Senior policy advisor relating to autism and immunodeficiencies. Autism Innovation Coalition member.
Joined October 2011
- Tweets1.6K
- Following952
- Followers571
- Likes4K
Pinned Tweet
The recently formed Autism Innovation Coalition (AIC) is a science-driven initiative integrating genetics, immune dysregulation, mitochondrial metabolism, neurodevelopment, and environmental triggers into a systems-biology framework for autism with co-occurring medical conditions (ACMC) for both clinical and policy relevance. Check out our new website: autisminnovationcoalition.co…
An opportunity to submit peer reviewed published autism research papers for consideration for the federal Summary of Advances. federalregister.gov/d/2026-2…
@katiewr31413491
Working alongside Sylvia was an honor. I am confident that she, Dr. Gaitanis, and the members of the IACC will continue to work to implement the Strategic Plan moving forward. This is an incredibly dedicated and talented group. I believe their efforts will bring the much needed attention and action we need for autism.
He directs NIH's Eunice Kennedy Shriver National Institute of Child Health and Human Development, and we have shared patients over the years.
The Committee is moving from writing the Strategic Plan to implementation. Implementation is what matters. The point was never to write a plan — it was to translate one into better policy and better quality of life for people with autism and their families. That work runs across many agencies and a complex bureaucracy, and is better served by federal authority.
I am staying on the Committee, and I will keep working alongside him.
I am proud of what we built: a scientifically grounded Plan focused on the heterogeneity of autism, systems biology, neurodevelopmental regression, profound autism, and the supports people actually need across the life course. Many of you told us that for the first time in decades, you saw your own lives reflected in it.
To everyone who wrote, who spoke up, who told us what daily life is actually like — you were heard. I know what it cost you to find the time and the energy. I am grateful, and I am inspired.
Shared in my personal capacity as an autism parent and advocate. These views are my own and do not represent the IACC, NIH, or HHS.
Laura Cellini retweeted
As AI helps build the next generation of AI, human alignment and oversight become even more critical.
I joined @Elex_Michaelson on @CNN @CNNTheStoryIs to discuss AI safety, cybersecurity testing, international standards, and keeping humanity at the center of the AI race.
#AISafety #ResponsibleAI #HumanAIAlignment
Laura Cellini retweeted
youtu.be/U1kVDeXY5Rc?si…
Today, the announcement of a new National Neurodevelopmental Regression Initiative represents something families like ours have been asking for: a serious, coordinated effort to understand why some children regress, what is happening biologically when they do, and what can be done to prevent, treat, or reverse it.
Behind every statistic is a child. Behind every research question is a family still waiting for answers.
Here, is a portion of the Interagency Autism Coordinating Committee’s presentation on neurodevelopmental regression and the importance of making it a research priority:
youtu.be/U1kVDeXY5Rc?si…
🤖 Made with AI
HHS @SecKennedy Remarks at Children's Health Conference – LIVE shortly on C-SPAN3 c-span.org/event/public-affa…
Laura Cellini retweeted
It’s fascinating since the 2008 Nature special issue on Big Data saying that scientist spent 80% of their time data wrangling and only 20% doing science … perhaps this could change that
AI is already reshaping scientific research, according to an MIT & Google study.
Scientists use LLMs & specialized AI models for different tasks, save ~7 hours a week, & reinvest much of that time in research — but new bottlenecks are emerging: bit.ly/3UT2G7Q
Laura Cellini retweeted
AI safety warnings are putting the pace of frontier AI development in the spotlight.
Mattmann AI founder Dr. Chris Mattmann joined Elex Michaelson in studio on CNN’s The Story Is to discuss the debate.
Watch the interview below.
@cnn @CNNTheStoryIs @Elex_Michaelson
Laura Cellini retweeted
I reread this every year.
I cry like a baby every year.
Todd Beamer died a father, husband, and hero.
Todd: Hello… Operator… listen to me. I can’t speak very loud. This is an emergency. I’m a passenger on a United flight to San Francisco. Our plane has been hijacked.
Lisa: I understand. Can they see you?
Todd: No. There are three that we know of. They have knives — razor knives, like box cutters. Someone announced from the cockpit there was a bomb. It sounded fake.
Lisa: Your name?Todd: Todd Beamer. United Flight 93.Todd: They killed one passenger in first class. They forced most of us back. Fourteen of us here. Five flight attendants. The guy with the bomb ordered us to sit on the floor.
Lisa: Are you okay?
Todd: We’re going down… wait. No. We’re leveling off. We changed directions. We’re flying east again.
Todd: A guy named Jeremy called his wife. She told him two planes hit the World Trade Center. Lisa, is that true?
Lisa: I have to tell you the truth. It’s very bad. Both towers are gone. A third plane hit the Pentagon. Our country is under attack. I’m afraid your plane may be part of their plan.
Todd: Oh God. Lisa, will you do something for me? Call my wife and my kids. Promise me you’ll call.
Lisa: I promise.
Todd: Our home number is… You have the same name as my wife. Lisa. We’ve been married ten years. She’s pregnant with our third child. Tell her I love her. I’ll always love her. We have two boys — David, he’s 3, and Andrew, he’s 1. Tell them their daddy loves them and he is so proud of them. The baby is due January 12th. I saw an ultrasound. We still don’t know if it’s a girl or a boy.
Lisa: I’ll tell them. I promise, Todd.(Lisa patches in the FBI.)
Agent: Todd, your plane is on a course for Washington. Best guess is the White House or the Capitol.
Todd: I understand. I’ll be back.
Todd: Everyone knows this isn’t a normal hijacking. We have decided we will not be pawns in their plot.
Lisa: What are you going to do?
Todd: Four of us are going to rush the one with the bomb. Then the cockpit. A stewardess is getting boiling water. We’ll take them out.
Todd: Would you pray with me?They pray the Lord’s Prayer. Then: Yea, though I walk through the valley of the shadow of death, I will fear no evil, for thou art with me.
Todd: God help me. Jesus help me.Are you guys ready? Let’s Roll.
Laura Cellini retweeted
Clinical and Genetic Factors Associated With Regression in Children With Autism Spectrum Disorders pubmed.ncbi.nlm.nih.gov/4271… A timely paper: "may represent a distinct clinical and molecular subgroup within ASD." That would be one or more of the autisms.
Laura Cellini retweeted
This post details each proposed (eventually adopted) revision and the public comments that inspired/supported them. linkedin.com/pulse/asked-pla…
Laura Cellini retweeted
Speaking in my personal capacity: The accusation that the IACC did not carefully and robustly consider public comments is wholly inaccurate and contradicted by the record — both the public recording of the meeting and the Committee's adoption of revisions across more than 15 topic areas made in direct response to public comments. The details: linkedin.com/pulse/i-submitt…
Laura Cellini retweeted
Most regressive cases also fall under idiopathic autism - meaning the cause can not be tied to genetics or other known etiology-they also represent a large majority of the profound population with most significant and complex medical needs. You have evil forces like ASF trying to erase these children and cut the proposed funding by the current IACC . Please @SecKennedy do not let this happen they have been ignored way too long.
Laura Cellini retweeted
My child first suffered severe metabolic acidosis/hyperammonemia (not inborn) and slipped into a severe regression ultimately ending up with profound autism. When she regressed her pediatrician recommended developmental and physical therapy- no labs were run, no medical treatment. I wonder every day if she would have received the appropriate care if she would have a better outcome. @SecKennedy please help us!
Laura Cellini retweeted
Now let’s bring this same precision to studying neurodevelopmental regression, profound autism, and co-occurring conditions in autism. At a scale commensurate with the crisis. #IACC #StrategicPlan2026
Gold-standard science starts with world-class researchers.
I was proud to visit NIH’s Rocky Mountain Laboratories in Hamilton, Montana, with @RepMGriffith and see firsthand the extraordinary work underway, from Lyme and tick-borne diseases to prion biology and other rare illnesses.
Thank you to the entire RML team for your hospitality, and for advancing science that deepens our understanding of human health and improves lives.
