18 million Americans suffering with Long Covid. ZERO treatments. We need a moonshot for Long Covid research funding!

Washington, DC
Joined November 2023
As many of you are waking up to some devastating news, please know that you’re not alone in feeling the weight of this moment. Many of us are grieving this outcome, especially those in the #LongCOVID, #IACC, and #disability communities, who will bear a profound impact. The work we’ve done, and the progress we hoped to achieve, now face serious setbacks. Today, we’ve seen public health take a hit; we’ve compromised resources, put vulnerable populations, including women and children, at greater risk, and disregarded ethical considerations. It’s a difficult day for all of us, but one thing remains clear: we have to fight harder. Our communities are resilient, and we need every single one of you with us to keep pushing forward. Now, more than ever, we need solidarity, strength, and commitment. Together, we can work toward a better future, even in challenging times. #TogetherWeFight #PublicHealthMatters
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Long Covid Moonshot retweeted
Just wrote a @LCMoonshot letter. Takes just a minute here: actionnetwork.org/letters/ea… If you can spare a few extra moments, add a bit of your story to the letter. Help open the eyes + hearts of our Senators + Reps to the diversity of those affected + how this support will help.
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Long Covid Moonshot retweeted
Called my Senators because my Rep is already a cosponsor of the House bill. Who’s next?
Election season is here, so let's make sure our legislators represent everyone with #LongCovid longcovidmoonshot.com/call-g…
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Long Covid Moonshot retweeted
Will be calling today! 📞 Hoping we can get more Congressional support for such an important issue!
Election season is here, so let's make sure our legislators represent everyone with #LongCovid longcovidmoonshot.com/call-g…
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Long Covid Moonshot retweeted
It’s time to act! 📢
Election season is here, so let's make sure our legislators represent everyone with #LongCovid longcovidmoonshot.com/call-g…
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Election season is here, so let's make sure our legislators represent everyone with #LongCovid longcovidmoonshot.com/call-g…
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Long Covid Moonshot retweeted
“In the most expansive study of its kind, researchers have for the first time shown serious and prevalent symptoms of #LongCovid in kids and teens. The study, which followed 5367 children, found that 20% of kids (ages 6-11) and 14% of teens met researchers' threshold for LC”
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Long Covid Moonshot retweeted
We need more voices. To my #LongCovid and #LongCovidKids parent friends, please submit your feedback if you have the energy🙏🏻
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We've got a new campaign dropping next week. Stay tuned, and get those advocacy muscles ready! ❤️
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Long Covid Moonshot retweeted
20 million Americans with #LongCovid — & millions like me & this person lost their job & close to everything because of it. @VP answer should be “I will make sure Congress passes #LongCovidMoonshot & SSDI expedites wait times to address this devastating public health crisis.”
Replying to @atrupar
this is a very emotional town hall. Harris takes a question from a homeless woman whose life was wrecked by long covid about what she'll do for people like her
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Long Covid Moonshot retweeted
Please @drinkLMNT! A % of your customers are folks disabled by complex chronic illness like #LongCovid, #POTS & #MECFS who need lots of electrolytes. There is a bill in Congress called Long COVID Research Moonshot Act to fund research into these neglected conditions.
ok but how can we make this happen @drinkLMNT 😜 (📷 credit: @mrcrowy100)
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ok but how can we make this happen @drinkLMNT 😜 (📷 credit: @mrcrowy100)
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We need three — yes, just 3 — people to fill out the Cure ID survey with just a few treatments you’ve tried and whether they helped or not! As soon as we have 500, they can begin processing the data!
497!!! Nice work, y’all!!! We need THREE more!!! (Link in post below)
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Make your experience count — report just a few treatments, supplements or meds you have tried, whether they worked or not, for #LongCovid! We are so close! 3️⃣ 2️⃣ 1️⃣ ⭐️
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Long Covid Moonshot retweeted
Thank you to @Ilhan & @RepPressley for leading a House companion bill for the #LongCovid Research Moonshot Act! This bill will fund research, education, care, and more. Call your Representatives to ask them to co-sponsor longcovidmoonshot.com/call-g…
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For too long, folks experiencing #LongCOVID have had their challenges unheard. Our bill builds on previous legislation to #TreatLongCOVID and invest the resources necessary to confront this crisis & help ensure #LongHaulers aren't left behind in our pandemic recovery.
I'm proud to join @SenSanders and @RepPressley in the fight against Long COVID. The Long COVID Research Moonshot Act will allocate $10 billion to accelerate research and improve treatment of long COVID. We can't ignore this public health emergency. motherjones.com/politics/202…
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Long Covid Moonshot retweeted
So appreciative of @IlhanMN for leading & introducing the The Long COVID Research Moonshot Act in the House. Rep. Omar has tragically seen the insidious nature of this virus - and sees the pain & suffering that continues to be felt by millions of Americans today with Long COVID
Today, Minnesota Rep. Ilhan Omar will introduce a potentially groundbreaking piece of federal legislation in the House—one allocating $10 billion in funding to fight Long Covid. @metraux_julia's latest scoop: motherjones.com/politics/202…
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