@Ipaymyshare

Not your responsibility

Joined April 2022
  • Tweets3.5K
  • Following205
  • Followers82
137Media
Not who you think I am retweeted
Conquer Chiari@ConquerChiariSep 10
💜 Registration closes September 16! If you're planning to join one of our September 19 CCWAA26 walks, now is the time to get registered! Don’t wait—register today at walk.conquerchiari.org and be part of CCWAA26! 💜
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Not who you think I am retweeted
Chiari Bridges@ChiariBridgesSep 8
💜 #ChiariAwareness Fact #8 💜 Acquired Chiari is often driven by underlying structural issues:🔸 Loose ligaments ➡️ structural shifting ➡️ brain tonsil prolapse. Doctors must start checking for root causes, not just the herniation! #ChiariBridges
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🔎 A Closer Look at Internal Jugular Vein Decompression Jonathan Sisti, MD, discusses a posterior surgical technique for C1 transverse process resection to decompress the internal jugular vein and address potential venous outflow obstruction and #intracranialhypertension. 🎥 youtu.be/tom8oxfKEbo #ChiariMalformation #Craniocervical #Neurosurgery #skullbase #Syringomyelia #CCI #EDS

C1 Transverse Process Resection for Internal Jugular Vein Decompression at Skull Base - J Sisti, MD

Jonathan Sisti, MDTitle: C1 Transverse Process Resection Technique...

youtube.com
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Not who you think I am retweeted
Conquer Chiari@ConquerChiariSep 5
Research Update Nearly Half of Chiari Patients Show Signs of Cerebellar Cognitive Dysfunction PDF version: conquerchiari.org/library/in… #chiariresearch #ccwaa26 #conquerchiari
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Not who you think I am retweeted
George Moore
@moor82468Sep 3
Replying to @earthing5000
Listen up, Muslims will lie and deceive to draw you in then lop off your head!!
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Tonight at 6pm ET! #chiarimalformation #supportgroup #virtualsupport
Global Neurosciences Institute
@gni_neuroAug 31
New research could change how Chiari malformation is treated. This month's Chiari Support Group breaks down a surgical technique now being studied, with Christopher Rivas, MS, of Drexel University College of Medicine. Where the research stands, how it works, and what it could mean for patients. Wed, Sept 2 · 6 PM ET · Live on Zoom · Free Register here: us02web.zoom.us/meeting/regi… #Chiari
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Not who you think I am retweeted
Conquer Chiari@ConquerChiariSep 1
💜 September is Chiari Malformation Awareness Month. Awareness means being heard, believed, and understood. We stand with everyone affected by Chiari and continue the fight for awareness, research & hope. 💜 #ChiariAwareness #conquerchiari
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Allison Bloom, MD explores new insights into findings from the largest verification-based study of #Eaglesyndrome in #connectivetissuedisorders. ▶️ youtube.com/watch?v=24mTyD8j… #ChiariMalformation #EDS #Syringomyelia #ASAPconference #ehlersdanlossyndrome #neurosurgery #hypermobility #medtwitter
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Not who you think I am retweeted
Conquer Chiari@ConquerChiariAug 26
💜Research Update A recent study measured CSF flow in children with Chiari before and after decompression surgery. PDF Version: conquerchiari.org/library/in… #conquerchiari #chiariawareness #chiariresearch #ccwaa26
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What can animals teach us about #Chiarimalformation? 🐾🧠 Dr. Bermans Iskandar explores what we know about Chiari and Chiari-like malformations across species, comparing symptoms, diagnosis, and treatment approaches with the human condition. 🎥 youtube.com/watch?v=nnlEe-VD… @uw_neurosurgery @uw_medicine #Syringomyelia #neurosurgery #MedicalResearch #VeterinaryMedicine #caninechiari
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Not who you think I am retweeted
FischerKing
@FischerKing64Jul 17
It’s very simple. Paper ballots everywhere. One person in a covered spot to preserve secrecy. Voter ID confirmed by a voter roll. No ballot harvesting, no mail ballots except military abroad. Total ability to confirm a vote with paper ballots.
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Not who you think I am retweeted
Matt Mehan
@MTMehanJul 14
On this day…
Tony Francois
@TonyFrancoisEsq15 Jul 2024
This thread from the great Matt Mehan @MTMehan is one of the best recaps I have seen of how the left has framed its own violence (in word and deed) over the past 5+ years. Peace & order as spoils, withheld from ordinary Americans unless they vote D, is exactly right.
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My very own experience with a ufo!
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👏 Congratulations to the recipients of the 2026 Timothy M. George #Fellowship Award! Through their commitment to scientific discovery and improved patient care, these researchers are helping shape a brighter future for the SM/CM community. 💙💜 asap.org/current-research/fe… @UofUNeurosurg @UofUMedicine #neurosurgery #NeuroResearch #chiari #neuroscience #researchgrant
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This condition is not very well understood and affects each individual with it differently.
American Syringomyelia & Chiari Alliance Project
@ASAPChiariSyrinMay 21
💙🩵 #Syringomyelia occurs when a fluid-filled cavity (#syrinx) forms within the #spinalcord, potentially expanding and damaging nerves. Symptoms can vary widely from person to person, causing many patients to wait years for a diagnosis. Awareness ➡️ early diagnosis ➡️treatment ➡️ reduce long-term neurological damage tinyurl.com/syringomyelia #raredisease #Neurosurgery
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The virtual conference on 7/28-29 is an amazing opportunity to learn more about the treatment and care for these conditions. Make plans to attend and sign up TODAY at ASAP.org
American Syringomyelia & Chiari Alliance Project
@ASAPChiariSyrinMay 17
🦓 The connective tissue connection between #EDS + #Chiari malformation + #syringomyelia🧬 More coming soon: tinyurl.com/ASAPConference20… 🔹#ConnectiveTissueDisorders and #EhlersDanlosSyndrome and Chiari – Vincent Martin, MD 🔹Pain and EDS - Ilene Ruhoy, MD 🔹Neuropsychiatric Manifestations of #MastCell - Anne Maitland, MD 🔹The Pentad Patient - Ilene S Ruhoy, MD 🔹Connective Tissue #Hypermobility: EDS & Chiari 1 Malformation in the Pediatric Patient - Robert Keating, MD 🔹Identification of Rare Variants in Collagen Genes in Chiari Patients - Allison Ashley Koch, MD
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Not who you think I am retweeted
Ted Cruz
@tedcruzMay 15
Texans! This Sunday, join me for a Get Out the Vote Rally supporting @ChipRoyTX in his campaign for Texas Attorney General. Every vote matters in this runoff. Stand with us. 🇺🇸 RSVP here: docs.google.com/forms/d/e/1F…
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🦓💙 May is #EhlersDanlosSyndrome Awareness Month #EDS is defined as a group of 13 heritable connective tissue disorders. asap.org/disorders/ehlers-da… 🔜Learn from EDS experts during our 2026 FREE #virtualconference: tinyurl.com/ASAPConference20… #chiarimalformation #syringomyelia #hypermobility #connectivetissuedisorder
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Not who you think I am retweeted
1984_was_no_lie@EjspopMay 7
Today is the National Day of Prayer.Take a moment to pray for our country, our leaders and each other. Regardless of what “side of the aisle” you are,we should pray for the Lord’s peace, grace and understanding. There are more things that unite us than those which divide us.
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💙The effects of syringomyelia can be widespread throughout the #nervoussystem. Because #syringomyelia affects the spinal cord itself, it can disrupt both sensory and motor nerve pathways, as well as autonomic pathways if the syrinx grows large enough. ASAP.org #syringomyeliaawareness #syrinx #spinaldisease #neuroscience #raredisease
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