The leading national organization dedicated to improving the lives of those living with Lewy body dementia (LBD).

United States
Joined May 2012
Explaining #Lewybodydementia to someone new is not always easy, but a simple card can help start the conversation. LBDA's free “I Have LBD” Awareness Cards offer options for people living with Lewy and one for care partners. 👉 Download and print yours: ow.ly/yLff50ZYMPu
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Parkinson’s IQ + You is presented by The Michael J. Fox Foundation for Parkinson's Research and designed to empower you to manage the disease, learn about the latest research and connect with local resources. Register today at ow.ly/n27250ZYJo2
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Should participants in research studies be offered the option to receive their individual test results? For people with Parkinson's disease or dementia with Lewy bodies, that question has rarely been studied. Learn about a survey aiming to change that. 🔗 ow.ly/KSwI50ZYJcw
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One moment of understanding can change lives. This month, join us in moving beyond awareness toward real understanding of #Lewybodydementia. This #LBDAwarenessMonth, find trusted education, connect with support, and request your free sticker pack: ow.ly/r8T550ZYC9m
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With presentations from clinicians, researchers and experts from LBDA, @ClevelandClinic, and LBDA Research Centers of Excellence at the @UF and @UW, this conference focuses on advancing your understanding of #Lewybodydementia. 🔗: ow.ly/Rhk850ZYh7G
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Your generous donation to LBDA accelerates awareness, advances research for early diagnosis and improved care, and provides comprehensive education and support. LBDA connects and inspires people across the LBD community. Read their stories and give today: ow.ly/viqH50ZXQKW
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In “Diagnosing Dementia Beyond Alzheimer’s” on Oct. 15, Dr. Torres-Yaghi will explore the diagnostic complexity of dementia syndromes, focusing on #Lewybodydementia. He will be joined by those living with Lewy who will share their diagnostic journeys. 🔗 ow.ly/XojR50ZX0i3
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In complement to the comprehensive U.S. Based DIAMOND Lewy™ Management Toolkit, the DIAMOND Lewy ™ Trifold is a convenient, pocket-sized resource designed to support communication and awareness in everyday healthcare settings. Download the brochure: ow.ly/etac50ZWomO
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Join us in-person or online for the final conference in LBDA’s 2026 Community Conference Series, “Living Well with Lewy: A Day of Learning, Connection and Hope,” on Saturday, November 7 in Las Vegas, NV. Register now: ow.ly/kIVu50ZWozF #LBDAwarenessMonth #LBDACC2026
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#Lewybodydementia (LBD) can affect more than memory and movement. Hallucinations and delusions are common with LBD; and researchers are studying new ways to address them. Learn more about the ILLUMERA Study and see if participation may be an option: ow.ly/KQKH50ZW41y
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Understanding grows when we learn together. This #LBDAwarenessMonth, join us for webinars, conferences, community events, and more. Save the dates and register early, because space for some events is limited. Explore the full calendar: lbda.org/events
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Deepen your understanding of how #Lewybodydementia differs from Alzheimer’s and other dementias, and why diagnostic complexity requires clinicians to look beyond common assumptions with “Diagnosing Dementia Beyond Alzheimer’s" on Oct. 15 at 1:00pm ET. 🔗: ow.ly/Ctk850ZUKH0
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LBDA's 2026 Community Conference Series is coming to Peoria, AZ, on Saturday, October 10. Join us for Living Well with Lewy: Education, Connection and Empowerment to hear presentations from leading clinicians, researchers and subject matter experts. 🔗: ow.ly/PLu750ZUfvs
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#Lewybodydementia can look different from person to person. Knowing how it presents is an important step toward an earlier, more accurate diagnosis and care that fits. Explore the Comprehensive Symptoms Checklist and more free resources: ow.ly/oQZo50ZU92B
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A diagnosis that has a name. A conversation that makes sense. #Lewybodydementia affects approx. 1.4 million people in the U.S. For them, the family members, and healthcare team beside them, moments like these change everything. Join #LBDAwarenessMonth: ow.ly/fypn50ZTKKT
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Watch expert presentations, community webinars, and conversations with people living with #Lewybodydementia, all in one place. Subscribe to LBDAtv today: ow.ly/B6AI50ZTkV6
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Now on LBDAtv: "The Alzheimer’s Connection: Co-Pathology in Lewy Body Dementia,” featuring Shannon Chiu, MD, MSc, and exploring what we know about Alzheimer's disease co-pathology in #Lewybodydementia and why it matters for research happening now. 🔗: ow.ly/EOuw50ZSVtF
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“A Day with Lewy: LBD and the Caregiving Journey” is coming to Green Lake on Oct. 8. It will deepen your understanding of the symptoms of #Lewybodydementia, help you understand its impact, and empower you with resources to improve quality of life. 🔗: forms.cloud.microsoft/pages/…
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The 13th Annual LBD Walk for Awareness is happening today. 💜 Thank you for helping us reach our goal! From Jamison, PA, to communities across the country, we walk together to raise awareness of #Lewybodydementia and create a better future for those living with the disease.
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We are nearly there! 🥳 Tomorrow is the 13th Annual LBD Walk for Awareness, and we have officially reached our goal of raising $30,000 to help move awareness, research, and hope for families facing #Lewybodydementia forward. 🔗: ow.ly/YYw950ZRTWa
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