ALT "As a mum to a son with the same condition as Jono, I am incredibly thankful and inspired by Jono and what he puts into the world. He was a beacon of hope when my son was born, and has remained so with his optimism, honesty and generosity of spirit. "The world can be quick to judge and we need more people like Jono and the Changing Faces campaigners and ambassadors - individuals who stand up for children like mine, helping to create a kinder, more inclusive world for them to grow up in.”
ALT An orange tile with blue and white brush strokes. At the top is the "CARE" logo and the tagline which reads "Understanding Craniofacial Microsomia". Underneath, the text reads: "Research Opportunity. Were you or a child you care for diagnosed with craniofacial microsomia*? *The CARE study considers craniofacial microsomia to include hemifacial microsomia, Goldenhar syndrome, OAVs and microtia. We want to know how craniofacial microsomia has impact your life! Participation includes completing a one-time online survey. Your answers will be used anonymously to inform future care. Visit www.thecarestudy.org to learn more or scan the QR code below. This study is currently only open to residents of the USA, Canada, UK, New Zealand and Australia. The principal researchers for this study are Dr Carrie Heike at Seattle Children's and Dr Nicola Stock at The University of the West of England, Bristol, UK." Underneath are Seattle Children's and UWE's logos.
ALT Raymond, a 30-40s year old man who has alopecia, wearing a brown jacket outdoors.
ALT Bhavin, a man in his 40s who has alopecia, wearing a black jumper and standing in front of a tree.
ALT Allie wearing a beige cardigan and jeans, gesturing wide with her arms as she stands in front of the sea.
ALT Allie, wearing a bikini, standing in front of the sea.
ALT A close-up of Allie's abdominal scar with Allie's hand making a heart shape around it.
ALT Our ambassador Rob wearing a floral shirt and pointing to a sign he's holding which reads: "#IAmNotYourVillain"
ALT Campaigner Zelda and ambassadors Phil and Rhona. Zelda sits among items she's sewn. Phil dances the argentine tango in a silver waistcoat. Rhona sings in a sparkly black and gold dress.
ALT Campaigners Stacey and Bronwen. Stacey plays drums on a practice pad. Bronwen sits with her crochet creations in front of her, including a whale, bee and frog.
