Kids get sick 🤒 But how often is too often? Primary Immunodeficiency (PI) causes frequent #infections that can be hard to cure. 1:500 people are affected by PI. If your child exhibits 2+ of the #10WarningSigns 🚨, speak to a physician. See the signs at bit.ly/3wzDmnm

Today, we’re celebrating Jeffrey. 💙 A little boy whose life was far too short, but whose story changed the lives of countless others around the world. Because of Jeffrey, families have greater awareness of primary immunodeficiency. Because of Jeffrey, babies around the world have the opportunity to be identified through newborn screening before they become seriously ill. And because of Jeffrey, children and families facing primary immunodeficiency have a community that continues to advocate for them. His legacy lives on in every diagnosis made earlier, every family given answers, and every child given a chance. Happy Birthday, Jeffrey. Your story continues to make a difference every single day. 💙 #ScreenEveryBaby

Today, 41 countries have some form of #SCID newborn screening - 28 with nationwide population screening, 8 with pilot programs, and 5 with selective screening. These numbers represent meaningful progress, but they also remind us that access to SCID newborn screening is still not universal. This #NewbornScreening Awareness Month, we’re celebrating the progress that has been made while continuing to advocate for what comes next: SCID newborn screening for every baby, everywhere. 💙 Screen every baby. *Data shown reflects information available through the Jeffrey Modell Foundation. #ScreenEveryBaby #PrimaryImmunodeficiency #NewbornScreeningAwarenessMonth #NBSMonth #RareDisease #EarlyDiagnosis #GlobalHealth

Did you know #NewbornScreening for #SCID can also identify babies who may have low T-cell levels associated with other conditions? Early detection can help connect babies and families with the specialists and care they need as soon as possible. Learn more about newborn screening for SCID and #PrimaryImmunodeficiency here: bit.ly/3I8AU0V

Access to #NewbornScreening for SCID is not yet universal around the world. This month, let’s continue to raise awareness, champion early diagnosis, and advocate for #SCID newborn screening for every baby, everywhere. #ScreenEveryBaby. Save lives. Change futures.

Today, we celebrate Fred and Vicki Modell -not only on their anniversary, but for the extraordinary legacy they've built together. Because of their vision, countless children are now diagnosed before symptoms appear, giving them the opportunity to receive life-saving treatment and the chance to live healthy, full lives. Happy Anniversary, Fred and Vicki. Thank you for turning love into hope, and hope into a legacy that continues to save lives. 💙

💙 September is Newborn Screening Awareness Month. For decades, our founders, Vicki and Fred Modell, tirelessly advocated in Washington D.C. for the addition of Severe Combined Immunodeficiency (#SCID) to the federal #NewbornScreening panel. From testifying before Congress to meeting with policymakers, they never stopped pushing to ensure that every baby had the chance for early diagnosis and life-saving treatment. In 2018, their vision became reality - SCID screening was implemented in all 50 states, Washington D.C., Puerto Rico, and the Navajo Nation. Since then, nearly 42 million newborns in the U.S. have been screened! ❤️ #ScreenEveryBaby

Reply with yours - you never know who might need to hear it.

What is #IgG? It's the most common type of antibody found in your blood and helps people living with PI as they don't make enough IgG or the IgG they make doesn't work properly. Every plasma donation has the potential to help patients who rely on IgG replacement therapy.

Did you know there are more than 550 identified Primary Immunodeficiencies? 🤯 And researchers continue to discover more. Awareness leads to earlier diagnosis, and earlier diagnosis can save lives. 💙

Life is made up of moments worth showing up for. For many people living with #PrimaryImmunodeficiency, plasma-derived therapies help make more of these moments possible.🩸 Your plasma donation could help. #DonatePlasma

It’s #NationalScienceWeek! At the Jeffrey Modell Foundation, science isn’t just part of what we do - it’s at the heart of everything we do. This National Science Week, we celebrate the physicians, researchers, and innovators whose dedication is helping make earlier diagnoses, better treatments, and brighter futures possible. Together, we're turning discovery into hope.

As a new school year begins, every child deserves to feel safe, supported, and understood. To all the educators making a difference, thank you for helping students with PI feel seen, supported, and empowered. 🍎 #BackToSchool

Every plasma donation starts a journey. Each step connects one person’s generosity to another person’s hope. For people living with #PrimaryImmunodeficiency, plasma-derived therapies can be an essential part of staying healthy and living life to the fullest. 💙 Thank you to every plasma donor who helps make this journey possible.

🎒 Back-to-school season can bring excitement, new opportunities... and new challenges for families living with #PrimaryImmunodeficiency. Remember: every child living with PI has different needs. Work with your healthcare team and school to create a plan that's right for your family. #BackToSchool

⏰ Just one day to go! Join us for an engaging discussion on the evolving role of #ArtificialIntelligence in #PrimaryImmunodeficiency and what it means for the future of patient care. Register here: bit.ly/4eHKWUw

Plasma is more than medicine… ❤️

STAT1 Gain-of-Function is a rare #PrimaryImmunodeficiency that affects how the immune system works. People living with #STAT1GOF may experience frequent infections, autoimmune conditions, and other health complications - but every person's journey is unique.

After years of chronic infections and repeated pneumonia, Katie was diagnosed with #CVID in 2017. Today, weekly #SCIG treatment has made a meaningful difference in her life. Read her full story here: bit.ly/3RwQQ1Q

Exciting news! Greece has launched a neonatal screening program that now includes Severe Combined Immunodeficiency (SCID), one of the most severe forms of #PrimaryImmunodeficiency. The program will also screen for severe T-cell lymphopenia and severe B-cell lymphopenia, helping identify babies who may need specialized care as early as possible. #NewbornScreening saves lives. By identifying conditions like #SCID before symptoms develop, babies can receive timely treatment and have significantly improved health outcomes. At the Jeffrey Modell Foundation, we believe every newborn deserves the opportunity for an early diagnosis, and we're encouraged to see more countries expanding access to these life-saving screening programs. 💙 Congratulations to everyone involved in making this important milestone possible!

People living with #PrimaryImmunodeficiency often face challenges that others can't see. Fill in the blank: "I wish my __________ knew this about having PI." Reply with your answers. Your story may help someone better understand life with PI.