAJS Tweetorial on the Cancer Risks Associated w/ Li-Fraumeni Syndrome by CGA-IGC communications committee member @asafmaoz ➡️The full article from @JCOPO_ASCO can be found at 👉🔗tinyurl.com/5ytpks2z 🧵 @QIMRB_Institute #HereditaryGICancer
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#LiFraumeni. Cumulative cancer risks in #TP53 PV carriers, based on 146 families. For example: -#Breastcancer, females: 7% -> age 30 yrs, 71% lifetime -Any cancer, females: 98% lifetime - 🫁#Lungcancer, males: 9% -> age 60 - 🧠#Glioma, males: 15% lifetime ascopubs.org/doi/10.1200/PO.…

Cancer Risks Associated With TP53 Pathogenic Variants: Maximum Likelihood Analysis of Extended...

PURPOSE Establishing accurate age-related penetrance figures for the broad range of cancer types that occur in individuals harboring a pathogenic germline variant in the TP53 gene is essential to...

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LFS Awareness Day - March 20, 2024 - is fast approaching. It's time to order your gear in time to spread awareness and raise much needed funds for our Hardship Grant Program. A minimum of $10 from every item sold goes towards helping families with LFS. snarkycancer.com/products/20…
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As of this writing, Living LFS has received $8 more in #GivingTuesday donations today than on Giving Tuesday 2022. I call that a success! We would be grateful an even bigger difference.
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There is still time to donate $100 or more to receive a free t-shirt, mug, or tote as thanks for your support of families devastated by cancer. Sharing and spreading the word is equally important and equally appreciated. 💙💚💙 livinglfs.org/donate #GivingTuesday

Donate | Living LFS: Li-Fraumeni Syndrome

Do Good. Feel Good. Donate Today. Li-Fraumeni syndrome (LFS) is both devastating in its impact and isolating in its rarity. Living LFS is a 501(c)(3) non-profit with the mission to encourage,...

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Donate $100 or more to Living LFS today and get free swag! It's our thanks to you on this #GivingTuesday for supporting those with #LiFraumeni syndrome and inherited #cancer. Donate: livinglfs.org/donate/
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Donate $100+ to Living LFS today, choose one piece of merchandise from @SnarkyCancer's Living LFS collection FREE. It's our way of saying "Thank You" on #GivingTuesday. Donate: livinglfs.org/donate/ See the full collection: snarkycancer.com/collections… #lifraumeni #cancer #p53
A selection of Living LFS t-shirts, a tote bag, and a mug. Donate $100 or more to Living LFS today and choose one piece of merchandise from Snarky Cancer's Living LFS collection for FREE. It's our way of saying "Thank You" on Giving Tuesday.

ALT A selection of Living LFS t-shirts, a tote bag, and a mug. Donate $100 or more to Living LFS today and choose one piece of merchandise from Snarky Cancer's Living LFS collection for FREE. It's our way of saying "Thank You" on Giving Tuesday.

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Help us continue supporting those with #LFS. Every donation, large or small, makes a difference. Sharing this message helps as well! We are grateful for your support. Donate here: livinglfs.org/donate/ #GivingTuesday #cancer #lifraumeni

Donate | Living LFS: Li-Fraumeni Syndrome

Do Good. Feel Good. Donate Today. Li-Fraumeni syndrome (LFS) is both devastating in its impact and isolating in its rarity. Living LFS is a 501(c)(3) non-profit with the mission to encourage,...

livinglfs.org
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Thank you from the entire #LiFraumeni syndrome community for donating to Living LFS and supporting those with #geneticcancer this #GivingTuesday! Donate: livinglfs.org/donate/ @SnarkyCancer's Living LFS’s collection: snarkycancer.com/collections… #Cancer #nonprofit
Donate $100 or more to Living LFS today and choose one piece of merchandise from Snarky Cancer's Living LFS collection for FREE. It's our way of saying "Thank You" on Giving Tuesday. Donate here:https://livinglfs.org/donate/

ALT Donate $100 or more to Living LFS today and choose one piece of merchandise from Snarky Cancer's Living LFS collection for FREE. It's our way of saying "Thank You" on Giving Tuesday. Donate here:https://livinglfs.org/donate/

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Happy Thanksgiving from all of us at Living LFS! We are thankful for YOU! #lifraumeni #lifraumenisyndrome #cancer #genetics
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WOO HOO! Today we're awarding nine $1,000 LFS Hardship Grants to people with #LiFraumeni syndrome and #cancer, with the help of our partners at @snarkycancer! You can help fund future grants! Donate: lnkd.in/gZ7KNs58 Merch: lnkd.in/gGspydZe
Living LFS president Andi Last calling LFS Hardship Grant recipients

ALT Living LFS president Andi Last calling LFS Hardship Grant recipients

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Email us for the registration link to the next one, Thursday Sep 14, 2023, 5pm Pacific, 8pm Eastern livinglfs.org/contact/

Contact Us | Living LFS: Li-Fraumeni Syndrome

Contact Us Need to ask us anything? Would you like to share your story? Recommend a hospital, oncologist, or genetic counselor in your area? Feel free to email, call, or send us mail! Email our...

livinglfs.org
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Calling all researchers and clinicians working on #lifraumenisyndrome #lifraumeni #tp53 #tp53gene #p53 #geneticcancer #inheritedcancer #hereditarycancer #CancerResearch #cancer #genechat
The George Pantziarka TP53 Trust@GP_TP53_Trust6 Jul 2023
Scientific networks are key to making progress - especially in medicine. So we're very happy that we are working to create LiNCR - LI Fraumeni Network for Clinicians and Researchers tp53.co.uk/lincr/
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Scientific networks are key to making progress - especially in medicine. So we're very happy that we are working to create LiNCR - LI Fraumeni Network for Clinicians and Researchers tp53.co.uk/lincr/
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My amazing lab mates presenting their work on #lifraumenisyndrome today at GFCC Cancer Research Day 🤩✨ @SickKidsCancer @cgiovino
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Check out yesterday's #ICARE #Genetics Case Conference, during which Bita Nehoray, MS, CGC (@BeetsWhoTweets) from the City of Hope presents on #CHIP and variant interpretation in #LiFraumeni #Syndrome 👇 youtu.be/D2pwhkyBn8M #InheritedCancer #TP53 #CancerPrevention
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Join us for a conversation about the needs, hopes, and fears of #caregivers who do not have #LiFraumeniSyndrome but live in the #LiFraumeni world. Thursday, June 22, 8-9pm EST. Facilitated by @cwilsnack, a licensed social worker Email [email protected] for the link to register
Text reads "Monthly series - June: Caring for the acaregiver. This monthly series is for caregivers who do not have LFS but live in the LFS world. Thursday, June 22nd from 8-9pm EST. Email hello@livinglfs.org for the link to register." The text is green and white on a blue field with green trim. In the center of the image is an illustration of the outline of a heart with caring hands around it and the Living LFS DNA tree logo inside it. In the lower right of the image is the full Living LFS logo.

ALT Text reads "Monthly series - June: Caring for the acaregiver. This monthly series is for caregivers who do not have LFS but live in the LFS world. Thursday, June 22nd from 8-9pm EST. Email [email protected] for the link to register." The text is green and white on a blue field with green trim. In the center of the image is an illustration of the outline of a heart with caring hands around it and the Living LFS DNA tree logo inside it. In the lower right of the image is the full Living LFS logo.

Text reads, "Monthly series facilitated by Catherine Wilsnack, MSW, LMSW." A blue field with green trim shows a circle in the center of the image with Catherine's photo above her name and title. In the lower center of the image is the Living LFS logo.

ALT Text reads, "Monthly series facilitated by Catherine Wilsnack, MSW, LMSW." A blue field with green trim shows a circle in the center of the image with Catherine's photo above her name and title. In the lower center of the image is the Living LFS logo.

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