@JeanStraus

I write, edit, advocate for patients, participate in healthcare/hearing research. I'm a bragging mom and a feminist

 London UK
Joined April 2013
  • Tweets761
  • Following1.3K
  • Followers539
59Media
The findings from our Work can be found here! tandfonline.com/doi/full/10.…

The lived experience of hearing loss – an individualised responsibility

This study aimed to provide a conceptual model to understand what typifies the lived experience of hearing loss.A grounded theory informed study of adults with hearing loss (n = 46) who participate...

tandfonline.com
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We're excited to share our research findings from our @NIHRresearch study - Hearing Loss and Patient Reported Experience (HELP)! We have 4 talks and a poster over at the Hearing Across the Lifespan #HeAL2024 conference in the beautiful Lake Como! @AstonAudiology @AstonPsychology
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A GP discusses the link between #hearingloss and #dementia risk in a recent feature:
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@DailyMailUK20 May 2024
DR MARTIN SCURR: How losing your hearing may cause dementia - and the 12 steps you can take to ward it off trib.al/azEZYD4
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A reminder to those following the Research into Ageing sessions at #BGSconf that you can view the posters from these platformed abstracts via the new BGS Poster Platform: buff.ly/49B5TM1 such as this by @hlh1 and colleagues
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Help shape future research about #dementia and #hearing conditions jla.nihr.ac.uk/priority-sett… @hearingnihr @AlzResearchUK @RNID @LindAllinace, @NottmBRC @AlzSocResearch @MedicineUoN @DementiaHearPSP @SianCalv @eithne_h @hlh1 @JeanStraus @BhavishaJParmar @TomDening @Devina_Maru
There is an image of a range of annimated people's faces that are multicoloured. Writing on the image is "Have your say about dementia and hearing". "A James Linda Alliance Priority Setting Partnership". There is a link to the priority-setting partnership X handle which is @dementiahearPSP. On the bottom right-hand side, there is a QR code that can be scanned to take you to the priority-setting partnership survey.

ALT There is an image of a range of annimated people's faces that are multicoloured. Writing on the image is "Have your say about dementia and hearing". "A James Linda Alliance Priority Setting Partnership". There is a link to the priority-setting partnership X handle which is @dementiahearPSP. On the bottom right-hand side, there is a QR code that can be scanned to take you to the priority-setting partnership survey.

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Jean Straus retweeted
The BMJ
@bmj_latest31 Oct 2023
The BMJ remains committed to #patient and #public partnership, and we plan to grow and diversify our database of patient contributors, write @KamranAbbasi, @emmajdoble, @AmyPricePhD, @WalkSquawks and @sophiecook80 bmj.com/content/383/bmj.p250…

Patient partnership at BMJ

Only by working together can we improve the health and wellbeing of people and the planet Pressures on health systems around the world continue to mount, and staff shortages, long waiting lists, and...

bmj.com
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New paper by @traudia and colleagues in Germany responding to the paper by @TuffreyWijne about people with learning disabilities getting #work in universities onlinelibrary.wiley.com/doi/… In Response is going global!! @WalmsleyJan @liz_tilley24

In Response to “My name on the door by the Professor's name”: The process of recruiting a researc...

Click on the article title to read more.

onlinelibrary.wiley.com
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Some great presentations delivered today @InstituteMH Research Day. Did you spot 👀 our poster about the @LindAlliance #PSP in coexisting #dementia and #hearing conditions. #IMHRD23
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Thanks to everyone who spoke from the organisations behind Best For You, including Dr Johan Redelinghuys from @westlondonnhs who spoke on behalf of all of our clinical partners (including @CNWLNHS and @ChelwestFT) and the team from @cwpluscharity…
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Jean Straus retweeted
JennW@JennW_PACnurse18 May 2023
#Quality2023 Meeting Vibeke who is an inspiring Patient Safety Champion and enjoyed our conversation about how much the patient’s voice matters 🤍🦄
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Jean Straus retweeted
Kira@kiris_me17 May 2023
#Quality2023 Scribing is on. Hear the patient voice. Find our stand - come and have a talk #patientsafety Jean telling her story - Annie drawing
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Jean Straus retweeted
nicola davey@NikkiDQIC17 May 2023
#quality2023 @JeanStraus giving final address #patientvoice @QualityForum Tx for their judging of #patientvoice in each session @ARC_NWL @sandrasagary
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Thank you to everyone visiting the Patients Included stand and who came to our workshop, it’s really brilliant to hear all the enthusiasm for bringing patients into research and beyond. #Quality2023 @bmj_latest
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In the closing plenary I’ll be announcing the winners of the 2023 Patients’ Choice Award as well as sharing all our amazing live illustrations from the event. @QualityForum #quality2023 Can’t be there- livestream it! internationalforum.bmj.com/c…
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Come and have a chat at our Patients Included stand! It’s the place to be @QualityForum #quality2023
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Replying to @Mental_Elf @sandrasagary
Big thanks to @JeanStraus and @sandrasagary for their #Quality2023 presentation. These are their final key messages
Including patients in health conferences can help delegates to understand problems that matter most to patients and their caregivers

ALT Including patients in health conferences can help delegates to understand problems that matter most to patients and their caregivers

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Great new piece from our friend @christinasempie: "I would love to.. go back to watching [sport] live. I miss the buzz of the crowd.. access to a sports venue is important for someone with #dementia.. a diagnosis.. doesn’t mean you should stop attending." forwardwithdementia.org/en/n…
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Public advisors are vital to our research. Dr @KerryLHanna @LivUniHealthSci discusses the role public advisors have played in her research into #healthinequalities. Read more here: liverpool.ac.uk/population-h… #orthoptics #dementia
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So happy to see this paper published, thank you for including me as co-author. @Anna_De_Simoni doi.org/10.1186/s40900-023-0… Drawing attention of the 'invisible work' behind supporting patients & the public in health research
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Here it is, my latest @RNID column, much ado about a very small something. With thanks to @hlh1 and @ReSoundUK
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