Associate Director of Research @ParkinsonsUK. Parent to 2 small people. All views my own. #Parkinsons #BePartOfResearch #SciComm #PatientEngagement #Comms
London
Joined June 2009
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So excited for Par-Con!
We’ve got a great lineup of speakers covering research, technology, hidden symptoms, medication and how to live well with Parkinson’s.
Hope you can join us! Please share 💙
We're inviting you to join us online at Par-Con 2024 - our free conference for the Parkinson's community 📣
On 11-12 October, hear from expert speakers on research, share tips on living well and connect with others in the community.
Register now 👉🏼 prksn.uk/46RuVFN
ALT Two attendees smiling and engaging in a conversation at the 2024 PAR-CON conference, surrounded by other participants in a brightly lit room.
Brilliant to be part of this event yesterday with the wonderful @julie_physio and @morethanatremor to raise awareness of the vital research funded by charities with MPs and parliamentarians.
💙
And that's a wrap! Thank you to everyone who came along to our Medical Research #CharityShowcase25! A special thank you to our wonderful showcases, from @ParkinsonsUK, @scarfreeworld, @RetinaUK, @PancreaticCanUK, @heartresearchuk & @LDShospcharity!
Claire Bale she/her retweeted
It's medical cannabis awareness week and we've updated our research blog.
Cannabis is a drug made from the cannabis plant. There is increasing interest in the therapeutic effects cannabis-based medicines may have for Parkinson’s.
Read the latest 👉🏽 prksn.uk/3UFQJPE
ALT Graphic with a blue background and an orange wave at the bottom. Text reads "Cannabis and Parkinson's: What do we know?
Claire Bale she/her retweeted
So, @ParkinsonsUK say the Hidden Symptoms session where I was first speaker is the most watched session in the Par-Con playlist on YouTube. Incredibly encouraged by this interest, I've not had an audience of 1.3k before! @ParkinsonsUKSco @jamesjopling youtu.be/II19iHEyjxk?feature…
Claire Bale she/her retweeted
Thank you to everyone who joined us for Par-Con 2024. 💙
From our speakers to our attendees, it was incredible for the Parkinson’s community to come together to talk living well.
If you missed it, or want to catch up on any of the talks, head over to 👉 prksn.uk/3UeP8QT
Claire Bale she/her retweeted
Broadcaster @JohnStapletonTV opens up about being diagnosed with Parkinson's disease alongside his son, Scam Interceptors' @staplenick.
They explore how to navigate difficult conversations you should have with loved ones. To watch it in full, click here:
bbc.in/48mTFGQ
Claire Bale she/her retweeted
PODCAST ALERT ‼️ A special live edition of #2ParkiesInAPod is out now
Living well with #Parkinsons with the fabulous @basbloem
Recorded at @ParkinsonsUK
#Parkcon event in Leeds
2parkiesinapod.com/podcast/e…
Claire Bale she/her retweeted
We're offering research project grants for groundbreaking studies that get right to the heart of complex Parkinson's research challenges.
Sign up for our virtual workshop on the 22 October at 11am to hear more about the award scheme 👉 prksn.uk/3BMHt5L
ALT Graphic which has a navy blue background and white text which reads 'We want to fund groundbreaking studies. Join our virtual workshop" The word 'groundbreaking' is written in bright pink
Can’t wait to listen to this 💙
This month we find out about a tremendous three-way collaboration at the London Metropolitan University, which is using virtual reality to help people with #Parkinsons affected by facial masking.
Excited to hear that a pioneering trial, supported by @ParkinsonsUK, started this week in Finland.
The study is investigating if repeat injections of a potential new treatment called HER-096 can protect brain cells and slow #Parkinsons 👇
parkinsons.org.uk/news/parki…
Claire Bale she/her retweeted
Very fortunate to have been able to attend the @ParkinsonsUK Par-con event. Great company, fab speakers and loads of information. My quote of the conference from Bastiaan Bloem “Acceptance is not resignation” x @2parkiesinapod @PhilJerky @basbloem @DaveClarkTV @ParkyPlayers
Claire Bale she/her retweeted
A wonderful couple of days @RoyalArmouries #leeds #parcon @ParkinsonsUK #parkinsons #confrence @BrianPhillipso1 @Dr_SF_Hussain @crassell2 @JoeGregory100 @annieconmonkey connecting with old and making new #friendships thank you to @ParkinsonsUK for making this happen 🌷🤝🏻❤️💙🙏🏻
Claire Bale she/her retweeted
Wow! I didn’t think it could get better but @ParkinsonsUK ParCon day 2 was outstanding. Great positivity and so wonderful to say thank you to Hema, Shafaq, Jagdeep, Brian, Richard, Joe and Annie ❤️ and hello to Keith and of course laugh with Paul. So grateful x
Claire Bale she/her retweeted
Thank you #parcon @ParkinsonsUK and Yorkshire for such a remarkable two days with the best of people doing some of the most important things #parkinsons
Claire Bale she/her retweeted
Had the best time with so many fab people at #ParCon24. Great speakers, great community, great connections, great team 💙 Thank you to everyone who was part of it, online and in person
And we’re done!
What a whirlwind couple of days in Leeds.
Thanks to everyone who joined us for making it such a fantastic event 💙💙💙
We're inviting you to join us online at Par-Con 2024 - a free conference for the Parkinson's community tomorrow and Saturday📣
@basbloem joins 2 Parkie’s in a pod for a live podcast @ 9.45 on Saturday @morethanatremor
Register now 👉🏼 prksn.uk/46RuVFN
What. A. Day.
Thanks so much to our incredible speakers and to everyone who joined us in person or online.
I’m exhausted but can’t wait to do it all again tomorrow 😮💨💙
It’s the end of the first day of ParCon 2024!
Thank you to everyone who joined us and the speakers who gave us amazing insight into the current Parkinson’s research, technology symptoms and more.
Follow this link to continue the conversation 👉 prksn.uk/3U3ZvqB
ALT Audience members attentively watching a presentation at ParCon 2024
Highly recommend the latest @moversand6 podcast 👇
The way Prof Ben-Shlomo explains risk and how to weigh the evidence on the role of environmental factors (like pesticides & TCE) in #Parkinsons is brilliant 💡
We're absolutely thrilled to share the latest episode of @moversand6 which features none other than Professor Yoav Ben-Shlomo (a member of the AMRG), where he helps to unpick some of the epidemiological evidence around causes of Parkinson's Disease.
Just 1 week til Par-Con a 2-day hybrid meeting for the Parkinson’s community, with updates on the latest research, tech, and living well with Parkinson’s.
Join online - register for free: parkinsons.org.uk/parcon24
💙
ALT I’m going to Par-Con 2024
Super excited about this new research which will investigate the potential of Augmented Reality to help people with Parkinson’s to stay active 💙
RGU's @julie_physio has been discussing her latest research project which embraces the power of Augmented Reality (AR) to improve the walking and balance of people living with Parkinson's.
It has been generously funded by @ParkinsonsUK.