Lin Li (she/her) (@LinLi_RN) header
Lin Li (she/her) (@LinLi_RN) profile picture

Lin Li (she/her)

@LinLi_RN

RN | PhD | #BantingCanada Postdoctoral Fellow @UofTNursing @CAMHnews striving to improve healthcare transition for youth/families | Mama of 👧🏻👦🏻👦🏻 #HamOnt

 Hamilton, Ontario
Joined July 2019
  • Tweets334
  • Following436
  • Followers284
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Photo by Lin Li (she/her) (@LinLi_RN)Photo by Lin Li (she/her) (@LinLi_RN)Photo by Lin Li (she/her) (@LinLi_RN)Photo by Lin Li (she/her) (@LinLi_RN)Photo by Lin Li (she/her) (@LinLi_RN)Photo by Lin Li (she/her) (@LinLi_RN)Photo by Lin Li (she/her) (@LinLi_RN)Photo by Lin Li (she/her) (@LinLi_RN)Photo by Lin Li (she/her) (@LinLi_RN)Photo by Lin Li (she/her) (@LinLi_RN)
Lin Li (she/her) retweeted
TransitionDoctor (@Dr_Gorter) profile picture
TransitionDoctor@Dr_Gorter6 Feb 2024
Patient-oriented research #POR with youth and families: how do you do that well? Proudly sharing our recent publication from the @ChildBrightNet @CIHR_IRSC funded #READYorNot #healthcare #transition project. #patient & #family #engagement in research #FER pubmed.ncbi.nlm.nih.gov/3831…
Navigating meaningful engagement: lessons from partnering with youth and families in brain-based...

Navigating meaningful engagement: lessons from partnering with youth and families in brain-based...

We share key recommendations and lessons learned from our experiences alongside examples from the literature to offer guidance for multi-stage research projects partnering with adolescents, young...

pubmed.ncbi.nlm.nih.gov
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Dr. Gita Wahi (@gitawahi), our Associate Chair of Research, was featured in @HamHealthSci's research spotlight. She shares her research focusing on health promotion and health equity, including identifying and addressing unmet social needs of children & families. #PedsResearch
Image from McMaster University Department of Pediatrics (@MacUPediatrics)
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Lin Li (she/her) retweeted
TransitionDoctor (@Dr_Gorter) profile picture
TransitionDoctor@Dr_Gorter15 Dec 2023
Proudly sharing our latest work by @ChildBrightNet READYorNot(TM) Brain-Based Disabilities transition Project. With the Patient & Family Advisory Council & Policy Hub. We make recommendations for change in #healthcare #transition policies. Read more 👇👇 frontiersin.org/articles/10.…
Frontiers | A commentary on the healthcare transition policy landscape for youth with disabilities...

Frontiers | A commentary on the healthcare transition policy landscape for youth with disabilities...

There is a growing number of youth with healthcare needs such as disabilities or chronic health conditions who require lifelong care. In Canada, transfer to ...

frontiersin.org
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Lin Li (she/her) retweeted
TransitionDoctor (@Dr_Gorter) profile picture
TransitionDoctor@Dr_Gorter16 Dec 2023
Proudly sharing the latest article by PhD candidate Lin Li @LinLi_RN @mch_childrens @macnursing & team on the experiences of families as their youth with medical complexity leaves the pediatric hospital setting. #healthcare #transition #family #future 👇 sciencedirect.com/science/ar…
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We were thrilled for the return of our in-person Poster Fair at #ChildHealthCan23. Thank you for joining us @LinLi_RN and showcasing your work.
Lin Li (she/her) (@LinLi_RN) profile pictureLin Li (she/her)@LinLi_RN4 Dec 2023
I had a a great time at #ChildHealthCan23 meeting/learning with other delegates and sharing my work on complex care youth transitions to adulthood, including advocating for a lifelong model of care. Thanks to all who took the time to connect! @ChildHealthCan @PedNIG @PaediatricRN
Image from Lin Li (she/her) (@LinLi_RN)
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Lin Li (she/her) retweeted
TransitionDoctor (@Dr_Gorter) profile picture
TransitionDoctor@Dr_Gorter3 Dec 2023
On the International Day of People with #Disabilities, let us commit to promote #inclusivity and #accessibility, embrace #diversity, and work towards a world where every person, regardless of ability, enjoys equal rights and opportunities. #IDPD2023 #IDPwD
Image from TransitionDoctor (@Dr_Gorter)
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NEW PUB from me: Cliff or bridge: breaking up with the paediatric healthcare system. I share three types of break-ups we experienced: the 'dear john' letter, 'it's not you, it' me', and ghosting. And also the way it should be: the handover academic.oup.com/pch/advance…
Cliff or bridge: breaking up with the paediatric healthcare system

Cliff or bridge: breaking up with the paediatric healthcare system

Abstract. Transition from paediatric to adult healthcare is a normal part of the care trajectory, yet the process often leaves much to be desired. In this

academic.oup.com
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As a pediatrician with a PhD in Health Research Methodology & a record of successful research programs grounded in collaboration and partnerships, Dr. Gita Wahi (@gitawahi) is set to lead @MacUPediatrics as our next Associate Chair, Research. Read more ⬇️ pediatrics.healthsci.mcmaste…
Image from McMaster University Department of Pediatrics (@MacUPediatrics)
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Lin Li (she/her) retweeted
Marcy (@MarcyFWhite) profile picture
Marcy@MarcyFWhite3 Aug 2023
What will it take for @ronald_cohn and @SickKidsNews to do the right thing? The most vulnerable people deserve better! #complexcare @Thomsod @LinLi_RN @Hanigsberg @DrNancyOlivieri @LouiseKinross @LisaEsther6
National Post (@nationalpost) profile pictureNational Post
@nationalpost2 Aug 2023
Marcy White was assured that her son would continue to be supported by his pediatric complex care team until a suitable adult program became available — but three years later, the were told they were out of time — via @healthing_ca #healthing #longtermcare healthing.ca/caregivers/tran…
Transition from pediatric to adult care brings 'a level of uncertainty that is inconceivable'

Transition from pediatric to adult care brings 'a level of uncertainty that is inconceivable'

How transition to adult care is failing our children

healthing.ca
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Lin Li (she/her) retweeted
Louise Kinross (@LouiseKinross) profile picture
Louise Kinross@LouiseKinross2 Aug 2023
Must-read from a @HBKidsHospital family: 'Wrong, dangerous, heartless + cruel are the words that don't even begin to describe the behaviour of the team of doctors + administrators who are forcing Jacob off the cliff.' @MarcyFWhite #OnPoli #MedicalTwitter healthing.ca/caregivers/tran…
Transition from pediatric to adult care brings 'a level of uncertainty that is inconceivable'

Transition from pediatric to adult care brings 'a level of uncertainty that is inconceivable'

How transition to adult care is failing our children

healthing.ca
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Lin Li (she/her) retweeted
Marcy (@MarcyFWhite) profile picture
Marcy@MarcyFWhite28 Jul 2023
Some kids should not be transitioned - the most vulnerable are “pushed off the cliff” because adult providers don’t know how to care for these youth. They deserve better! @SickKidsNews @ronald_cohn @JILLSLASTWORD @MTaylorNDP @RobinMartinPC @NightShiftMD @LinLi_RN @Thomsod
Stephanie (@ZakkisMom) profile pictureStephanie@ZakkisMom27 Jul 2023
Replying to @picardonhealth @MarcyFWhite @healthing_ca
More needs to be done to accept these kids on the adult side - journals.sagepub.com/doi/10.…
Focusing on Adult Health Care to Improve Transition for Youth with Chronic Disease - Maureen Varty,...

Focusing on Adult Health Care to Improve Transition for Youth with Chronic Disease - Maureen Varty,...

journals.sagepub.com
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Lin Li (she/her) retweeted
Bukola Salami (@BukolaKSalami) profile picture
Bukola Salami@BukolaKSalami10 Jul 2023
We are looking for a postdoc who want to develop their expertise in EDI to join our wonderful team @UofCr4kids Please share and retweet @CohortSistas @BlackHealthCAN @CanBlackSci @BlkOpportunity @BlkCdnSA @BlackPhDNetwork @CIHR_IHDCYH careers.ucalgary.ca/jobs/125…

Post Doctoral Scholar, Alberta Children's Hospital Research Institute, Cumming School of Medicine...

Post Doctoral Scholar, Alberta Children's Hospital Research Institute, Cumming School of Medicine in Calgary, AB, Canada

careers.ucalgary.ca
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Hospital backlogs in pediatric care could affect children’s health for the rest of their lives theglobeandmail.com/canada/a…
Hospital backlogs in pediatric care could affect children’s health for the rest of their lives

Hospital backlogs in pediatric care could affect children’s health for the rest of their lives

At Toronto’s Hospital for Sick Children, the surgical wait list last week was the longest it has ever been, at 6,509

theglobeandmail.com
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Compensating patient-oriented research: tinyurl.com/mrky3h8r @SPORAlliance @CIHR_IRSC @CDCofBC @PCORI @canchild_ca @NovakPavlic @DrMPhoenix @Smicsinszki @KingaPozniak @LinLi_RN @lindaa728 @SoperAlice @ElaineYLKwok @BootsmaJael @DavisHanae @sabdelmalek12 @PatientAdvisors #POR
Image from Journal of Patient-Centered Research & Reviews (@JPCRR)
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How should patients be compensated for serving as #POR partners? institutionalrepository.aah.… @PCORI @PatientAdvisors @canchild_ca @McMasterU @NovakPavlic @DrMPhoenix @Smicsinszki @KingaPozniak @LinLi_RN @lindaa728 @SoperAlice @ElaineYLKwok @BootsmaJael @DavisHanae @sabdelmalek12

Patients and Families as Partners in Patient-Oriented Research: How Should They Be Compensated?

Patient and family engagement has become a widely accepted approach in health care research. We recognize that research conducted in partnership with people with relevant lived experience can...

institutionalrepository.aah.org
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If interested in #PatientOrientedResearch, check our new open-access publication: institutionalrepository.aah.… @Dr_Gorter @DrMPhoenix @KingaPozniak @SMicsinszki @lindaa728 @SoperAlice @ElaineYLKwok @BootsmaJael @FieryFrancine @DavisHanae @sabdelmalek12 @canchild_ca @SRSMcMasterU
Image from Monika Novak Pavlic (@NovakPavlic)
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Lin Li (she/her) retweeted
Sam Micsinszki (@SMicsinszki) profile picture
Sam Micsinszki@SMicsinszki18 Apr 2023
✨NEW Paper✨ What started as a conversation at our monthly @canchild_ca student meetings: Patients and families as partners in patient-oriented research: How should they be compensated? Read it open access @JPCRR here: institutionalrepository.aah.…

Patients and Families as Partners in Patient-Oriented Research: How Should They Be Compensated?

Patient and family engagement has become a widely accepted approach in health care research. We recognize that research conducted in partnership with people with relevant lived experience can...

institutionalrepository.aah.org
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Lin Li (she/her) retweeted
Marcy (@MarcyFWhite) profile picture
Marcy@MarcyFWhite22 Mar 2023
Replying to @LouiseKinross
@LouiseKinross @Thomsod @LinLi_RN
Marcy (@MarcyFWhite) profile pictureMarcy@MarcyFWhite22 Mar 2023
And what happens when the complex person turns 18 and is kicked out of the program? Their needs don’t magically disappear. Why is it ok to abandon the most fragile? What do studies show about that? #complexcare @JILLSLASTWORD @RobinMartinPC
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When kids w/ #medicalcomplexity turn 18, the transition to adult care - is stressful - feels like 'falling off a cliff' - fills families w/ dread - involves a mix of services in adult hospitals + community-care + at home We must do better for them. thestar.com/opinion/2023/02/…
Turning 18 is filled with dread for those with complex medical issues

Turning 18 is filled with dread for those with complex medical issues

Turning 18 is a rite of passage, the official signal of adulthood and the right to vote.

thestar.com
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Lin Li (she/her) retweeted
TransitionDoctor (@Dr_Gorter) profile picture
TransitionDoctor@Dr_Gorter27 Feb 2023
What do wd know about programs designed to prepare #siblings for their #future roles with their sibling with a neurodevelopmental #disability? Check out this scoping review by Linda Nguyen @lindaa728 & team @canchild_ca @KCRUtrecht @BootsmaJael #OpenAccess pubmed.ncbi.nlm.nih.gov/3684…
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