Kidney Support Group (KSG) for all ages and stages. Run by kidney patients, for kidney patients. Whether you’re living with PKD or CKD,Join our Discord!
England, United Kingdom
Joined February 2022
- Tweets984
- Following2.3K
- Followers906
- Likes391
Kidney Support Group (KSG) retweeted
When should the nephrologist think about #genetics in patients with #glomerular diseases?
@ISGDtweets @torra_roser @johnasayer @Gawad_Nephro
academic.oup.com/ckj/article…
Kidney Support Group (KSG) retweeted
Autosomal dominant polycystic kidney disease (ADPKD) is the most common genetic cause of kidney failure. This study found that the combined use of both risk scores was associated with higher ability to identify rapid progressors and resulted in a better stratification, notably among intermediate risk patients. bit.ly/CJASN0625
ALT Visual abstract for "Integrated use of Autosomal Dominant Polycystic Kidney Disease Prediction Tools and Risk Prognostication."
Kidney Support Group (KSG) retweeted
Joshua’s Story: My Dad’s Battle with PKD
I was just 9 when I found out my dad had PKD. It hit us like a truck, but at first, I didn’t really understand how bad it was. I kept joking around, trying to stay positive. But as Dad got sicker, reality crashed in.
Kidney Support Group (KSG) retweeted
Do you feel judged for having Chronic Kidney Disease (CKD)?
It’s tough when you don’t ‘look’ sick, right? Early-stage CKD can be confusing—no obvious symptoms, yet you’re dealing with something serious.
Kidney Support Group (KSG) retweeted
ADTKD - UMOD @nephrHOLLYgy @Kidney_Research patient day @NewcastleHosps about to kick off @rarediseaseuk
Kidney Support Group (KSG) retweeted
Oh hey that’s me 👇🏼
Public and patient involvement manager, Mae, has polycystic kidney disease (PKD) and shared her story to help raise awareness for new research. You too can help fund vital projects. Click here to read more: bit.ly/49V9Cmu
#PKD #KidneyDisease #KidneyResearch
Kidney Support Group (KSG) retweeted
If you want to get involved with a relax social chat group with a lovely bunch of normal everyday CKD patients, drop me a message.
Almost 300 members so far:
✅ Stage 1-5 Patients
✅ Friends & Family
✅ PD/HD Patients
✅ Pre/Post Tx Patients
Everyone welcome! 🤗
Kidney Support Group (KSG) retweeted
📱If you are based in England or Wales, the #NHSApp is a simple way to access a range of services. This includes info on your #KidneyHealth, viewing your GP record or ordering repeat prescriptions: nhs.uk/nhsapp
❗For support with CKD, visit: kidneycareuk.org/support
Kidney Support Group (KSG) retweeted
Moving towards a #SmokeFreeGeneration to protect young people’s health, including protecting kidney health, is vital.
One of the ways you can look after your kidneys is to not smoke or to stop smoking if you already do (1/2)
Today, MPs will vote on legislation to create the first #SmokefreeGeneration - protecting young people turning 15 this year or younger from the harms of smoking.
Read more 👇
gov.uk/government/news/mps-t…
Kidney Support Group (KSG) retweeted
Prevalence and characteristics of genetic disease in adult kidney stone formers academic.oup.com/ndt/article…
Kidney Support Group (KSG) retweeted
For those who don’t know already. 💪
Want to join?
Click the link 🔗: discord.gg/ZcUMwExnJK
Kidney Support Group (KSG) retweeted
💓 As the muscle responsible for circulating blood around your body, the heart plays a key role in providing your organs e.g. kidneys with the oxygen they need
🤔 More info: kidneycareuk.org/kidney-dise…
❗ Remember, we are always here if you need support: kidneycareuk.org/support
Kidney Support Group (KSG) retweeted
I’m running 2 half marathons for @Kidney_Research to honour my sister Becky who’s had a kidney transplant.
If you are able to donate to such an important charity, I would be so grateful!
Thank you x
#kidney #fundraising #GNR #hamsterleyforest
donate.givetap.co.uk/f/kidne…
Kidney Support Group (KSG) retweeted
💛 It is a common misconception that acute kidney injury (AKI) & chronic kidney disease (CKD) are the same or similar
👀 AKI is not the same as CKD. CKD is a chronic long term condition & AKI can usually be treated successfully
▶️ More #KidneyFacts here: kidneycareuk.org/kidney-dise…
Kidney Support Group (KSG) retweeted
We're happy to hear that Rick is recovering well and wish him all the best!! cnn.com/2024/04/04/health/pi…
Kidney Support Group (KSG) retweeted
Front page on my anniversary, forever grateful for the family who allowed me to see the things i’ve seen and meet the people i’ve met!
@NewcastleHosps 🩵🩵 – at Newcastle Upon Tyne, England
Kidney Support Group (KSG) retweeted
New results published in the Genetics in Medicine Open, Professor @johnasayer and @UniofNewcastle team used a new method of analysing patients’ DNA and discovered that a missing gene was responsible for previously unexplained kidney failure.
Read more: bit.ly/4amPon0
