Help us save our son Conner's life by raising money to cure Duchenne Muscular Dystrophy!
Ridgefield, CT
Joined December 2015
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Kindness Over MD retweeted
Final: Staples 10 - Ridgefield 9.
B. Penn 3G 2A FO’s - 12/22
Lunn 3G 1A
Carney 3A
Colsey 2G
Couri 1G
D. Penn 6 saves.
Every member of this group - starters to #bmob - a team in its truest sense.
Seniors, what you did this year goes far beyond words - you gave us all you had.
Kindness Over MD retweeted
This week, the @US_FDA gave final approval of Duvyzat (givinostat), a new treatment for children and adolescents living with #Duchenne #MuscularDystrophy (#DMD). Learn more about this impactful milestone: mdaquest.org/fdas-approval-o… #ResearchToReality
Kindness Over MD retweeted
Yesterday, the @US_FDA gave final approval of Duvyzat (givinostat), a novel histone deacetylase (HDAC) inhibitor, for the treatment of patients 6 years or older with #Duchenne #MuscularDystrophy (#DMD).
Kindness Over MD retweeted
RARE DISEASES: A #nonprofit focused on researching rare diseases held a ribbon cutting #ceremony today for their new lab in #Woodbridge.
connecticut.news12.com/it-br…
Kindness Over MD retweeted
Conner is one of my true heroes. He a 7th grader with Duchenne muscular dystrophy, a degenerative disease. He comes to my office each year to talk about funding treatments and cures and he’s the bravest friggin kid I know.
Kindness Over MD retweeted
Conner’s courage & conviction are inspiring. For 8 years, I’ve fought alongside him & his family to help support lifesaving treatments for kids suffering from rare diseases like Duchenne Muscular Dystrophy.
Kindness Over MD retweeted
For my entire Phish life, I've seen shows where in the back of my mind I'd think "no Gamehendge songs in this run" and then dismiss Gamehendge from possibly happening because it had been so long or rare. To get it and witness it brought to life tonight with actors/dancers: UNREAL
As we navigate life with Duchenne, the support of the @MDAorg community has been invaluable. This #MuscularDystrophyAwareness Month, join us in backing #MDA’s #30DaysOfStrength and donate $30+ to get a free t-shirt - just like mine! bit.ly/30Days2023 #MuscularDystrophy #DMD
We’re excited to share that Kindness Over Muscular Dystrophy (KOMD) is creating more impact through innovation this year. In order to increase our mission’s reach, we’re accepting donations of U.S. Stocks and over 100 different cryptocurrencies. kindnessovermd.org/non-cash-… #Crypto
Kindness Over MD retweeted
The Curran family raised $411,000 at their @KindnessOverMD Annual Benefit at the @cptlawrencebeer this year. "Every step we take, every dollar we raise- brings us closer to our goal & we can’t stop and won’t stop because time is muscle and patients are waiting!" - Jess Curran
Kindness Over MD retweeted
We are pleased to attend the @KindnessOverMD Annual 2023 Benefit. We look forward to learning more about their initiative of building strength with kindness and supporting their mission of advancing research for #DuchenneMuscularDystrophy.
Kindness Over MD retweeted
Be prepared to care for a loved one living with #Duchenne #MuscularDystrophy. Learn about #DMD & #GeneTherapy's potential impact on caregiving at @mdnewstoday_, featuring insights from Jessica and Chris Curran, whose son lives with DMD: musculardystrophynews.com/du… @KindnessOverMD
Kindness Over MD retweeted
A grant has just been designated for a future clinical trial that aims to test a potential new drug to treat #DuchenneMuscularDystrophy, according to a press release recently published by @CureDuchenne, @MDAorg, and @ParentProjectMD.
Read more 👇 fal.cn/3zXjK
Kindness Over MD retweeted
Today, we approved the first gene therapy for the treatment of patients 4-5 years of age with Duchenne muscular dystrophy (DMD) with a confirmed mutation in the DMD gene who do not have a pre-existing medical reason why they can't receive this therapy. fda.gov/news-events/press-an…
Kindness Over MD retweeted
Chris Curran, MDA Family Member and Co-Founder of @KindnessOverMD, shares the positive impact #GeneTherapy has made for his son Conner, who lives with #DMD. With new gene therapy approvals in the pipeline, MDA is here to facilitate access & provide support MDA.org/GeneTherapySupport
Kindness Over MD retweeted
My friend Conner Curran is 12 and he’s one of my heroes. He lives with Duchenne muscular dystrophy, and advocates for kids like him. He helped convince me to bring $2m in federal money to Connecticut for research on muscular dystrophy.
I was so glad to see him yesterday.
Kindness Over MD retweeted
Always great to see my friend and fellow rare disease warrior, Jess Curran @KindnessOverMD at the @MDAorg gene therapy summit I'm Arizona.
Kindness Over MD retweeted
According to Forbes, the Mets made over $300M in revenue last year. They’ll be just fine. MLB is a multi-BILLION dollar industry. Teams aren’t inflating the market, they’re finally just paying players what they’re worth.
Kindness Over MD retweeted
Honored to be recognized by UF Innovate … innovate.research.ufl.edu/20…