Chloe, PhD 🥽🧪🔬🦠🧫🧬 (@LabGirl_Chloe) header
Chloe, PhD 🥽🧪🔬🦠🧫🧬 (@LabGirl_Chloe) profile picture

Chem-Bio/Biophysics • Allostery in drug development • She/her • Pan • #Autistic • #hEDS + Co-morbids & Intractable Pain • Play ESO & PoGo

Georgia, USA
Joined August 2017
Photo by Chloe, PhD 🥽🧪🔬🦠🧫🧬 (@LabGirl_Chloe)Photo by Chloe, PhD 🥽🧪🔬🦠🧫🧬 (@LabGirl_Chloe)Photo by Chloe, PhD 🥽🧪🔬🦠🧫🧬 (@LabGirl_Chloe)Photo by Chloe, PhD 🥽🧪🔬🦠🧫🧬 (@LabGirl_Chloe)Photo by Chloe, PhD 🥽🧪🔬🦠🧫🧬 (@LabGirl_Chloe)Photo by Chloe, PhD 🥽🧪🔬🦠🧫🧬 (@LabGirl_Chloe)Photo by Chloe, PhD 🥽🧪🔬🦠🧫🧬 (@LabGirl_Chloe)Photo by Chloe, PhD 🥽🧪🔬🦠🧫🧬 (@LabGirl_Chloe)Photo by Chloe, PhD 🥽🧪🔬🦠🧫🧬 (@LabGirl_Chloe)Photo by Chloe, PhD 🥽🧪🔬🦠🧫🧬 (@LabGirl_Chloe)
I’m so mad that doctors and companies are taking away remote access. They finally offer accommodations, and then they take them away. First, the pandemic isn’t over. Second, why is it so hard to offer them all time? They are the most helpful accommodations for me.
17
218
9
978
The precedent set in Roe v Wade is not just about abortion rights. It is about medical freedom. Overturning it will have a chilling affect medical freedom in general. 1/2
1
1
2
Most cases I’ve read where a pain patient has sued for their right to access opioids have been based on the same principles. I’m afraid for us all if Roe gets overturned. I’m afraid we will have much more limited legal recourse. 2/2
1
Wish we could get stuff like this covered by insurance. It could really help ppl like me with tmj disorder (or other types of jaw pain/dysfunction).
🥦🍗🍎 “I just have to squish it with my tongue and it just melts away into your throat.” Having trouble chewing? Japan's $410 @DeliSofter machine is allowing people to enjoy home-cooked meals even in their later years. @rumireports from Kyoto trib.al/EtCtajF
2
1
People who don’t want pain patients on opioids: Cool, let us know when you have something better that we can access (tested/approved for each condition you say it will work for and is affordable/covered by insurance). We shouldn’t have to suffer in the interim. 1/3
1
9
39
And I don’t mean tested against just a placebo. I want data showing it’s as good or better than opioids. Say an opioid reduces our pain by half, and the other treatment reduces it by 10%, it’s not a replacement. Supplement perhaps, but not a replacement. 2/3
1
2
22
The paper found, “53% of successfully tapered [from opioids] patients and 42% of those transitioned onto buprenorphine reported elevated pain.” And this is not *incredibly concerning* to the authors? researchgate.net/profile/Pau…
10
14
4
50
I won’t go into some of my other issues with the research right now because I don’t have the energy honestly, but I needed to express my frustration with the fact that the authors don’t seem to find this unacceptable. Like do those patients get to have their meds back then?
3
2
1
23
Curious about how/when the left started supporting the War on Drugs while simultaneously claiming to be “pro-choice.” Did they delude themselves into thinking that opioid prohibition was different? It’s not. And like alcohol prohibition, it doesn’t work and it’s killing people.
1
2
7
There is no longer a party that is generally fighting hard for harm reduction policies rather than prohibition. Harm reduction policies would help both pain patients and substance misusers. It doesn’t need to be either/or. How did we get here?
5
Insurance: “Looks like X *should* be covered.” Me: “Okay, so X *will* be covered?” Insurance: “It *should* be, but we can’t confirm until we get the claim.” This isn’t how any other industry works. We NEED transparency in pricing and coverage.
1
7
I genuinely wanna know if newsmax viewers even believe in evolution. I grew up in Idaho, and at least as of ~7 years ago, a significant portion of them didn’t think it was real. And newsmax viewers lean even more conservative than fox viewers (source below).
Newsmax host suggests vaccines are “against nature,” and some diseases are “supposed to wipe out a certain amount of people” mediamatters.org/newsmax/new…
1
1
Opioid hysteria is killing ppl. The drug war neither helps those suffering from addiction nor those in pain. If you perpetuate the myth that prohibition helps anyone, you are complicit in every death.
The Drug War moral panic against opioid medication has created a system where the only option left to people w chronic pain is suicide. There is no treatment. There is no hope. CPP are told "just learn to live with it," and some can't. This was a murder. #ErinGilmerWasMurdered
1
2
Marginalized ppl don’t have to be nice to make oppressors change their behavior. In fact, being nice may not even be the most effective way to create change. grandmotherafrica.com/love-i… psychologytoday.com/us/blog/…
If white women aren’t getting this then just pretend I’m a straight man that told you to “smile more.”
1
Is there anyone here who has/had Alpha-gal (usually induced by a Lone Star Tick bite)? Do you have known or suspected mast cell issues? #NEISvoid
1
2
3
Ppl act like those of us that need opioids aren’t willing to try other things. It took hundreds of thousands of dollars for me to try everything I could (not possible for everyone). I have stuck with some of those treatments; but without opioids, I’m still in agony.
1
1
9
I’m one of the lucky ones that has obtained/kept (for now?) opioids for my pain. Until there is a massive medical breakthrough that makes opioids obsolete, I will keep fighting for others to get the meds they need, and for me to keep my own.
2
1
8
Where do y’all think the #ChineseRocket will land? My guess is G5.
5
1
4
*I truly hope current expert predictions are correct and it lands in the water and/or doesn’t hurt anyone. PS. Sorry to any OCD peeps out there... I really tried to get the letters and numbers better aligned, but by phone wasn’t having it.
1
Imo, this is the best gaming chair, best lab chair, best chair for doing art, and the best chair for doing literally everything else. I sit with the "back" in front of my body (it is meant to work both ways). It's my favorite possession. fully.com/hag-capisco-chair.…
Who makes the best/most comfortable gaming chair? I need one for myself
1
1
If you know ppl from India, ppl in India, and/or that have loved ones in India, check-in with them if you are able.
2
It confuses me how pro-choice ppl can support the war on drugs. Do they not realize that restricting opioids for pain or addiction is perpetuating the war on drugs? It's still prohibition. It doesn't work and it causes harm. Support harm reduction if your concern is ODs.
1
2
5
My body, my choice shouldn't just apply to reproductive rights. If someone's choice regarding their own body won't hurt you, it shouldn't be regulated.
1
That about sums up why it’s challenging to get diagnoses/treatments for almost any complex chronic illness. THIS. MUST. CHANGE.
Replying to @ahandvanish
Dr. Deeks brings up the fact that #LongCOVID patients are facing a culture of skeptical, incurious doctors, particularly when there is too much focus on depression/anxiety symptoms and not the others.
1
1
3
*money is also a factor ofc. But even without that barrier, you still face the challenges above.
Was told today I only have to pay the $600 🙏 I still cried during the call bc my treatment is on hold while they figure out how to get Botox from specialty pharm. If I responded like that to a delay in getting opioids, it would be seen as a sign that I’m addicted. 1/3
My doc office assured me that my Botox + the treatments were covered by my new insurance. Turns out, they were supposed to use a specialty pharm for the Botox, not in-house Botox. Now I have to pay $2200 for Botox that cost the doc $600, and none of it goes to my deductible. 🤬
1
2
I cried bc of what is likely a temporary increase in pain that will be far less than what it would be if I lost my opioids. Yet patients who successfully use opioids to reduce severe pain can’t get emotional if they are permanently taken of opioids? 2/3
1
1
My doc office assured me that my Botox + the treatments were covered by my new insurance. Turns out, they were supposed to use a specialty pharm for the Botox, not in-house Botox. Now I have to pay $2200 for Botox that cost the doc $600, and none of it goes to my deductible. 🤬
3
2
4
*that $2200 is just for the Botox, not the treatment.
1
It can take more than a decade for medical research to influence clinical practice. This is why I bring doctors articles. Unfortunately, they are often irritated; but I don’t know how else to move my treatment forward in a timely manner. ncbi.nlm.nih.gov/pmc/article…
2
2
1
14