@Infactuk
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Infact are the registered Trust & National Campaign Group representing every affected person in the UK harmed by Sodium Valproate and other AEDs in Pregnancy
Worldwide
Joined March 2018
- Tweets803
- Following322
- Followers334
- Likes416
Infact - Independant Fetal Anti-Convulsant Trust retweeted
"The estimated 20,000 victims of valproate born to female users exist primarily because information has been consistently withheld since licensing in 1972. We see this latest revelation as further regulatory failure and evidence of harm" - @Emma4facs 6/6 thetimes.co.uk/article/3bde7…
Infact - Independant Fetal Anti-Convulsant Trust retweeted
The Sunday Times is campaigning for redress for the victims of the valproate scandal after women were not told the risks of the drug to their babies for decades. 20k children may have been left deformed or disabled. 3 babies a month are still being prescribed the drug. 5/6
Infact - Independant Fetal Anti-Convulsant Trust retweeted
🚨 NEW: Men who take the epilepsy drug sodium valproate could be at increased risk of having children with disabilities, new research by @sanofi has found 🧵 1/6
thetimes.co.uk/article/3bde7…
Infact - Independant Fetal Anti-Convulsant Trust retweeted
Men who take the epilepsy drug sodium valproate could be at increased risk of having children with disabilities, research has found thetimes.co.uk/article/men-o…
Infact - Independant Fetal Anti-Convulsant Trust retweeted
Infact - Independant Fetal Anti-Convulsant Trust retweeted
#valproatecrisis Quite a catastrophe don’t you think ? @MHRAgovuk @sanofi
#Fetalvalproatespectrumdisorder #FVSD #Autism #BABIESLIVESMATTER
The Study should be released immediately ‼️⚠️
@JanetWilliams99 @Infactuk @catherinecox2 @littlelegs2006 @lisaboothman99 @LadyPZander
🚨 NEW: Men who take the epilepsy drug sodium valproate could be at increased risk of having children with disabilities, new research by @sanofi has found 🧵 1/6
thetimes.co.uk/article/3bde7…
Infact - Independant Fetal Anti-Convulsant Trust retweeted
@Infactuk @JanetWilliams99
Proud to be nominated for
“Community Organisation for Disability” the only active Charity in the UK supporting families both here and worldwide that now live with disabilities as a result of #Epilepsy meds taken in Pregnancy @ndawards
Infact - Independant Fetal Anti-Convulsant Trust retweeted
It’s not been “underestimated” the regulators have known since licensing in 1973 the harm #valproate would cause to babies,yet they PURPOSELY hid this information & continued to do so until we @JanetWilliams99 @Infactuk started our campaign It’s a Man made scandal @PJOnline_News
Essential listening for pharmacy professionals: The latest on the patient safety scandal dubbed the 'new thalidomide' 🎧 💊💊🎧 #PJpod
pharmaceutical-journal.com/a…
Infact - Independant Fetal Anti-Convulsant Trust retweeted
Today we @JanetWilliams99 @Infactuk have written to the Health Select Commitee @CommonsHealth @SteveBrineMP about the lack of action with regards Redress for Babies, children & adults disabled by #valproatecrisis @DHSCgovuk #compensationforvalproate
Infact - Independant Fetal Anti-Convulsant Trust retweeted
We @JanetWilliams99 @Infactuk have submitted an FOI to @MHRAgovuk @MHRAmedicines as to there reasoning behind the new guidance with #Valproate and the Pregnancy Prevention Programme #valproatecrisis #compensationforvalproate
Infact - Independant Fetal Anti-Convulsant Trust retweeted
Clarity : We @JanetWilliams99 @Infactuk have NEVER called for #Valproate to be banned, and as evidenced in the meeting do share the same concerns of the 2 consultant prescribing @SudepAction
All regulatory decisions & responsibilities lie solely with @MHRAgovuk
📢 Proposed new policy changes on #valproate will greatly increase pressures on the NHS and social care, according to 11 leading UK epilepsy orgs. The coalition has written to sec of state @SteveBarclay seeking reassurances. sudep.org/article/public-sta…
Infact - Independant Fetal Anti-Convulsant Trust retweeted
We @Infactuk has had input into the Condition Insight Report for the benefit system, played a huge part in the @IMMDSReview & now work towards compensation with @DHSCgovuk @mariacaulfield & @PSCommissioner Let's not forget the disabled by #valproatecrisis
Infact - Independant Fetal Anti-Convulsant Trust retweeted
@Infactuk @Emma4facs worked 10yr with many Govt bodies to better warnings, with @NICEComms to update guidance, the @EMA_News & @mhra towards the PPP for Valproate & the @WHO to update the #ICD11 for diagnosis & Essential medicines list for guidance worldwide.
Infact - Independant Fetal Anti-Convulsant Trust retweeted
Yesterday in a letter to the Health Minister and @PSCommissioner we @JanetWilliams99 @Infactuk requested urgent intervention from the Government @ShaunLintern
#valproatecrisis #babieslivesmatter #patientsafety #informedchoice
Following todays meeting with @mhra we @Emma4facs @infact have written to Health Minister @mariacaulfield @PSCommissioner yet again regarding our ongoing concerns with the failing PPP that continue to put babies and lives at risk. We have requested Government intervene urgently.
Infact - Independant Fetal Anti-Convulsant Trust retweeted
#compensationforvalproate #valproatecrisis
Huge thanks to @LiseMcNally @GranadaReports @ITVGranadaGamal for featuring our Campaign for justice for thousands of #valproate families @JanetWilliams99 @Infactuk
The team here are delighted founders @Emma4facs & @JanetWilliams99 have been recognised by @thetimes in The Alternative Honours List 2022.
Huge congratulations to them both
thetimes.co.uk/article/alter…
Infact - Independant Fetal Anti-Convulsant Trust retweeted
The Sunday Times alternative honours list is out! A great run through of amazing people doing inspirational things. Congratulations to @Emma4facs and @JanetWilliams99 who get a very honourable mention thetimes.co.uk/article/c1728… @thetimes
Infact - Independant Fetal Anti-Convulsant Trust retweeted
An avoidable man made tragedy just waiting to happen. NOW will the @mhra @rcgp & @rpharms do what's needed!! @Infactuk @Emma4facs look forward to action not words!!
Different to reading it online and feeling very teary 🥲 💔
An AVOIDABLE Man made Tragedy
For 50 years EVERYONE watched it happen and still when we @JanetWilliams99 started our Campaign NO urgency despite the knowledge of causing Autism & lifelong physical disabilities
Infact - Independant Fetal Anti-Convulsant Trust retweeted
Well done Emma and Janet for speaking so passionately, you did yourselves and your family proud today, has you have done every day you’ve advocated for them x
Infact - Independant Fetal Anti-Convulsant Trust retweeted
Well done, Emm and Jan.
Thanks to all supportive Parliamentarians and @JuliaCumberlege
I do hope that @hormonepregtest will be invited to a separate hearing once the legal formalities are out of the way.
#redress for all injured by #primodos #valproate and #mesh is imperative