@LPseattle

Founder Lobular Breast Cancer Alliance. Writer. Former political hack. Living w/ #lobular #breastcancer & #ovariancancer. Cancer Research Advocate. Tweets mine

 Seattle, WA USA
leighpate.com
Joined December 2009
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  • Followers735
93Media
Good things happen when research evals #lobular #breastcancer separately from #IDC. Meaningful for #metastatic #ILC patients #bcsm 👇 news-medical.net/news/202206…

Study finds a more effective treatment option for HER2 mutant metastatic breast cancer

Breast cancers with HER2 mutations respond to the drug neratinib, but the responses are variable and often not durable.

news-medical.net
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Dear #cancer researchers ... How are you engaging w/ patients & patient advocates at your institutions? Are they a last minute box to be checked on your grant proposals? Or are they partners in your research? #PatientEngagement #PatientAdvocacyMovesScience 👇👇👇
Tatiana Prowell, MD@tmprowell23 Jun 2022
Everyone who knows even a little #regulatory history knows that patient #advocacy moves science forward. I have endless admiration for @bsw5020 & @sabrevaya.
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Great video @LobularBCA. I have seen #lobular cancers missed on screening mammography be detected on MRI, CEM, MBI and US. Although access may be limited, supplemental screening for #ILC may be key, especially for those with #densebreast tissue. youtu.be/xNoXveXGC2g
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🟡#breastcancer and the #PTEN hamartoma tumor syndrome (PHTS, previously #Cowden): screening with MRI led to the detection of cancer in 7 women/39 enrolled. All early-stage, all ductal (no #lobular). Median FU: 4 years. No benefit of adding mammography. acsjournals.onlinelibrary.wi…

The yield and effectiveness of breast cancer surveillance in women with PTEN Hamartoma Tumor...

In this retrospective cohort study, 65 women with PTEN Hamartoma Tumor Syndrome (PHTS) were included, of which 39 were enrolled in the breast cancer (BC) surveillance program and underwent annual...

acsjournals.onlinelibrary.wiley.com
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Nice write-up and #breastcancer #advocate Lori Petitti @hiplinemedia @jackel626 @maggiemoo09 @double_whammied @oesterreichs @mjsikora
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Sounds like #ILCSymposium 2022 was a hit on all accounts! Thanks to all who worked so hard. Onward! 👇 @ChristineDesme2 @PWBDerksen @Otto_DFCI @oesterreichs @BCRFcure @AVincentSalomon @LobularBCUK @LobularIreland @elbcc @LobularBCA #bcsm
Dr. Steffi Oesterreich@oesterreichs22 Jun 2022
Replying to @oesterreichs
Fantastic presentations and great posters by trainees - everyone put great effort into it. 🙏. Collectively more evidence for #lobular being a distinct breast cancer that deserves more studies. And need to move findings into clinical trials! @neil_carleton_ @Adrianvlee
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👇👇👇👇👇👇👇👇👇👇👇👇👇👇👇👇
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Amazing effort by #lobular #breastcancer #survivor @maggiemoo09 1.6 mil raised so far! 👇👇👇👇
flora migyanka
@maggiemoo0921 Jun 2022
10yrs cancer free today incredibly grateful!Proud what our foundation has done funding#lobular #ILC #unmetneed collab is key @hoosierdfh @mjsikora @Adrianvlee @oesterreichs @UMRogelCancer @sofiamerajver @paigelmyers @UPMCHillmanCC
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Replying to @sflomos @LPseattle @oesterreichs @LobularBCA
Respect 🙌 and Gratitude 🙏 To #Lobmob Leader @LPseattle from the entire attendance at The International Lobular Breast Cancer Symposium #ILCSymposium
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Since we missed @LPseattle from the #ILCSymposium @oesterreichs read her message and she received a huge huge applause @LobularBCA
KarenVanBaelen@VanBaelenKaren21 Jun 2022
Steffi Oestenreich reading a very touching speach by patient advocate Leigh Pate. It would have been great to meet you here at #ILCSymposium. @oesterreichs @LPseattle
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LOVE IT! International #Lobular #breastcanceer Advocacy has launched and is flying! Onward!
Lobular Breast Cancer Alliance@LobularBCA21 Jun 2022
We wrap up the Patient Advocate Session with, appropriately, a photo of the patient advocates attending #ILCSymposium. @elbcc @LobularBCUK @LobularIreland
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Val Brunton from @EdinCRC , one of our Scientific Advisor’s talking about the #lobular tumour microenvironment. #ILCSymposium
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Impressive talk about ##ILC immune features, #Ecadherin #Pcadherin switching and #metastatic ILC #heterogeneity #clonal evolution @NatrajanLabICR
Lobular Breast Cancer Alliance@LobularBCA21 Jun 2022
The afternoon session continues at #ILCSymposium with Rachel Natrajan speaking on the heterogeneity of E-cadherin and the immune microenvironment in #lobular #breastcancer. @elbcc @LobularIreland @LobularBCUK
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Following quite a spectacular Patient Advocate led Session this morning we have an even more Spectacular Key Note Speaker #DAY2 Sabine Linn is now speaking 'Toward Precision Medicine for ILC' #ILCSymposium #Utrecht
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Such a great resource for patients with #lobular #breastcancer in 🔟 languages 🎉. Download and share 👇
KarenVanBaelen@VanBaelenKaren21 Jun 2022
Honored to talk about the leaflet of @elbcc we created for and with the patients diagnosed with lobular breast cancer this morning at the #ILCSymposium. elbcc.org/Leaflet #Koorman @BreastDense @LobularBCUK @LobularIreland @ClaireTTweets @tonelien #rianterveer #gabrielebeck
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Important poster presentation from @LobularBCUK at #ILCSymposium exploring Delphi study results on improving care for patients with #lobular #breastcancer 👇👇👇👇 turns out lobular patients NEED tailored care and follow up #bcsm
LobularBCUK@LobularBCUK20 Jun 2022
Fabulous first day at the #ILCSymposium. A lot of new research, shared ideas & finally met our partner scientists, clinicians & patient advocates. We got to share our first poster collaboration with @dmuleicester. #lobular #BreastCancer @LWalters2021 @DrHCoulthard @QuinceyKerry
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New research out on early-stage #lobular #breastcancer. Older women (70+) may not need to have sentinel node biopsy. Thanks @oesterreichs @Adrianvlee et al for making sure #lobularBC is always included in research! #lobmob @LPseattle @LobularBCA
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Post-mortem tissue study promising to help understand #metastatic #lobular #breastcancer #bcsm @VanBaelenKaren
Lobular Breast Cancer Alliance@LobularBCA20 Jun 2022
Our last speaker for the day at the #ILCSymposium is @VanBaelenKaren speaking on enhancing research on metastatic #lobular #breastcancer through a postmortem tissue donation study. @elbcc @LobularBCUK @LobularIreland
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Closing out today at the #ILCSymposium is LBCA Scientific Advisor Dr. Rachel Jankowitz moderating a session with our three funded #lobular #breastcancer researchers! @elbcc @LobularIreland @LobularBCUK
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International #lobular #breastcancer advocates meeting, greeting and getting to know each other at #ILCSymposium Utrecht! @LobularBCUK @LobularIreland @LobularBCA @elbcc
Siobhán Freeney Advocate #BreastDensity #LobularBC@BreastDense20 Jun 2022
Working Lunch #ILC Breast Cancer Patients and Advocates from Europe US UK share experiences around Dx / Treatment. We're looking forward to further developing a European Advocate presence, influencing #Lobular BC Tx / Screening protocols in EU #ILCSymposium
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