JAFA is Juvenile Arthritis Foundation Australia. Juvenile arthritis is a painful auto-immune condition affecting over 6.000 kids & young people in Australia.
Joined March 2020
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JAFA retweeted
Health Report features 8 yo Nylah talking about her Juvenile Arthritis journey along with her dad.
Prof Stephen Colagiuri from @JAFAforkids talking with @normanswan about Juvenile Arthritis & gaps in services in Australia.
Health Report abc.net.au/listen/programs/h… via @ABCaustralia
Important support from peak bodies & health groups backing our campaign to reduce delays in diagnosing children with juvenile arthritis. Thanks to all who’ve signed our consensus statement including @PharmGuildAus @RACGP @MedicinesAus @PSA_National jafa.org.au
Children living with painful juvenile arthritis will benefit from a NSW gov’t budget investment of a record $6.9m in more specialist paediatric services. Thanks to @RyanPark_Keira for addressing this need and 2GB’s Chris O'Keefe for great support bit.ly/4b2vn4F
JAFA retweeted
Incredible news, finally kids in NSW have access to services to help them through the pain of Juvenile Arthritis.
Been a long road to get to this point.
Great work @JAFAforkids @RyanPark_Keira and @cokeefe9 🙌🏼🙌🏼
Chris O’Keefe and NSW Health Minister Ryan Park, announce a $6.9 million funding boost for pediatric rheumatology services in New South Wales. @cokeefe9
MORE: brnw.ch/21wKMOs
Why Laura burst into tears every time her own mum hugged her honey.nine.com.au/latest/juv…
Sincere thanks @Mark_Butler_MP & Dr Mike Freelander MP for announcing the first major federal gov’t investment in a national program to shorten delays in diagnosing juvenile arthritis. It’s vital to intervene early to prevent children from developing disabilities.
JAFA retweeted
Huge day for the @JAFAforkids cause with findings of an Impact Study released at NSW Parliament House.
It contextualises the huge burden for families, and the kids themselves, and thanks to MP’s inc. @RyanPark_Keira for their time.
Nylah handed a thank you to the minister 1/2
Our national IMPACT report has identified major inequality for children with juvenile arthritis who suffer pain & wait a year for diagnosis. Thanks to @RyanPark_Keira & @DrJoeMcGirrMP for launching the report & working for a better future for @JAFA kids bitly.ws/33Bje
Delays in juvenile arthritis diagnoses causing kids to live in pain abc.net.au/news/2023-11-28/d…
New AIHW report reveals up to 30k children & young adults in Australia live with juvenile arthritis, with a rise in hospitalisations and workforce shortages. More info: bit.ly/3ChbE26 #JuvenileArthritis #JAFA @aihw @ArthritisAust @flipperm
Met with NSW Health Minister Ryan Park discussing the shortage of paediatric rheumatology professionals. He's looking into the consumer-focused issues & seeking solutions. Encouraged by the positive dialogue More updates soon. Thanks Minister Park! @ryanpark_keira @adampeacock3
#JAFA grateful for $800K federal funds for 2023-24. Focused on boosting awareness and early diagnosis of childhood arthritis & rheumatic diseases. Aiming to lessen pain & disability. bit.ly/3LZAWX0 @gedkearney Dr Mike Freelander @adampeacock3 @DrJaneMunro
📣 In #Tasmania: No paediatric rheumatologist = costly trips to Melbourne. JAFA founders Ruth and Stephen Colagiuri with @polley_helen &
@janiefinlay (📷 Apr 28) advocate for better care for kids with arthritis & rheumatic diseases 📷#ArthritisAwareness #JAFA
Kate woke to the sound of her daughter screaming in agony honey.nine.com.au/latest/juv…
Great work raising awareness about your daughters' juvenile arthritis @adampeacock3 and @MichaelChammas. And thanks for spreading the word about what JAFA is trying to do for these kids.
The suffering and pain these kids go through is unimaginable. Thanks @WestsTigers this is something that means so much to both Adam and I with what our daughters have gone through 💛💛
Wow!! Big news for kids and families living with juvenile arthritis. Thanks to everyone at @WestsTigers
#juvenilearthritis. #jafa #juvenilearthritisweek
weststigers.com.au/news/2023…
JAFA retweeted
Nylah (middle) couldn’t make it this morning to Canberra but caught up with some friends and their siblings on the weekend.
@JAFAforkids helps connect families affected by JA, sharing experiences is vital.
Thanks to MPs @gedkearney, @Louise_Pratt, Dr Mike Freelander, @polley_helen, Anne Webster and @JAFAforkids families for supporting the launch of the 1st national registry to build vital data to help Aussie kids with #juvenilearthritis. #jafa #juvenilearthritisweek
JAFA retweeted
Celebrating Australia's first
Juvenile Arthrtis Week (JAW) at Birrarung Marr with Victorian kids & teens who have Juvenile Arthritis & their families - with @RCHMelbourne fab paediatric rheumatology team members nurse practitioner Sarah Wilson & Dr Georgina Tiller @JAFAforkids
