Real truth about Life with CHD - the good the bad and the ugly ❤️💙 Donate Life ~Become an Organ Donor
Joined May 2020
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Life_With_CHD retweeted
We asked 10,000 transplant recipients about their experience with immunosuppressants.
Check out this Journal Club, now on YouTube, to learn about the findings.
youtube.com/watch?v=MbwRmZ40…
Life_With_CHD retweeted
Our Transplant Center Director talks with us about what becoming an organ donor means. cle.clinic/4chUXVR
Life_With_CHD retweeted
Listen in on the January AJT Highlights Podcast:
ajthighlights.podbean.com/
@afkassam
ALT AJT Highlights Podcast January 2026 Editor's Picks
Life_With_CHD retweeted
📣 New insight on long-term outcomes after Fontan conversion!
A recent study in Circulation: Heart Failure explores the long-term results of Fontan conversion surgery (FC) — a procedure aimed at improving circulation and reducing complications in patients with failing Fontan physiology.
🫀 Key takeaways:
• Fontan conversion is known to lower the risk of atrial arrhythmias and thromboembolism, but its impact on long-term survival had been unclear.
• This comparative analysis provides real-world evidence on outcomes over time in patients undergoing FC — addressing a major clinical gap in the care of adults with congenital heart disease.
📌 Why it matters:
Improving survival and reducing complications after Fontan conversion can help guide decision-making and long-term management in a complex, high-risk patient population.
#Fontan #CongenitalHeartDisease #HeartFailure
#Cardiology #CirculationHeartFailure #CardioResearch
#LongTermOutcomes 🫀📊
doi.org/10.1161/CIRCHEARTFAI…
Life_With_CHD retweeted
Please save the date:
35th Annual International Symposium on Adult Congenital Heart Disease
Cincinnati Ohio, June 3-6
@ACHDSymposium @TorontoACHD
cincyhearteducationseries.or…
Life_With_CHD retweeted
Honored to lead and contribute to the future of multidisciplinary transplant care @ClevelandClinic — to become the world’s most comprehensive, innovative, and premier transplant enterprise for patients with end-stage organ failure.
consultqd.clevelandclinic.or…
Life_With_CHD retweeted
If you’re noticing muscle loss while losing weight on a GLP-1, you can take matters into your own hands by focusing on your protein intake, staying hydrated and starting a strength training program. cle.clinic/3Xub2kk
Life_With_CHD retweeted
Fontan circulation and transplantation
A comprehensive guide to referral, evaluation, listing and transplanting patients with #Fontan circulation
@TheJHLT @ISHLT
jhltopen.org/article/S2950-1…
@mgoschu @ACTION4HF @PHTSociety @CleClinicHVTI @CleClinicNews
This is awesome. So this is what my new heart looks like .
Doesn’t need caffeine - to keep going !
Beautiful human heart prior to transplant 🫀
xitter.cf/medi_cosity/status/182…
Life_With_CHD retweeted
A first in man, ischemia-free beating heart transplantation (IFBHT) in humans was described! This involves transplanting a heart without the typical interruption of blood flow (ischemia).
See below the video and article in Lancet !
Life_With_CHD retweeted
جدول يختصر لك
الادوية الممنوع تعطيها
لاشهر الامراض الي راح تواجهك بالعيادة
مفيد جدا
Life_With_CHD retweeted
#CHDAwarenessWeek Did you know? Thanks to advancements in CHD research and care, there's more than 2 million #HeartWarriors currently living in the United States! #HeartMonth
Life_With_CHD retweeted
Looking forward to #Fontan data sharing at the centennial @American_Heart @AHAScience conference in Chicago. Are you registered? – at Chicago, IL
A fellow CHDer had said this .. (below) Has anyone heard anything like this ?
I'd be curious to know who all is willing right now to do a transplant on Fontan because my new Cardiology team in KC said many teams are pausing on that for now cause of recent results
#CardioTwitter